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@JaimeS did an excellent job tweeting from the Symposium, so while we are waiting for the videos to be uploaded to YouTube, going through her recent tweets will give some of the highlights of the lectures https://twitter.com/exceedhergrasp1/with_replies?lang=en #MECFS2018 was used as hashtag...

Yes. I think it can be an important part of self care to distance oneself from recommendations and treatment advice from other people who are not health care professionals. But the pressure is very high and turning down these advice might lead to patient blaming; well you obviously don't want to...

Thank you @edawg81 and welcome to the forum!

Ashley Haugen mentioned an email address for those who wants to submit a question. I can't find it on their website, but perhaps someone caught it and can share?

Linda Tannenbaum says 300 are attending and thousands are following through live stream.

I am so sorry to hear this and I've heard so many similar stories. It is heartbreaking. :cry: I am sure the parents intentions were the very best and I can't imagine how they must be feeling now. If it was Lightning Process your friend had, she and her family have no rights now neither as...

Good question! I thought there was relevant and useful info here. Nice to see Unrest mentioned as source of information. I'm sceptical on how they present correct management of ME as a road to recovery. It might lead to improvement, but it's not given, so might create expectations the patients...

Prof. Wyller as principal investigator with his BPS approach is usually a red flag. He is currently doing a trial on music therapy as treatment for CFS and wants to research Lightning Process as treatment as well. But he is highly respected within the establishment and has a lot of influence...

I was so happy when I learned you are coming to Oslo. Will try to be there. It will be cold and dark, but I hope how highly appreciated you are among ME patients in Norway and how very welcome you will be will compensate a bit :)

Larun is at the Norwegian Knowledge Centre for the Health Services, which quite recently became part of the Norwegian Institute of Public Health (it wasn't when the Cochrane review was written). Cochrane Norway is based at the Norwegian Centre for the Health Services - so there is a connection...

Agenda for today's symposium.

STAT NEWS: Cochrane ousted researcher over improper use of letterhead, board co-chair says A physician and researcher recently kicked out of one of the world’s most authoritative medical research bodies repeatedly misused official letterhead to espouse personal views, the co-chair of the...

Ugeskrift-journalist Bente Bundgaard with a good summary of the story thus far (at least until the lawyer's report was published) Hvad nu, Cochrane? google translation: What now, Cochrane? If Cochrane researchers are not specifically more independent than anyone else, if they are dealing with...

New article from Danish Ugeskriftet Går Peter Gøtzsche eller går han ikke? google translation: Is Peter Gøtzsche leaving or not? I've tried to fix some of the worst parts of the google translation: While the medical world is waiting for answers to these questions, Peter Gøtzsche has published...

New blogpost from Nina E. Steinkopf, the initiator for this petition. In this blogpost she pulls apart the national competence service for CFS/ME's argument that they are manoeuvring through all research concerning ME. When looking at what seminars they are actually participating at and the...

I wouldn't even know where to start, and as she uses the opportunity to smear ME patients, no one would listen anyway. This nonsense needs to be met from a level up by doctors and researchers. But the national competence service for CFS/ME would probably just agree with the coach :bawling: Or...

Didn't Phil Parker just release a sales video about LP where he stated that ME is a physiological disease without a doubt (but obviously LP can still help). Shouldn't they agree amongst themselves what it is they are "treating"?

This is published in a news site about research. I thought those days were over when Live Landmark could distort the ME debate with her alternative facts and commercial activities, but no.