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Yes, that sums it up. Or, as senior doctor at the Competence Service, Ingrid Helland, said in an article last year about the petition (translated hastily by me): - We try as a competence service to manoeuvre through all research from this field, including biomedical research. But we get...

New blog post from Nina E. Steinkopf. She has sent a letter to the Minister of Health and Care Services Bent Høie whom she met with in March when she handed over the petition with over 7 000 signatures asking for the removal of the management for the national competence service for CFS/ME. The...

Jonas Bergquist, maybe? Uppsala University's new research centre around ME will be the third in the world after the universities in Stanford and Harvard. All projects are funded by the Open Medicine Foundation, a research foundation in the United States based on private donations. In Uppsala...

JAMA: Biomarker Test for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Myalgic encephalomyelitis/chronic fatigue syndrome affects at least 2 million people in the United States. Despite its prevalence, there’s no laboratory test for the disease, and its diagnosis is based on symptoms like...

This thread has a Science for ME News In Brief post for each week in July 2019 written by @Trish and @Kalliope. Scroll down to find this week's news. Week beginning 1st July 2019 ......................................................... Trial By Error by David Tuller FOI Response from...

ABCNyheter has written another article about the report. This time they interview Ingrid Helland, senior doctor and leader of the National Competence Center for ME/CFS. She is known for a biopsychosocial approach to ME and there was recently a petition with over 7 000 signatures asking for the...

Oh, how I wish that was true, but he said the following to media in April: Norwegian professor: The criticism has been groundless Professor Vegard Bruun Bratholm Wyller believes the report from the British health authorities supports that the criticism of the PACE study has been unfounded. He...

The Norwegian Public Broadcaster (NRK) recently had an interview on radio with the former athlete Ingunn Ullerhaug in connection with covering the recent study from Katarina Lien on blood lactate accumulation. Now Ingunn Ullerhaug has written a debate article which is currently on the front...

- The illness now called myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) was first described in the mid-1980s. I thought it was described already in the 1930s?

Viewpoint Advances in Understanding the Pathophysiology of Chronic Fatigue Syndrome - Anthony L. Komaroff Conclusions A great deal more is known today than 35 years ago about the underlying biology of ME/CFS. It is clear that many biological measurements clearly distinguish patients with...

Forum member and blogger @Marit @memhj has written a blog post with an overview of the chronology of the correspondence between Cochrane and the Norwegian Institute of Public Health På ME-fronten: Cochrane vs Larun; Folkehelseinstituttet har bevisst villedet og tilbakeholdt informasjon google...

The correspondence I received was back in March.

The author, Maria Pedersen, defended her thesis in Oslo in February this year; "Chronic Fatigue and Chronic Fatigue Syndrome Following acute Epstein-Barr Virus Infection in Adolescents". Principal supervisor was Vegard Wyller. First opponent was Trudie Chalder...

Moderator note: Moved from this thread: Trial By Error: FOI Response from Bristol about LP Study; Correction in BJGP about MUS I have e-mailed the following letter to Professor Carolyn Chew-Graham of Keele University, who has repeatedly mis-quoted a key data point about the cost of so-called...

The Danish ME Association is running an online survey for Danish ME patients on illness progression. The survey consists of 14 questions, takes about 5 minutes to answer and is anonymous. The survey is based on a similar survey from the Norwegian ME Association which received over 5 000...

FOI Response from Bristol about LP Study; Correction in BJGP about MUS Tuller has received a response to his FOI request with the University of Bristol about the LP-study and has learned: The university was informed on Feb 8.2018 that the journal had raised serious questions about the study...

Yet another great article from ABC Nyheter about the report. This is their third article. This time they have interviewed Mette Schøyen who is ME patient herself and has two children with ME. One of her daughters was among the most severe ME patients in Norway for several years. ABC Nyheter: Ny...

Yet another article about the report from the same news site, ABC Nyheter This time with interviews with prof. Ola D. Saugstad and senior doctor Hanne Thürmer, both confirming the grave situation for severe ME patients. Ny rapport om de mest alvorlig ME-syke: - De har gått for lut og kaldt...

David Tuller got access to some, and wrote about it. https://www.s4me.info/threads/david-tuller-trial-by-error-cochranes-report-on-courtneys-complaint.8555/ I asked for, and received, the rest. But the PDF document I got is too big to upload here. I'm happy to send the document as email to...

MillionsMissingStavanger did a fundraising for Fluge/Mella and their team as part of the event 12th of May. Today 157 317 NOK (18 497 USD, 14 534 GBP, 16 242 EUR) got transferred to the researchers.