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Haven't read the paper, but was surprised by this: Exclusion criteria •The fatigue intervention included one or more other fatigue management approaches (for example cognitive-behavioral therapy, exercise) in addition to energy management education. So there are CBT-and-exercise-free...

The paper isn't open access anymore (at least for me) -- sci-hub link: https://sci-hub.se/10.1177/0308022620904327

Papers referring to the different versions of the review: https://app.dimensions.ai/details/publication/pub.1121431847 Among the four publications refering to the current version, the paper by Andrew Lloyd & C. Sandler discussed here isn't listed yet. Interesting that the review's current...

Since all of us -- PWME as well as health professionals -- have to cope with the situation caused by the pandemic in some way, I was thinking whether S4ME should consult with other patient organizations/ actual stakeholders to ask Hilda Bastian to name and possibly extend the time frame for the...

Amendment of the current version of the review: https://www.cochranelibrary.com/cdsr/doi/10.1002/14651858.CD003200.pub8/information#whatsNew Amended 12 March 2020: Note added from the editorial team at Cochrane Editorial and Methods Department on 12 March 2019, 'A webpage providing...

Not sure whether this has been posted yet: Stakeholder engagement in high-profile reviews pilot https://community.cochrane.org/organizational-info/people/central-executive-team/editorial-methods/projects/stakeholder-engagement-high-profile-reviews-pilot FAQs last updated 10th March 2020...

Thank you to @dave30th for putting the advices from ME Association’s Dr Charles Shepherd on Virology Blog: Among many other useful things, I think it's helpful that CS makes a clear statement about drugs and supplements...

:heart::thumbup: @dave30th , @Gecko and all involved

Dr. Shepherd from the ME Association: @Tom Kindlon

Update from Berlin regarding public transport https://www.tagesspiegel.de/politik/coronavirus-legt-die-hauptstadt-lahm-wie-sich-berlin-in-quarantaene-begibt/25643520.html Translated with DeepL

Update from Berlin regarding closure of daycare centers https://www.tagesspiegel.de/berlin/nach-kritik-des-corona-spezialisten-drosten-berliner-senat-verzichtet-auf-zentrale-not-kitas/25645052.htm Translated with DeepLl

Thanks @Wits_End for posting an excerpt. As much as I appreciate that she reaches out to pwME in this extra stressful situation -- to me the part where she recommends supplements and drugs for all pwME adds uncertainty about the scientific credibility of one of our important advocates. Sorry...

Consequences of the closure of daycare and schools in Berlin: Clinic employs kindergarten teacher for children of employees Translated with DeepL (free version) https://www.tagesspiegel.de/wissen/massnahmen-gegen-die-coronakrise-bundesregierung-bestellt-10-000-beatmungsgeraete/25560996.html

Indeed. Update from Berlin: As the spokeswoman of the senate announced, a concept is also to be developed "by which public transport can be reduced to a minimum, the focus is to be placed on rail transport". According to this, "critical infrastructures, gas, electricity and water supply" are to...

In Berlin: https://www.tagesspiegel.de/berlin/kampf-gegen-das-coronavirus-berliner-schulen-werden-geschlossen/25605226.html

In Germany: https://www.tagesspiegel.de/wissen/coronavirus-breitet-sich-aus-trudeau-begibt-sich-in-freiwillige-quarantaene/25560996.html

https://twitter.com/GeertCrombez/status/1236681752615231488 Thank you @Michiel Tack for highlighting this paper and reaching out to the authors with your excellent tweet series. I won't be able to read the paper at the moment, but your quotes sound very promising. Even more encouraging to me...

Thanks, @Caroline Struthers . Not entirely convinced yet but haven't been able to reply and now got distracted by other things – so I just leave these lines from my drafts folder here: About the Cochrane Work Group's reviews At a quick glance I found only one review that used sick leaves as...

Embodied: The psychology of physical sensation by Christopher Eccleston Oxford University Press 2015 E-book: https://www.oxfordscholarship.com/view/10.1093/acprof:oso/9780198727903.001.0001/acprof-9780198727903 Chapter 6 about fatigue deals with "chronic fatigue" as identical with "Chronic...