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  1. John Mac

    Crowdfunding for David Tuller during April 2025

    $46,046 raised, 67% of total. 3 days left.
  2. John Mac

    Review Reframing Myalgic Encephalomyelitis/Chronic Fatigue ... 2025, Friedman

    Preprints.org preprints202504.2355.v1
  3. John Mac

    Protocol Impact of Tai Chi Therapy on Fatigue and Cognitive Function in Individuals With Chronic Fatigue Syndrome: Protocol for a Pilot... 2025 Wang et al

    When I first got ill in 2009 one of the first things I tried was Tai Chi (bought a DVD) and all it did was turn my legs to jelly.
  4. John Mac

    UK: Disability benefits (UC, ESA and PIP) - news and updates 2024 and 2025

    MOST AT RISK PIP HEALTH CONDITIONS REVEALED A Freedom of Information request by Benefits and Work has revealed the conditions most likely to be hit by the PIP cuts The figures, show that they are overwhelmingly aimed at older, but still working age, claimants with physical health conditions...
  5. John Mac

    Open Norway: Study of Daratumumab Injections for Patients with Moderate to Severe Chronic Fatigue Syndrome, 2025

    There is this on the study page: Trial ID: 2024-512500-19-00 Trial Phase: Therapeutic exploratory (Phase II)
  6. John Mac

    Closed 2022 Pilot study in Norway - Daratumumab in ME/CFS

    Follow up study? https://www.s4me.info/threads/norway-study-of-daratumumab-injections-for-patients-with-moderate-to-severe-chronic-fatigue-syndrome-2025.43715/
  7. John Mac

    Open Norway: Study of Daratumumab Injections for Patients with Moderate to Severe Chronic Fatigue Syndrome, 2025

    Daratumumab Pilot Study discussed here: https://www.s4me.info/threads/pilot-study-in-norway-daratumumab-in-me-cfs.28098/
  8. John Mac

    Open Norway: Study of Daratumumab Injections for Patients with Moderate to Severe Chronic Fatigue Syndrome, 2025

    What is this study about? This clinical trial is focused on studying the effects of a medication called daratumumab on patients with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS). ME/CFS is a condition characterized by extreme fatigue that doesn’t improve with rest and can worsen...
  9. John Mac

    BBC: Plan for GPs to keep millions out of hospital

    https://www.bbc.co.uk/news/articles/cgrgqqjdlg4o A scheme to help GPs provide care and advice to patients without them joining long NHS hospital waiting lists is being expanded in England, the government has said. GPs will work more closely with specialists to access expert advice quickly for...
  10. John Mac

    UK: Disability benefits (UC, ESA and PIP) - news and updates 2024 and 2025

    So basing all this on a forecast for 4 years from now. Every time economic figures are released, like February's UK GDP growth figure, the headlines read "Unexpected higher/lower growth in the economy". From month to month they can't get predictions right so how on earth can they predict what...
  11. John Mac

    Housing project for severely ME/CFS sufferers in Neunkirchen-Seelscheid, Germany: Interested parties wanted!

    A housing project specifically for people with severe ME/CFS, including 24-hour assistance, is being planned in Neunkirchen-Seelscheid . A developer, in collaboration with Sozialhummel, plans to build barrier-free apartments in 53819 Neunkirchen-Seelscheid that are optimally tailored to the...
  12. John Mac

    UK: Disability benefits (UC, ESA and PIP) - news and updates 2024 and 2025

    https://www.bbc.co.uk/news/articles/c705nxgqvv8o Jobs fears as disability scheme owes businesses thousands Businesses employing disabled people say they are owed hundreds of thousands of pounds by the government, and fear they may have to let staff go. Under the Access to Work scheme...
  13. John Mac

    UK: Disability benefits (UC, ESA and PIP) - news and updates 2024 and 2025

    Just in case anyone is transferring from ESA to UC and is worried about my previous posts mentioning document requests (bank statements etc) from the DWP it appears now it is just to check that I didn't have more than the £6,000 allowed in my bank account. I had a phone interview in which I had...
  14. John Mac

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    You're forgetting you also have to fabricate studies to prove your belief is right.
  15. John Mac

    Pioneering trial could 'switch off' arthritis

    https://www.bbc.co.uk/news/articles/clynp17k23po Patients are taking part in a trial that scientists hope could ultimately lead to a cure for rheumatoid arthritis. The AuToDeCRA-2, external study seeks to prove it is possible to train white blood cell commanders - dubbed the "generals" of the...
  16. John Mac

    Review Predisposing and Precipitating Factors in Epstein–Barr Virus-Caused ME/CFS, 2025, Leonard Jason

    Full title: Predisposing and Precipitating Factors in Epstein–Barr Virus-Caused Myalgic Encephalomyelitis/Chronic Fatigue Syndrome https://www.mdpi.com/2076-2607/13/4/702 Abstract Long COVID following SARS-CoV-2 and Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) following...
  17. John Mac

    UK: Disability benefits (UC, ESA and PIP) - news and updates 2024 and 2025

    I think he remembered a quote about an 80 year old but couldn't remember the rest so came up with the figure 10 three times. 10 days, 10%, 10 years.
  18. John Mac

    UK: Disability benefits (UC, ESA and PIP) - news and updates 2024 and 2025

    On the BBC yesterday was the following article Too many are being signed off sick, GP tells BBC published at 09:49 17 March Professor Sir Sam Everington is on the council of the Royal College of General Practitioners and has been a GP in east London since 1989 – he spoke to BBC Radio 4's Today...
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