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Is it a brand new article, or a recycling of old ones? I couldn't tell. As expected, the dreaded "social media aggression" is already at it again.

I believe the talks from the open conference was filmed and will be uploaded soon. It includes talks from Joseph Breen and Betsy Keller.

Moved from Norway - CFS/ME Research Conference Nov. 25th-26th 2019 This was a conference for scientists, health care workers/students and patient advocates. Not extremely well attended.. I believe approximately 60-70 people were present. It's nice that they already are sharing preliminary...

Moved from Norway - CFS/ME Research Conference Nov. 25th-26th 2019 Stress for the carers Always “on call” Single mother: Hard to work night duty after the daughter’s suicide attempt, but the municipality meant they were not in need for a specific grant for parents caring for very sick...

Moved from Norway - CFS/ME Research Conference Nov. 25th-26th 2019 Here's an unofficial translation of some of the slides ---- Experiences and perspectives from meetings with public services among ME patients and their families: Preliminary findings CFS/ME- research conference, November 2019...

Breen said there's been a decline in research grants lately. During the Q&A-session he emphasised that researchers from all over the world are welcome to submit applications for grants in order to do research into ME. If the quality of the application is high enough, and they consider the...

Author and journalist Jørgen Jelstad was present at the research conference. He's written an article about Joseph Breen's lecture and also had a short interview with him. It's about how the IOM report gave pressure to do something, the NIH in house trial and research projects NIH is supporting...

Translations of the Clinical Guidelines For Diagnosing and Treating ME/CFS can be found here on OMF's web page. Currently it's translated to French, Italian, Portuguese, Spanish and German.

Professor Ola D. Saugstad has written a comment with a reply from Andreas Schröder. Saugstad writes among other: What ME patients require in Norway and Denmark is simply that modern medical methods and principles must also be applied to their illness. The psychosomatic wing calls this...

Merged thread This short video from OMF about ME is from September 2019, but I don't think it has been shared yet on the forum? By now it has subtitles in Danish, Dutch, French, German, Hebrew, Italian, Japanese, Norwegian, Portuguese and Swedish, so may valuable in advocacy work in those...

Moved from Norway - CFS/ME Research Conference Nov. 25th-26th 2019 A Norwegian research project about ME patient's meeting with health care services presented preliminary findings and afterward shared the slides from the talk on Facebook. It includes more information about their project and...

Journalist Jørgen Jelstad was present yesterday at the first day of the conference. In this Facebook post he says Joseph J. Breen's (NIH) talk was exciting, a lot is happening and they are well underway in the largest dive ever happened into ME patient's biology. Jelstad will be returning with a...

"The treatments (CBT/GET) that I did as part of the trial had had a hugely negative impact on my daily life, and so when the results showed only positive outcomes for the data and nobody made worse by the treatments, I was shocked and upset. I naturally questioned the results at the presentation...

I had a doctor over 2o years ago who recommended me to try ginseng. Not sure if it was white or red or if that mattered. He was in fact so curious about ginseng he said he'd like to try for himself, but he just wasn't tired enough o_O I'm glad Fluge/Mella are about to start at trial monitoring...

Interview with Ragnhild Holmås, who has ME and is battling prejudice towards invisible illnesses with humour as tool. Until now she's used Instagram as a platform, but next year she will be publishing a book titled "But you don't look sick". I really enjoy her sense of humour. The article...

So sorry to hear that :(

Two informative articles today about ME and PEM from the Norwegian news site ABCNyheter. The first article interviews doctors and researchers Kristian Sommerfelt and Katarina Lien. They explain the basics and warn against GET as treatment approach. Sommerfelt doesn't believe the knowledge...

Open Letter to Dr Godlee about BMJ's Ethically Bankrupt Actions (2) In July, I sent Dr Fiona Godlee, editorial director of BMJ, a letter signed by 55 experts about her company’s perplexing decision to republish the originally reported–and unreliable–findings from the trial of the Lightning...