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  1. TiredSam

    Blog: Changing the narrative #1: exploring a new approach to strategic communications in the ME community, by Valerie Eliot Smith

    Well thank goodness nobody here used the words "liar" or "fantasist". "Infuriating scumsuckers who really piss me off" might not go down so well though, do be careful @Esther12. EDIT: VES is a member here and can read this thread, yet instead of engaging or collaborating, she just chose to...
  2. TiredSam

    Researchers to study dogs’ emotional attachment to toys

    At least the dogs can't go online and claim the psychs have got it all wrong. The results will be whatever the researchers say they are, and pet owners everywhere will lap it up. There's be a range of "scientifically proven" dogtoys to ensure the emotional stability of your dog in this for someone.
  3. TiredSam

    Researchers to study dogs’ emotional attachment to toys

    Good to see this neglected subject finally receiving the attention it deserves.
  4. TiredSam

    David Tuller: Trial By Error: My Six-Month Review

    @dave30th If you keep going I'll lend you my best T-Shirt
  5. TiredSam

    Evaluating the Effects of Environmental Exposures on Neurological Disorders

    My wife sprayed the garden with roundup the summer before I got ill.
  6. TiredSam

    NICE Annual Conference 2019: "Transforming care"

    I think it might mean that it's time to stop trusting science-fascist experts and start listening to anecdotal evidence from real-world patients. This is not only more respectful to patients' narratives and perspectives and more democratic, it also has the advantage that even if you can't design...
  7. TiredSam

    Does anyone else experience soreness in the back?

    That sounds very familiar. It always reminds me to lean back in my chair instead of leaning forwards so much.
  8. TiredSam

    Does anyone else experience soreness in the back?

    Yes, I've had it from day 1. Kidney area. Also higher up the back in the middle. It's a warning sign that I'm close to overdoing it, and goes away again when I rest. 3 months before my ME started I had severe pain in the kidney area which left me unable to move off the sofa for days. I had all...
  9. TiredSam

    Blog: Changing the narrative #1: exploring a new approach to strategic communications in the ME community, by Valerie Eliot Smith

    I'm not saying she should reveal her sources. I'm saying that if she can't, she shouldn't expect us to accept her evidence without question. Critical readers will want to weigh up the evidence, so I think it's a fair analogy. It is, I've seen it in action. I haven't referred to the fact that...
  10. TiredSam

    Blog: Changing the narrative #1: exploring a new approach to strategic communications in the ME community, by Valerie Eliot Smith

    I wasn't aware that the person who gave her the video was a client protected by lawyer-client privilege. And saying to a judge "I have the facts but I mustn't share the details" will usually lead to him concluding that you haven't discharged your evidential burden and wondering why you bothered...
  11. TiredSam

    Blog: Changing the narrative #1: exploring a new approach to strategic communications in the ME community, by Valerie Eliot Smith

    VES can't have it both ways. On the one hand she is claiming to be showing us how we are perceived from the outside and making suggestions as to what we should be doing about it. I expect she hoped her views would be accepted and appreciated. However, when someone politely tells her how her...
  12. TiredSam

    Blog: Changing the narrative #1: exploring a new approach to strategic communications in the ME community, by Valerie Eliot Smith

    She's trying to sound vaguely menacing, without actually threatening anything. Typical lawyer bluster. If she's hinting at a possible action for libel, she'll end up having to sue herself for choosing to publicise Trish's comments on her website. I think the most likely reason why she published...
  13. TiredSam

    The association between adolescent well-being and digital technology use (2019) Orben et al.

    Best line of this song - "Old men sit and think" Why doesn't anyone listen to music like that any more?
  14. TiredSam

    The association between adolescent well-being and digital technology use (2019) Orben et al.

    Yes but normally the older generation have made a better world for the younger generation, so they are entitled to be resentful, jealous and moan a bit. We have made a worse world for the millenials and are now sticking the boot in and trying to blame them by pretending it's all about screen...
  15. TiredSam

    The association between adolescent well-being and digital technology use (2019) Orben et al.

    Are we the first generation that has been so vicious in our contempt and scorn for the following generation? Having benefited from free university education which virtually guaranteed a good job, being able to get on the housing ladder, having a good pension to look forward to, and using all the...
  16. TiredSam

    Repurposing large health insurance claims data to estimate genetic and environmental contributions in 560 phenotypes (2019) Lakhani et al.

    That was a good read. I took my 3 boys to Blackpool some years ago, we had a giant Dalek right outside our bedroom window.
  17. TiredSam

    Blog: Changing the narrative #1: exploring a new approach to strategic communications in the ME community, by Valerie Eliot Smith

    Well we are in agreement there. I have always thought very highly of her and appreciated her efforts for the ME community (nervous about even using that phrase now). So I was very surprised and disappointed to see such a divisive and potentially damaging blog. It took me a long time to go...
  18. TiredSam

    Open letter to the Trustees and Staff of Action for ME about the 'Toolkit for professionals'

    Nice to see them expressing enormous gratitude to those who reviewed the toolkit. Now that we've reviewed it I wonder if they'll be expressing the same enormous gratitude towards us? Unless "reviewing" in the AfME world just means nodding and saying "yes, that's great".
  19. TiredSam

    Blog: Changing the narrative #1: exploring a new approach to strategic communications in the ME community, by Valerie Eliot Smith

    Well here's my take on VES's second blog. It basicially consists of: 1. A friend told me that the PCC (which no longer exists) told him that ME patients were a nightmare. That it? As a lawyer (who can't seem to stop herself from waving her credentials in our face at every opportunity), surely...
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