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That was quick: Trial By Error: And Now–No Surprise–CBT for Post-Covid Fatigue by David Tuller https://www.virology.ws/2020/08/08/trial-by-error-and-now-no-surprise-cbt-for-post-covid-fatigue/

Maybe the Tweeter confused something?(*) Recent article on Medium by Windgassen: How to Use Psychology for Better Bowel Function Evidence-based techniques to reduce discomfort and anxiety from IBS and other intestinal distress...

Heather Hogan: The Soft Butch That Couldn't (Or: I Got COVID-19 in March and Never Got Better) | Autostraddle https://www.autostraddle.com/the-soft-butch-that-couldnt-or-i-got-covid-19-in-march-and-never-got-better/ https://twitter.com/theheatherhogan/status/1291028415072567297...

Webinar: RoB 2 Domain 3: Bias due to missing outcome data Presented by Higgins and Sterne. https://training.cochrane.org/rob-2-domain-3-bias-due-missing-outcome-data

From The Guardian: The chairman of the guidance committee, Nick Kosky, said that, while patients expected a clear diagnosis and effective treatment, the complexity of the condition means GPs and specialists can find it very “challenging” to manage. The consultant psychiatrist at Dorset...

And there it is: https://www.s4me.info/threads/genetic-risk-factors-of-me-cfs-a-critical-review-joshua-j-dibble-simon-j-mcgrath-chris-p-ponting-2020.16173/

It's amazing what you've achieved already with voluntary work only, in particular the splendid website. Again, thanks to all involved. All my suggestions are for the time when your team will have the resources to consider them. Another one of that category, for the website: In the "About Us"...

Couldn't find a thread on the concept of fatigue in chronic illness and assessing fatigue in general, so leave this here: Larson R. D. (2013). Psychometric properties of the modified fatigue impact scale. International journal of MS care, 15(1), 15–20. https://doi.org/10.7224/1537-2073.2012-019...

Anyhow, this might be part of the problem: (from Manjaly Z et al, Pathophysiological and cognitive mechanisms of fatigue in multiple sclerosis -- the paper @Woolie looked at ).

Thank you @Woolie for digging into one of the most recent papers. I don't know whether I will be able to write a bit more why I updated the list but I'm afraid that there are more reasons to be annoyed. As mentioned above, I only skimmed the papers, so not able to word clearly or to...

Thank you for the update, @Andy . Some suggestions: It would be extremely helpful for me to have a (very) short text on the DecodeME website that could be copied and used as template for an e-mail asking friends and family to circulate the call for getting involved in the study / declaring...

The UK Sepsis Trust: Why do I still feel breathless even though my oxygen levels are normal? (Youtube video) https://www.youtube.com/watch?v=lZ0cC7IZBr0&feature=youtu.be Youtube transcript:

A large German newspaper dedicates page 3 to a personal story about a friend with ME. Potential association of Covid 19 sequelae with ME only marginally mentioned in the text, but prominently in the caption: First it was a scratchy throat. Soon Nora could barely stand up, could barely speak...

Hilda Bastian: Steps to reduce bias in systematic review protocols (The Publication Plan) https://thepublicationplan.com/2020/07/22/steps-to-reduce-bias-in-systematic-review-protocols/

I'm not optimistic. It seems that scientific reasoning, facts and evidence don't matter much when it comes to the 'successful' implementing of BPS medicine, at least in a couple of the wealthiest European countries. See...

From the "Recovery Norway" website: Rona Moss-Morris, Professor of Psychology as Applied to Medicine, Head of Health Psychology, King’s College, London, UK: “We can learn a lot from these stories about recovery from CFS – look forward to more”. Vegard Bruun Bratholm Wyller, Professor...

https://twitter.com/maxwhd/status/1285910603505311744 A slide from COFFI popped up in the video (obviously inserted afterwards to challenge the speaker's claims) and reminded me of this project.

...and actually is expanding in medical education in a couple of European countries. From the German language wikpedia page on "Biopsychosocial medicine" : Doctor training "In 2011 Josef W. Egger was appointed to the first chair for Biopsychosocial Medicine in the German-speaking world at the...

Is there any account of what this company actually tried to do and did? Only found a source saying the company's business activity was "Human health and social work activities" and existed from 2002-2010 (https://www.companieslondon.com/uk/04364122/one-health).

https://theconversation.com/coronavirus-why-are-some-people-experiencing-long-term-fatigue-141405?utm_source=twitter&utm_medium=bylinetwitterbutton Interesting how this piece by Frances Williams seems to differ from the one by Katarina Zimmer in The Scientist that quotes Williams. In 'The...