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  1. John Mac

    Pilot study of a parent-based intervention for functional somatic symptoms in children 2024 Etkin et al

    How is it possible to be "more supportive" and at the same time "reduce accommodations"?
  2. John Mac

    Crowdfunding for David Tuller starts October 1st 2024

    $59,329 raised, 88% of target, 507 donors. 1 day & 21 hours left. https://crowdfund.berkeley.edu/project/43450
  3. John Mac

    Crowdfunding for David Tuller starts October 1st 2024

    $56,461 raised, 84% of target, 464 donors. 2 days to go.
  4. John Mac

    Crowdfunding for David Tuller starts October 1st 2024

    Done $53,616 raised 80% of target, 412 donors.
  5. John Mac

    George Monbiot on ME/CFS, PACE, BPS and Long Covid

    I think I'd prefer to take my chances with the Japanese soldier, at least there is a chance of convincing him to change his flawed view of reality.
  6. John Mac

    George Monbiot on ME/CFS, PACE, BPS and Long Covid

    Wow vastly experienced 3 months part-time!
  7. John Mac

    Review The effect of graded exercise therapy on fatigue in people with serious respiratory illness: a systematic review, 2024, Angela T. Burge et al

    Also by the same author, the title of which hints at the authors attitude to sick people. Get a move on: physical (in)activity in people with obstructive airway disease https://openres.ersjournals.com/content/10/4/00305-2024.article-info
  8. John Mac

    UK: Disability benefits (UC, ESA and PIP) - news and updates 2024 and 2025

    It wasn't difficult at all, though my circumstances were fairly straightforward. I applied online to setup a UC account and that was it, no medical re-assessment or financial tests though I had to attend an appointment at my local Jobcentre after being accepted online which was normal for all...
  9. John Mac

    UK: Disability benefits (UC, ESA and PIP) - news and updates 2024 and 2025

    I voluntarily migrated over to UC from ESA last year after finding out I would be £100 a month better off after checking on the benefit calculator website. https://www.gov.uk/benefits-calculators I was receiving no benefit other than ESA (support group) so if your are in receipt of any other...
  10. John Mac

    UK: Disability benefits (UC, ESA and PIP) - news and updates 2024 and 2025

    DWP confirms “small numbers” of ESA managed migrations from September Published: 07 October 2024 The DWP has confirmed that “small numbers” of employment and support allowance claimants have now received universal credit (UC) managed migration notices. The news was included in the latest...
  11. John Mac

    Miranda Hart - British comedian

    https://www.bbc.co.uk/news/articles/c8705wjg2zyo Comedian Miranda Hart has revealed her struggle with chronic fatigue after being diagnosed with Lyme disease. In her new book, I Haven’t Been Entirely Honest With You, Hart provides a frank account of the past 10 years, including the challenges...
  12. John Mac

    Research news from Bhupesh Prusty

    A few years ago he tweeted the results of an experiment the he had carried out earlier the same day announcing that he had found two factors in the blood that were likely causing ME. Nothing came of it.
  13. John Mac

    UK: Disability benefits (UC, ESA and PIP) - news and updates 2024 and 2025

    https://www.icontact-archive.com/archive?c=144836&f=2941&s=6745&m=1189974&t=9e9c98a7d9387eb5c584b7e81a15d03a3040ca2700682dadb514b7c01a8d57f0 Benefits and Work newsletter In this edition, we reveal that Labour is adopting the hated Tory bank surveillance and DWP police powers plans. We learn...
  14. John Mac

    UK: Disability benefits (UC, ESA and PIP) - news and updates 2024 and 2025

    https://www.gov.uk/government/statistics/esa-outcomes-of-work-capability-assessments-including-mandatory-reconsiderations-and-appeals-september-2024/esa-work-capability-assessments-mandatory-reconsiderations-and-appeals-september-2024 ESA: Work Capability Assessments, Mandatory Reconsiderations...
  15. John Mac

    UK: Disability benefits (UC, ESA and PIP) - news and updates 2024 and 2025

    https://www.icontact-archive.com/archive?c=144836&f=2941&s=6745&m=1189801&t=9e9c98a7d9387eb5c584b7e81a15d03a3040ca2700682dadb514b7c01a8d57f0 Newsletter from "Benefits & Work" NEW PIP AND WCA ASSESSMENT COMPANIES A new system for work capability assessments (WCA) and personal independence...
  16. John Mac

    VuMedi: Dr Shepherd talks about the overlaps between Long Covid and ME/CFS in a video aimed at healthcare professionals

    https://meassociation.org.uk/2024/08/vumedi-dr-shepherd-talks-about-the-overlaps-between-long-covid-and-me-cfs-in-a-video-aimed-at-healthcare-professionals/ VuMedi (where the video features) describes the platform as “a video education platform for doctors. Over 450,000 doctors use VuMedi to...
  17. John Mac

    Australia: News from Griffith University, National Centre for Neuroimmunology and Emerging Diseases (NCNED)

    Moved post Could a Widespread Ion Channelopathy be Causing ME/CFS, Long COVID and Gulf War Illness Article by Cort Johnson on the Griffith University findings. https://www.healthrising.org/blog/2024/08/20/channelopathy-chronic-fatigue-long-covid-gulf-war-illness/ "No group better illuminates...
  18. John Mac

    Assistant Psychologist – BLIS Long Covid | Berkshire Healthcare NHS Foundation Trust

    You will be joining adevelopingservice which issensitiveto both the needs of thepatients andthe emerging research of therelatively newdiagnosisof Long Covid.The post holder will deliver a range of holistic individual and group interventions under the supervision of a qualified psychologist and...
  19. John Mac

    Trial Report Herpesvirus-6 reactivation to autoimmune reactivity against tight junctions and neuronal antigens, inflammation, depression, CFS due to LC, 2024, Maes

    Full title: From human herpes virus-6 reactivation to autoimmune reactivity against tight junctions and neuronal antigens, to inflammation, depression, and chronic fatigue syndrome due to Long COVID Abstract Inflammation and autoimmune responses contribute to the pathophysiology of Long COVID...
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