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  1. MSEsperanza

    Brian Hughes (2018): Psychology in Crisis

    David F Marks: https://davidfmarks.com/2018/09/21/psychology-in-crisis/
  2. MSEsperanza

    UK CMRC 2018 Conference held September 19 & 20 at Bristol

    Would it be worthwhile to investigate the immunological mechanisms linked to interferon-ß induced flu-like symptoms in pwMS then? I think a majority of pwME has flu-like symptoms, at least during PEM phases, and these seem to me to be more specific than "fatigue". [Edited to add: I realize that...
  3. MSEsperanza

    UK CMRC 2018 Conference held September 19 & 20 at Bristol

    I don't know if these are the same interferon injections that people with MS get. PwMS report flu-like symptoms for 12-24h after their interferon injection, but no prolonged fatigue after the flu symptoms are gone.
  4. MSEsperanza

    UK CMRC 2018 Conference held September 19 & 20 at Bristol

    It's fine to see basic research on fatigue. In my opinion, all research on fatigue should specify which type(s) of fatigue it is investigating, though: cognitive, "mental", muscle, motor; fatigue/ fatiguability / fatigue as part of PEM. I think, this should be the premise of comparisons between...
  5. MSEsperanza

    Bristol - New Network - Prof Munafo

    By the way, @Graham , my "like" referred to your self-irony and the hope you expressed concerning your brain cells, but was not meant to endorse your factual statement about the alleged quality of your letter writing or other alleged skills. [I don't think your letter writing skills were...
  6. MSEsperanza

    Bristol - New Network - Prof Munafo

    https://wonkhe.com/blogs/a-manifesto-for-reproducible-science/#comment-25008 :)
  7. MSEsperanza

    Bristol - New Network - Prof Munafo

    I just would like to add some thoughts about the "Reproducibility Network" announced by Munafò, and his "manifesto for reproducible science". I find the University of Bristol's press release announcing the network very strange: It's almost content-free. The only content and names referred to...
  8. MSEsperanza

    Bristol Randomised Trials Collaboration

    Thank you for reading and assessing the Munafó manifesto, @Jonathan Edwards .
  9. MSEsperanza

    Bristol Randomised Trials Collaboration

    I meant Munafo's network. Confounded his network and the BRTC after reading (not properly) @Graham's post: https://www.s4me.info/threads/bristol-new-network-prof-munafo.5802/#post-105367 and seeing Munafo's name also mentioned in this thread. Now I understand that the only connection between...
  10. MSEsperanza

    Bristol Randomised Trials Collaboration

    Seems to be a similiar manifesto. [Edit: It's an artcile by Munafò on the manifesto and the new network] I referred to this one [the manifesto published on Nature (January 2017)]: https://www.nature.com/articles/s41562-016-0021. It's linked on the University of Bristol website...
  11. MSEsperanza

    Bristol Randomised Trials Collaboration

    Apologies, I meant: http://www.bristol.ac.uk/news/2018/september/reproducibility-network-.html
  12. MSEsperanza

    Bristol Randomised Trials Collaboration

    Apologies for just popping in. I am not able to read the manifesto linked on the University of Bristol website announcing a "Reproducibility Network that aims to improve the rigour and reliability of UK-led scientific research". Co-authors are Marcus Munafò and Dorothy Bishop, among others. At...
  13. MSEsperanza

    Bristol - New Network - Prof Munafo

    Thank you for taking action, @Graham . Have you seen the linked manifesto? https://www.nature.com/articles/s41562-016-0021 Only was able to have a first glance at Munafo's manifesto -- it seems to make some reasonable points. So perhaps it could be worth the task to show in which points a...
  14. MSEsperanza

    Professor Michael Sharpe

    includes a very unhelpful quote from CDC's E. Unger: would be good to have the fullt text of her e-mail. more on the series on this thread: https://www.s4me.info/threads/dutch-journalist-asks-about-pwmes-objection-to-cbt-get.5521/ (my last last post on this topic while having a forum break...
  15. MSEsperanza

    Dutch journalist asks about pwME's objection to CBT/GET

    Just one single very short break today from my forum break. https://translate.google.com/translate?hl=de&sl=nl&tl=en&u=https%3A%2F%2Fdemonitor.kro-ncrv.nl%2Fartikelen%2Fhoe-ga-je-als-journalist-om-met-een-controversiele-wetenschappelijke-studie They don't like David Tuller , and give Michael...
  16. MSEsperanza

    Dutch journalist asks about pwME's objection to CBT/GET

    Precisely this. It's predictable how the story will continue: that there were some shortcomings in the PACE trial, but these would not invalidate that psychological factors played a role in ME; there might be biological factors, but these are not understood yet; that some patients improved with...
  17. MSEsperanza

    Dutch journalist asks about pwME's objection to CBT/GET

    So they have exposed now the ME sufferer who "gave the direction to their investigation" - as I expected, really very bad: De Monitor: google translation...
  18. MSEsperanza

    EBM and chronic illnesses

    I once landed on the CauseHealth blog when I had the idea that Trish Greenhalgh ( https://www.phc.ox.ac.uk/team/trish-greenhalgh ) might be an ally in a more sensible and less hubristc understanding of the BPS approach to chronical illnesses and googled her, finding her there...
  19. MSEsperanza

    Dutch journalist asks about pwME's objection to CBT/GET

    Carolyn Wilshire replied to De Monitor on Twitter via @Grigor: Thank you, @Carolyn Wilshire and @Grigor !
  20. MSEsperanza

    Netflix "Afflicted" - ME included

    Julie Rehmeyer:
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