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  1. John Mac

    Trial Report Development and validation of a prognostic model for assessing long COVID risk following Omicron wave, Chen et al, 2024

    Full Title: Development and validation of a prognostic model for assessing long COVID risk following Omicron wave—a large population-based cohort study Abstract Background Long coronavirus disease (COVID) after COVID-19 infection is continuously threatening the health of people all over the...
  2. John Mac

    USA: Senate NIH appropriations hearing May 23, 2024

    NIH documents show how $1.6 billion long Covid initiative has failed so far to meet its goals More than three years ago, the National Institutes of Health launched a $1 billion-plus initiative to find the root causes and potential treatments for long Covid, the chronic disease that has quickly...
  3. John Mac

    News from the USA, United States of America

    Thanks @Dolphin it came up in my last 24 hours Google search for some reason
  4. John Mac

    Preprint The German Multicenter Registry for ME/CFS MECFS-R, 2024, Hieber, Scheibenbogen, Behrends et al.

    Now published https://www.mdpi.com/2077-0383/13/11/3168
  5. John Mac

    UK:NHS: Feel Good Tennis for Long Covid

    :banghead: https://www.thecentresurgery.co.uk/blog/2024/05/28/feel-good-tennis-for-long-covid/
  6. John Mac

    News from Scotland

    https://www.cso.scot.nhs.uk/toolkit-now-available-to-help-me-cfs-researchers/ Toolkit now available to help ME/CFS Researchers Posted by:Julie Simpson - Posted on:May 23, 2024 Following the establishment of a UK Clinical Research Collaborative Research Working Group on ME/CFS, government...
  7. John Mac

    BBC: Long Covid course [LP] is ‘exploiting people’, says ex-GB rower, 2024, article and radio program

    https://www.dailymail.co.uk/femail/article-13442617/Long-Covid-BBC-secret-recordings-rower-Team-GB-Oonagh-Cousins.html Health company is accused of 'exploiting' Long Covid sufferers with £1k Zoom course that tells them to 'change your thoughts' and 'walk around symbols' - as Ex Team GB rower...
  8. John Mac

    UK Government ME/CFS Delivery Plan consultation

    21 May 2024 Added a summary of responses to the consultation. 4 September 2023 First published. Is there something new in this? HTML version https://www.gov.uk/government/consultations/improving-the-experiences-of-people-with-mecfs-interim-delivery-plan#full-publication-update-history East...
  9. John Mac

    NHS England - E-learning Modules on ME/CFS

    ME Association: NHS England Launches New E-learning Module on ME/CFS! Forward-ME were offered two places at last week's British Association of Clinicians in ME/CFS (BACME) conference and Russell Fleming from the ME Association was able to attend. At the conference, and as part of the Delivery...
  10. John Mac

    World Health Organization: Webinars: Post-Exertional Malaise (PEM) and Long Covid, 22 – 24 May 2024

    World Health Organization 22 – 24 May 2024 The Clinical Management and Operations Unit, WHO Health Emergencies Program supports a webinar program on post COVID-19 condition (also referred to as Long Covid). The series aims to build the capacity of clinicians globally to identify, diagnose, and...
  11. John Mac

    The micro-clot finding in Long Covid — implications for the possible aetiology of ME/CFS

    https://undark.org/2024/05/20/bad-blood-microclots-long-covid/ Bad Blood? The Uncertainty Around Microclots and Long Covid Scientists are debating whether microscopic blood clots are responsible for the wide range of symptoms in long Covid.
  12. John Mac

    The itaconate shunt hypothesis

    Merged thread Itaconate Trap Study STUDY AIM This project aims to look at metabolic traps in central carbon metabolism that lead to observed altered energy production pathways in ME/CFS. LEAD INVESTIGATORS Christopher Armstrong, PhD Rob Phair, PhD UPDATES AND POTENTIAL Constructed the...
  13. John Mac

    UniteToFight2024 Long Covid and ME/CFS conference, 15th and 16th May 2024

    From an email: David Tuller's Trial by Error Project Update: "How Long Covid Researcher Are Repeating the ME/CFS Playbook" That's the title of my talk at the UniteToFight online gathering at 5 PM Thursday in Central European Time--that's 8 AM Thursday morning in San Francisco (where I'll be)...
  14. John Mac

    Protocol Trial registration: Low-dose Naltrexone for Post-COVID Fatigue Syndrome, 2022, Luis Nacul, British Columbia Women's Hospital & Health Centre

    Merged thread Future trial on naltrexone Abstract Introduction A significant proportion of individuals suffering from post COVID-19 condition (PCC, also known as long COVID) can present with persistent, disabling fatigue similar to myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS)...
  15. John Mac

    United Kingdom News (including UK wide, England, NI and Wales - see separate thread for news from Scotland)

    How Long Covid risks going the same way as M.E. https://www.telegraph.co.uk/health-fitness/conditions/cold-flu/how-long-covid-risks-going-the-same-way-as-me/ The term long Covid is familiar to all of us, yet the illness itself remains something of a medical mystery. “Long Covid is going the...
  16. John Mac

    Thesis Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS): Clinical trials, medical treatment and pathomechanisms, 2024, Rekeland

    There was a delayed response in the original Rituximab trial. "The researchers say that following two doses of the drug being given in the first two weeks of the trial, there was a lag of three to eight months before symptoms began to subside. They say this delayed response tallies with the...
  17. John Mac

    Blood transcriptomics reveal persistent SARS-CoV-2 RNA and candidate biomarkers in Long COVID patients, 2024, Menezes et al.

    Now published https://www.thelancet.com/journals/lanmic/article/PIIS2666-5247(24)00055-7/fulltext
  18. John Mac

    Trial Report Long-Term Taste and Smell Outcomes After COVID-19, Sharetts et al, 2024

    https://jamanetwork.com/journals/jamanetworkopen/fullarticle/2817869 Key Points Question What is the association of COVID-19 with long-term outcomes in taste and smell function as measured by state-of-the-art psychophysical tests? Findings In this cross-sectional study of 340 individuals...
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