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  1. MSEsperanza

    Cochrane Survey: Provide feedback on Cochrane’s Policy on Conflicts of Interest

    Only skimmed all this and first thought the Bero reference could still be a misleading one, only quoted by the autors because the paper's title fitted. Still not sure about this, not able to read it all. Didn't read the following either, but saw the diagram and thought it could be helpful to...
  2. MSEsperanza

    Trial By Error: Professor Jonathan Edwards’ View of ME (includes discussion of exercise and long-term harm)

    I hope it's OK to post here again a preliminary list of achievements in ME research from another thread, written by @Jonathan Edwardsin response to @DokaGirl : 1. Epidemiological studies have shown that there is a consistent cohort of people, independent of geography, who suffer from a well...
  3. MSEsperanza

    Cochrane Survey: Provide feedback on Cochrane’s Policy on Conflicts of Interest

    The reference given in the last of the above quoted paragraphs is: Bero LA, Grundy Q. Why having a (non-financial) interest Is not a conflict of interest. PLoS Biol. 2016;14(12):e2001221, https://journals.plos.org/plosbiology/article?id=10.1371/journal.pbio.2001221
  4. MSEsperanza

    Cochrane Survey: Provide feedback on Cochrane’s Policy on Conflicts of Interest

    Karla Soares-Weiser: Cochrane announces a new, more rigorous “conflict of interest” policy The BMJ Opinion, 03.12.2019...
  5. MSEsperanza

    Brian Hughes (2018): Psychology in Crisis

    From the review: "Non-equivalent control groups, lack of blinding and adjustment of assessment criteria revealed that the effectiveness of the intervention for treating Chronic Fatigue Syndrome was exaggerated" Unfortunately that seems to be the case for the review. In Brian Hughes' book the...
  6. MSEsperanza

    Open Cervicocranial dysfunction, neuroinflammation and infection in ME/CFS compared to healthy subjects, Bragée & Bertilson [MEPRO study]

    Both the opening post and the "slightly different perspective" posted by @JenB seem a bit confusing to me. I don't understand Swedish but from having a look at the document it seems this correction is right and Bragée isn't the principal investigator, but Bo Bertilson (without ("h) @Anna H...
  7. MSEsperanza

    MEpedia articles on neck surgery for ME (CCI, AAI, chiari, stenosis) and intracranial hypertension

    It seems a number of references have been added in an again misleading manner, in particular on 'Outcomes, risks & complications' from fusion surgery. (Edited to add: on the 'Craniocervical instability" page.)
  8. MSEsperanza

    Chris Armstrong - Melbourne ME/CFS researcher, research updates and general chat

    For those who prefer reading to listening: I was happy to read on the podcast webiste:
  9. MSEsperanza

    Brian Hughes (2018): Psychology in Crisis

    Stewart, L.G. (2019). Psychology in Crisis.[Review of the book]. International Journal of Educational Psychology, 8(1),105-107, http://dx.doi.org/10.17583/ijep.2019.4065 http://hipatiapress.com/hpjournals/index.php/ijep/article/view/4065/Stewart
  10. MSEsperanza

    CDC Treatment Evidence Review - consultation period

    From the article that includes the interview (from 2016): Also, from the interview: (My bolding added). Chou's claims quoted in this and the previous post seem to me to be overgeneralizing (at least)? Apologies for repeated editing for clarity.
  11. MSEsperanza

    Esther Crawley

    This one appears particularly strange to me: Children’s experiences of living with CFS/ME: a systematic review and synthesis of qualitative studies https://www.crd.york.ac.uk/PROSPERO/display_record.php?RecordID=9896
  12. MSEsperanza

    Esther Crawley

    Found this in my drafts folder and thought it didn't warrant an own thread so just leave it here. (From July, didn't check for updates) I did some search on PROSPERO (International Prospective Register of Systematic Reviews) https://en.wikipedia.org/wiki/PROSPERO There seem to be quite a...
  13. MSEsperanza

    CD24 expression and B cell maturation shows a novel link with energy metabolism: potential implications for patients with ME/CFS, 2018, Mensah et al

    https://twitter.com/TomKindlon/status/1187374034905899008 https://discovery.ucl.ac.uk/id/eprint/10080812/
  14. MSEsperanza

    ME Association announces three new research grants, Oct 2019

    I agree with most comments that this is good news. (Edited to add: ) Thank you everyone involved. My only criticism goes to the Birmingham Mail's picture editors: https://www.birminghammail.co.uk/news/health/cause-worlds-cruelest-illness-could-17130013 I think that MEA include a range of...
  15. MSEsperanza

    David Tuller - Discusses M.E./C.F.S and the UK Medical Establishment. 19 Oct 2019

    Trial By Error: Bristol’s Report Due Soon; Slides from My Oxford Talk by David Tuller, DrPH
  16. MSEsperanza

    Trial By Error: Bristol’s Report Due Soon; Slides from My Oxford Talk

    By David Tuller, DrPH http://www.virology.ws/2019/10/21/trial-by-error-bristols-report-due-soon-slides-from-my-oxford-talk/ LP Study talk
  17. MSEsperanza

    Why the Cochrane review on exercise therapy for chronic fatigue syndrome is still misleading

    How about just adding to the sentence... "Overall, it seems that the Cochrane logo is hindering a critical assessment of the evidence" ...something like: "Since the amended review leaves the main problems unresolved, this misleading impact will likely continue." ?
  18. MSEsperanza

    Why the Cochrane review on exercise therapy for chronic fatigue syndrome is still misleading

    I reiterate the thanks. Or delete a part of that second sentence and merge it with the first? "On Wednesday, October 2, Cochrane published a long-awaited amendment to its review of exercise therapy for chronic fatigue syndrome (CFS). [1] Several changes have been made to the text following a...
  19. MSEsperanza

    Closed UK: Bath: Understanding how people living with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome utilise data from emerging sensing technologies.

    From the participant information sheet linked in the opening post: I am skeptical as to whether this 'Neurosky MindWave' and the apps are actually able to measure all those things. Also, I find it strange to describe "how calm or clear-minded" someone is as 'Meditation'. Further quotes from...
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