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I've only heard positive things about Stora Sköndal just outside Stockholm in Sweden (apart from long waiting lists). They assess, give treatments and do research. https://www.storaskondal.se/vara-verksamheter/neurologisk_rehabilitering/mecfs-mottagning/

SVT: Sjukdomen ME i fokus - nu startas ny specialistmottagning Promising news from Sweden about an ME-clinic being underway in the region Västernorrland. At the time being there is not help for ME patients in the region. Let's just hope it will be run by people willing to familiarise themselves...

That was a superb letter, @Trish and one I wish many who've initiated research projects into this illness would read. Thank you!

Program for the open conference in Oslo Nov. 26 from 15.00 - 18.00 Main theme is PEM. PEM from the patient's perspective - Kristina Vedel Nielsen NIH Research Program on ME/CFS - Joseph J. Breen PhD, Immunoregulation Section Chief, National Institutes of Health Results on repeating...

Yes, it's quite a story.. She really has been through a lot.

Article about Gladys Maina from Nairobi and her very long journey to get diagnosed and at least some treatment. Standard media: People said the pain was all in my head

The Norwegian ME Association is launching their annual campaign for knowledge today. This year's main theme is PEM. Among other things they've prepared a brochure about PEM and a video interview with paediatrician and neurologist Kristian Sommerfelt where he describes PEM. The knowledge...

The Norwegian ME Association - Rogaland County - has made a short seminar about ME and how to adapt teaching of children and adolescents suffering from ME. The seminar contains a lecture that lasts approximately one hour. It gives an introduction to ME, cognitive challenges, rules and laws, how...

As blogpost: Trial By Error: The HRA's Letter to Berkeley's Chancellor The HRA was aware of the Bristol vice-chancellor’s complaints to Berkeley about my “actions and behaviour.” So I very much appreciate that Teresa Allen, the chief executive, took the initiative to alert Berkeley to the...

On Wednesday, a senior official at the National Health Service's Health Research Authority sent a letter to the Berkeley chancellor. I did not ask the HRA to send such a letter, so I was surprised when my department head forwarded it to me earlier today. Berkeley has strongly supported my right...

Trial By Error Oct. 30th How Bristol Investigators Avoided Ethical Review (Reprise) Last November 12, I published a post called “How Bristol Investigators Avoided Ethical Review.” That post addressed the series of eleven studies conducted by Bristol investigators and exempted from ethical...

Good letter to the editor in a Norwegian medical newspaper by specialist in psychology Grete Lilledalen. She's also a family member to an ME patient. She criticises the biopsychosocial approach model for ME and urges the government to reinstate the earmarked allocation in the national budget for...

New blog post from Jørgen Jelstad. This is an interview with him by a Snapchat group about ME called BliMEd. De Bortgjemte: Et intervju om de sykeste ME-pasientene: Hvorfor aksepterer vi som samfunn at de knapt får hjelp? google translation: An interview about the tickets ME patients: Why do we...

If Andreas Schröder thinks it's so important to listen to patients that he links to a patient organisation from neighbour country Norway with their 200 members, why not the Norwegian ME Association and its 5 000 members?

The article discussed in this thread was re-published in the latest edition of The Danish Medical Journal (Ugeskriftet). This edition also has a "Scientific editorial" commenting on the article by Andreas Schröder from Department of Clinical Medicine - Research clinic for Functional Disorders...

News article about the demonstration that was held this week in Finland. YLE: Sannin, 15, tapaus ei ensimmäinen: Ainakin kolme kroonista väsymysoireyhtymää sairastavaa nuorta on määrätty lastenkotiin google translation: Sannin, 15, not the frist case: At least three young people with Chronic...

New blog post from Nina E. Steinkopf. The National Competence Service for CFS/ME is known for their "biopsychosocial" approach to ME and is recommending treatment approaches as GET, CBT and Lightning Process. Nina E. Steinkopf initiated a petition against the Competence Service which received...

It started as a way to keep the trial RituxME funded and it was an annual allocation as long as the trial went on. When the trial ended, the post got removed but was re-instated last year due to pressure from patients. I don't know if it will be reinstated a second time as earmarked allocations...

New blog post about Lightning Process from Nina E. Steinkopf. She draws parallels to Lightning Process and debates concerning other alternative treatments as well as conversion therapy. One episode she writes about that I haven't heard about before, was from when Lightning Process coach Live...