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  1. Kalliope

    News from Scandinavia

    Fluge/Mella and their ME research team at Haukeland University Hospital have for several years in a row received an earmarked allocation in the government budget. Last year the post was removed and re-entered after lots of protest. The post is missing this year as well and the deputy head of the...
  2. Kalliope

    Norway: Blog post about diagnostic criteria, Stubhaug, Lightning Process, Recovery Norge and more

    By not distinguishing between ME from other types of fatigue. I'm astonished myself how long he's been able to carry this on for.. His methods are further discussed here...
  3. Kalliope

    Norway - CFS/ME Research Conference Nov. 25th-26th 2019

    I thought that was interesting too, but don't know any details from the planning of this conference. The contact person from NIPH is Centre Director Per Magnus. He's been keen for several years on doing a study on Lightning Process as ME treatment but has also kept a dialogue with the...
  4. Kalliope

    Norway - CFS/ME Research Conference Nov. 25th-26th 2019

    Yes it does, @andypants :-) Here's last year's program. For those who don't remember, the Lightning Process coach Live Landmark got invited as speaker, so the Norwegian ME Association had no choice but to withdraw as co organiser...
  5. Kalliope

    Norway: Blog post about diagnostic criteria, Stubhaug, Lightning Process, Recovery Norge and more

    ME-patient and activist Sissel Sunde has written an informative blog post where she tells her own story and provides an overview of the ME debate in Norway. Among other things she tells about participating at the seminar of psychiatrist Bjarte Stubhaug, who claims he can treat 8 out of 10...
  6. Kalliope

    Norway - CFS/ME Research Conference Nov. 25th-26th 2019

    The Norwegian Institute of Public Health, the Norwegian ME Association and Oslo University Hospital are organising a research conference about CFS/ME in Oslo 25th-26th November. Program Dr. Joseph J. Breen, National Institute of Health, USA: NIH Intramural Study on ME/CFS Dr. Carmen...
  7. Kalliope

    David Tuller - Discusses M.E./C.F.S and the UK Medical Establishment. 19 Oct 2019

    I'd love to have that clip as a GIF :laugh:
  8. Kalliope

    News from Scandinavia

    Distressing Facebook post from MillionsMissing Finland ***** PLEASE SHARE ***** _ Finnish children with M.E. have increasingly started to be taken into care by the state against their own and parents will. _ Yesterday Iltalehti -newspaper reported on a 15-year old M.E. patient, Petteri, who...
  9. Kalliope

    The influence of the Cochrane review on GET

    Thanks again for your enormous work on this. I haven't been able to read everything yet, but looking forward to. In Norway the national guidelines for CFS/ME from the Directorate of Health is from 2014. So before the Cochrane review from 2015. The guidelines mention GET and refer to among...
  10. Kalliope

    Sweden - RME news

    Here is link to the filming of the conference starting tomorrow at 13.00 local time.
  11. Kalliope

    Denmark: Analysis and comments to Karina Hansen's journal from when she was sectioned at Hammel Neurocenter

    Stig Gerdes is appealing and taking his case to the High Court. The lawyer thinks it might take a year before it starts. The local newspaper Fredericia Dagblad has a short article about the appeal: Stig Gerdes reduced Karina Hansen's medicine without consulting her guardian, a treatment which...
  12. Kalliope

    Cochrane Review: 'Exercise therapy for chronic fatigue syndrome', Larun et al. - New version October 2019 and new date December 2024

    #MEAction: Cochrane Analysis: What's Here, What's Missing, Conclusions by Jamie S To believe that increased exercise is an effective therapy worth testing in a clinical trial, researchers and clinicians must believe that patients’ symptoms are either incorrect, imagined, or immaterial. This de...
  13. Kalliope

    The Research Council of Norway: User involvement gave users real influence

    An interesting letter-to-the-editor in the newspaper Dagsavisen by a professor, an associate professor and a dean from Oslo Metropolitan University. The authors discuss who should make decision on research allocations and point to the fact that a lot of health research is basically useless...
  14. Kalliope

    New Scientist: Chronic Lyme disease may be a misdiagnosis of chronic fatigue syndrome

    The "press conference" was organised by Science Media Centre SMC: Lyme Disease in the UK Journalists came to the SMC to hear the scientists and clinicians discuss aspects such as: How do we estimate cases of Lyme disease and are current estimates likely to be too low? Are case of Lyme disease...
  15. Kalliope

    New Scientist: Chronic Lyme disease may be a misdiagnosis of chronic fatigue syndrome

    Chronic Lyme disease may be a misdiagnosis of chronic fatigue syndrome CFS, also sometimes known as myalgic encephalomyelitis, is itself a controversial condition: some think it involves immune system problems, perhaps triggered by an infection, while others believe psychological factors may...
  16. Kalliope

    Sweden - RME news

    Merged thread ME-conferences Oct. 16th-17th 2019 I think these conferences have been mentioned in the "News from Scandinavia"-thread, but as they will be live-streamed and one of the lectures is in English by Jarred Younger (via video), I'm making a separate thread so that the conferences can...
  17. Kalliope

    News from Scandinavia

    I'm not sure if this is the same thing, or something else, but Per Fink recently said in an interview that he had hired help from a communication agency and that his staff has received media training. He had also hired a combined journalist and doctor to engage in dialogue with the most critical...
  18. Kalliope

    ME debate in Danish Parliament March 12 (2019)

    The Journal of the Danish Medical Association has an article today about Director General of the Danish Health Authority, Søren Brostrøm, giving a speech to FAS, the Danish Association of Medical Specialists. Brostrøm has been a fierce supporter of the PACE trial and of ME being defined as a...
  19. Kalliope

    BMJ opinion: Medical education - the tyranny of guidelines and the single best answer

    Liyang Pan: Medical education - the tyranny of guidelines and the single best answer Oct. 1st. Simplification has a place in communicating medical knowledge. It is necessary to accommodate breadth, and groundwork should be laid before detail is learnt. The practise of medicine is impossibly...
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