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https://meassociation.org.uk/2025/05/preprint-a-proposed-mechanism-for-me-cfs-invoking-macrophage-and-interferon-gamma/?utm_source=rss&utm_medium=rss&utm_campaign=preprint-a-proposed-mechanism-for-me-cfs-invoking-macrophage-and-interferon-gamma MEA Comment Thanks to Professors Jonathan Edwards...

Full title: The Effect on Quality of Life of Therapeutic Plasmapheresis and Intravenous Immunoglobulins on a Population of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Patients with Elevated β-Adrenergic and M3-Muscarinic Receptor Antibodies—A Pilot Study...

https://bibliotheek.ehb.be:2370/content/389/bmj.r977/rr-23 Rapid Response: ME/CFS care must be grounded in lived experience and biomedical research Dear Editor I read with attention the opinion piece by Miller and colleagues “Patients with severe ME/CFS need hope and expert multidisyciplinary...

https://www.biorxiv.org/content/10.1101/2025.05.25.656018v1 Abstract Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) and Long COVID are chronic debilitating post-infectious illnesses that collectively affect up to 470 million individuals. Unlike illnesses of comparable scale, there...

Somebody with the initials SW?

If they had included healthy controls it would have been interesting to see if the blood clots also occured in them.

Abstract Background/Objectives: Orthostatic intolerance is prevalent in patients with myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) and is caused by an abnormal reduction in cerebral blood flow (CBF). In healthy controls (HCs), CBF is regulated complexly, and cardiac output (CO) is...

https://www.icontact-archive.com/archive?c=144836&f=2941&s=6745&m=1193534&t=9e9c98a7d9387eb5c584b7e81a15d03a3040ca2700682dadb514b7c01a8d57f0 DWP BURIED DAMNING REPORTS The DWP very quietly published a series of damning disability benefits related reports at 4pm on Friday 2 May, on the eve of a...

https://solvecfs.org/exploring-current-me-cfs-and-long-covid-clinical-trials-on-national-clinical-trials-day/ May 20 is National Clinical Trials Day! When conducting clinical trials, researchers test how interventions (like behavioral changes, drugs, or medical devices) affect people. Usually...

https://www.mdpi.com/2227-9059/13/5/1200 Abstract Background/Objectives: Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a multifaceted and diverse disorder with an ambiguous etiology. Recent evidence indicates that immune system impairment and inflammatory mechanisms are pivotal...

https://meassociation.org.uk/2025/05/new-updated-booklet-what-you-need-to-know-about-me-cfs/#:~:text=underlying disease process.-,ME/CFS is a complex, chronic medical condition affecting multiple,kind of effort or activity. New updated booklet: What you need to know about ME/CFS May 15, 2025...

That's about all the effort needed to work in BPS

Merged thread Vacancy: Assistant Psychologist for the BPS ME/CFS https://www.bps.org.uk/assistant-psychologist-bps-mecfs Good Practice guidelines for working with people with Long Covid Would you like to join a team of psychologists and experts by experience to help codevelop good practice...

https://www.bmj.com/content/389/bmj.r977 Opinion piece Reframing beliefs about illness, along with specialist rehabilitation, can help recovery in people with severe ME/CFS, write Alastair Miller, Fiona Symington, Paul Garner, and Maria Pedersen Myalgic encephalomyelitis/chronic fatigue...

The BPS people would have had a field day with these people.

Only people with ME will understand that.

I always thought that talking therapies were a way for the NHS to save money by replacing actual care with a cheaper alternative.

But where is the evidence that occupational therapy can prevent the negative impacts of ME/CFS?

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