So today I received the following e-mail from Professor Roger Jones, editor of British Journal of General Practice. I've been bugging him to correct a false statement in a 2017 editorial. I sent him another nudge on Sunday, given that it had been more than a week since he promised to make the...
Danish Medical Journal (Ugeskriftet.dk) has published an article about the status of CFS/ME. It's good to see references to Wilshire et al and Twisk et al, but the authors still suggests that a subset of ME-patients might benefit from GET. They also define ME as a functional disorder..
The...
Moderator note: new thread with posts from here
https://www.s4me.info/threads/news-from-scandinavia.647/page-34#post-175962
Danish Medical Journal (Ugeskriftet.dk) has published an article about the status of CFS/ME. It's good to see references to Wilshire et al and Twisk et al, but the...
Trial By Error: Hey BJGP, Where's That Correction about the Cost of MUS?
Earlier today (Sunday, June 9th, in San Francisco), I sent the following e-mail to Professor Roger Jones, the editor of the British Journal of General Practice. I first wrote to Professor Jones in early May, seeking a...
I find it hard to understand that the ill-fated consequences for patients with diagnoses being redefined into terms as contested/MUS/BPS/functional disorder isn't obvious to everyone.
The "patient organisation" Recovery Norge (for patients who have improved from ME by their own efforts and which is lead by MD Henrik Vogt) has asked 9 anonymous members whether it's true that ME patients can't tolerate activity. It believe this is meant as a critique to Lien's study.
google...
Egil Fors as co author is a red flag. He is a proponent of the bio psychosocial approach to ME, defining it as a functional disorder and recommends CBT/GET as treatments. He's also written at least one article together with the Lightning Process coach Live Landmark (2011).
Henrik Vogt has commented the article. Here's a google translation:
The pediatrician Kristian Sommerfelt says that cognitive methods cannot contribute making CFS / ME healthy. This implies a pure denial of both research knowledge that suggests improvement and increased chance of recovery by...
Front page article about this study on a Norwegian news site about research. Prof. Wyller is interviewed and is still claiming that the study supports his hypothesis that ME is due to a hypersensitivity in the brain. He is sceptical to a purely biomedical approach and says the brain can be...
Debate in this twitter thread between researcher Katarina Lien and prof. Kristian Gundersen and Henrik Vogt. It's in Norwegian, but the tweets can be translated.
Physiological Reports Abnormal blood lactate accumulation during repeated exercise testing in myalgic encephalomyelitis/chronic fatigue syndrome by Katarina Lien et al
Abstract
Post‐exertional malaise and delayed recovery are hallmark symptoms of myalgic encephalomyelitis/chronic fatigue...
Haven't seen it myself, but here's a summary
Microsoft translation:
In today's interpellation debate, Minister for Social Affairs blamed @lenahallengren a lack of consensus on diagnostic criteria for not setting up a centre of Excellence FOR ME/CFS. Bad excuse. The Canadian consensus criteria...
This morning, I sent the following e-mail to Dr Nick Brown, editor-in-chief of Archives of Disease in Childhood:
Dear Dr Brown—
On June 3, 2018--that is, a year ago--you responded to a letter I had sent to people involved in the development of new ME/CFS guidelines under the auspices of the...
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