Search results

#MEAction's response to the statement from Aarhus University Hospital Join the fight against stigma and pseudoscience in New York When people sent letters of protest, they were issued a boilerplate response that stated that ME was not the focus of Fink’s talks, and that no presentation was...

5 000 signatures :party::emoji_boom::woot: and keep them coming!

Statement from Aarhus University Hospital Danish research on functional disorders causes a stir in the USA The Danish consultant and professor, Per Fink, PhD, DMSc, has been invited to Columbia University in New York to share his knowledge on functional disorders at the conference "Healing...

Extrastiftelsen is a big foundation for volunteer work. On Oct. 24th 09.00 - 12.15 they invite to a seminar about user involvement in priority within research. As many of you remember, the Research Council of Norway invited among others ME patients to have their say in how an allocation on 30...

Cochrane Withdraws Flawed Exercise Review Cochrane has decided to withdraw, at least for now, its fatally flawed review of exercise treatments for ME/CFS—or CFS, as the review calls the illness. This review, which reported that graded exercise therapy was an effective treatment, was first...

The Norwegian research project on faecal transplantation and ME, The Comeback Study, are still recruiting. They are cooperating with prof. Maureen Hanson. Here's an introduction to the study in English at the website Smart Patients - The Comeback Study

ME/CFS is not a psychosomatic illness W. Ian Lipkin, Director of the Center for Infection and Immunity and the Center for Solutions for ME/CFS at Columbia University, has written the following letter several days before the Fourth Annual Conference on Psychosomatics at Columbia University this...

Professor Kristian Gundersen (PACE-apologist og critical of "ME activists") This is a worrying example that even acknowledged research institutions are caving in for pressure #PostTruthSociety

Medscape has shared the Reuters-article. A pity they didn't do their own write-up.. Journal to Withdraw Chronic Fatigue Review Amid Patient Activist Complaints

I assume this is a statement regarding Per Fink. Official statement signed by Ian Lipkin. Our studies of blood, cerebrospinal fluid, saliva and feces, using state-of-the-art methods that include microbial gene sequencing, metabolomics, proteomics, and immunological profiling, confirm that...

@Trish you give great contributions to the debate. Thank you.

South China Morning Post: Scientists appalled as journal withdraws ChronicFatigue study that prescribed exercise, after patient-activist complaints A respected science journal is to withdraw a much-cited review of evidence on an illness known as chronic fatigue syndrome (CFS) amid fierce...

I wonder if Retraction Watch will do a piece on these news? They've done several on PACE.