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That too but i also had a spect scan.

I had a brain spect done a couple years back and have a copy of the images, the staff radiologist said it was normal but i wonder if my images may be of value to this research (is it the right kind of scan)?

Mine has been very slow progressing but getting worse and worse, never upwards.

I call it being fried like a chicken, though i don't think that qualifies as medical grade terminology :emoji_thinking:

The worst part is its us the patients that are her evil, we keep banging her head on reality. In a way she is like a faith healer who refuses to believe in science. She is saving us from the devil, if we don't believe we are channeling evil and need an intervention or seance (or to be confined...

Welcome :) I don't have this exact experience (though the diagnosing neurologist did suggest a referral to a psychiatrist) but i have had a few docs being dismissive an not willing to listen to my severity (as has probably almost everyone on this forum). Might be worth mentioning in your article.

Exactly This is like saying Diabetes could be defeated with that crap. If they do then I look forward to their disciplinary hearing...

+1 In some cases i would like to see criminal charges, in others medical licenses revoked at the very least

Unrest seems to be raising the profile of this condition, that will hopefully continue to rise Research funding will hopefully continue to increase People will pay less attention and respect for CBT/GET Results from the new Rituximab study A possible disease mechanism?

Sometimes it pays to be persistent, from the makers of recaldent and according to a questions/answers on amazon doesn't have xylitol (perhaps you can get an official ingredients list elsewhere, i am low on brain power) You can get lower prices/smaller quantities elsewhere or maybe other amazon...

That is a reasonable possibility

If you don't have wisdom teeth (they are removed) or they are erupted already you can use vitamin K2 with vitamin A and D. It will prevent tooth problems, though not sure about gum problems. There are oral wetting solutions available that you may be able to tolerate, though it will take brain...

I don't care how it makes things look, i care that it works for what its supposed to treat. Though that distinction is lost on many doctors.

Unless your complete DNA has been sequenced and compared to the average squirrel you can't be 100% sure of this. :emoji_chipmunk:

I'd like to see the police reports and who was charged with harassment. Thats probably harassment just asking for evidence to back up statements made by a so called scientist. Before you know it alternative facts won't cut the mustard then science is really screwed because people will question...

I need a PEM break

i challenge you to a duel, which for ME/CFS people probably means we both sit on opposing couches and think about purchasing foils someday in the distant future :rofl:

how mean :cry:

I posted that, it was added to the OP so i deleted :woot: Perhaps i should have left it for posterity :laugh: I do this sometimes too, i call it ME/CFS brain (as an allegory to pregnancy brain which is a thing) :thumbup:

Agreed, talk is cheap, if someone makes an outrageous claim its up to them to supply the proof.