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Unfortunately some of the listed papers do not seem to reflect the premise I found so promising: to differentiate clearly between specific types of fatigue when writing about fatigue. Have to read them yet. The abstract and first paragraphs of one of the now added papers however sound quite...

Thanks to all who have contributed to this thread so far. I hope I will be able to come back to some questions soon. In the meantime, just to get a more complete picture, I added the following paper to the OP: The Fatigue Scale for Motor and Cognitive Functions (FSMC): validation of a new...

@Hole Ousia, speaking of transparency and ethics – sink‘s links to the Science Media Centre also deserve attention IMO. * recommendations for a new function at the Science Media Centre (2010) Bithell https://www.s4me.info/forums/health-news-and-research-unrelated-to-me-cfs.29 * Issues reported...

Good to know!

Thanks, @Woolie . I noticed that the trial protocol (2007/BMC) called PACE a "randomised controlled trial" (RCT), but in the title of the Lancet paper ("The Paper" 2011) PACE was downgraded to a "randomised trial". (Links to the papers...

Today's PACE-Trial-For-Beginners-Quiz So, I skimmed the Cochrane thread, bookmarked some threads in Woolie's wonderful library, digged into this fabulous general thread on the PACE trial, and ended up with two surprise questions for today: 1) What does the acronym "PACE" stand for? 2) Why is...

Nor am I. I forgot about the S4ME-Cochrane thread and just noticed that some of my vaguely posed questions already had been addressed there. Parts of my concerns will move to that thread soon. I highly appreciate your endeavor and find these reactions more than sloppy. What I tried to ask...

Thank you for this great document, @Jonathan Edwards I have written my comment in portions and come late to this discussion, not having read all comments. Thus, anticipated apologies for a likely disjointed and maybe redundant reply. In addition to the points highlighted by earlier comments...

I know this part of ME too well. If there's a place you don't have to feel embarrassed, it's here on the forum though. We even have a thread giving comfort about these special ME moments... https://www.s4me.info/threads/me-moments.985/ :hug:

Neurasthenia still exsists as one of the WHO codes, both in the American and in the German version. http://apps.who.int/classifications/icd10/browse/2016/en#/F48.0 A psychiatrist who wants to see depression, will diagnose depression. It's almost impossible to prove absence of depression. Same...

Still being crashed, just dropping by because the name "Hausotter" alerted me. Found him mentioned as a medical expert witness in a legal case about disability pension (his opinion , along with other "expert" opinions, in favor of the insurance company was invalidated). All three medical...

:worried: [Saved this one]

Where? :emoji_crescent_moon:

Just some PEM- brainstorming before going to bed again... 'I have no idea, it looks like a complete mess' Syndrome (NIILLCOMES) ? Postexertional Neuroimmune Symtptoms Exacerbation Syndrome (PENSES)? Postexertional Impairment Exacerbation Syndrome (PIES)? Neurological And Muscular...

https://solvecfs.org/announcing-smcis-new-mecfs-research-program-at-brighams-and-women-hospital/

"The Six Habits of Highly Respectful Physicians" by Michael W. Kahn New York Times, DEC. 1, 2008 Not "News", yet still deserves attention IMO.The author is one of the few psychiatrists who signed Vincent Racaniello's / David Tuller's Open letter to the Lancet*...

I did some homework and added the URLs to the articles as well as some abstracts. I have to admit that I haven't read one of these papers. Why I think they could be relevant for ME, I tried to outline here...

Does anyone know of another comparable NICE guideline in which studies without objective measures were excluded? Furthermore, If anyone could explain the differences/ comparabilities between "level of quality", "validity score"/ "importance" and "evidence", this would be highly appreciated...

The paragraph about the related guidelines also caught my eye. Managed to check only the one for IBS yet, which stresses @Ravn 's concern: https://www.nice.org.uk/guidance/cg61/chapter/1-Recommendations#dietary-and-lifestyle-advice

Is this the same draft which had been posted in the already exsiting thread? https://www.s4me.info/threads/the-draft-scope-for-the-nice-guideline-on-me-cfs-is-now-out-for-consultation-june-2018.4697/ If yes, wouldn't it make sense to move the comments from the former thread to here? [insert...