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  1. Peter T

    Earseeds, Acuseeds

    I don’t understand why they are so excited as any company retailing this product, given as soon as you invest in marketing any number of already established companies could simply piggyback and retail the product at a fraction of the cost. This is not a sustainable business model as the more...
  2. Peter T

    Earseeds, Acuseeds

    The must be some ambiguity about whether the BBC is endorsing the product in a legal sense as they would not have taken the show off line, presumably consulting lawyers before adding their disclaimer and then putting it back on line. If the BBC are unambiguously neutral about the product, why...
  3. Peter T

    A suffering body, hidden away from others: The experience of being long-term bedridden with severe [ME/CFS] in childhood & adolescence, 2024, Krabbe +

    It is interesting that there is little discussion about the energy costs of novel or even less recent events. I can now fairly easily do an online grocery order but struggle to do simpler on line purchases from websites I am not familiar with, or I don’t usually need to use a walking stick...
  4. Peter T

    Earseeds, Acuseeds

    In 2000 I did manage to find a doctor, a neurologist in private practice with a special interest in ME, who said I would not recover and would not work again, though this was six years into my ME when I was looking to take ill health retirement which required I had a condition that was such that...
  5. Peter T

    Earseeds, Acuseeds

    I don’t regularly watch Dragon’s Den, but in the past I has seen people pitching for investment rejected because their retailing of items without any exclusivity deals meant they did not have a long term sustainable business model. The Dragons previously said why invest when anybody else could...
  6. Peter T

    News from Germany

    Interesting to know that pregnancy and child birth are then also psychogenic, because more women than men get pregnant.
  7. Peter T

    Petition: S4ME 2023 - Cochrane: Withdraw the harmful 2019 Exercise therapy for CFS review

    Good to see a surge in signing and some new comments including French and German responses. Thank you to those reconnecting with international groups.
  8. Peter T

    Atlantic: ‘If Exercise Could Cure This, I Would Have Been Cured So Quickly’, 2024, Katherine Wu

    I suspect the norm in ME is for people to do as much as they are able at that point of their illness, and if their health does improve at all they do more. Unfortunately as ever the BPS researchers/clinicians confuse association with causation and arbitrarily decide on the direction of any...
  9. Peter T

    Do you have a UK NICE care plan?

    Am I making this up or did the previous Nice Guidelines also recommend a care plan with annual reviews? Having said that in 30 years no medical professional has suggested this for me.
  10. Peter T

    Earseeds, Acuseeds

    Great news. It is truly heartening to have seen the wide spread support for the patient view point and largely accurate reporting in all the main UK newspapers rather than just publications like the Canary which has regularly reported accurately on ME issues. All though it often feels like with...
  11. Peter T

    Earseeds, Acuseeds

    One of the many Medical Advisors to this local group. It has more medical advisors than any of the national ME groups. I have not done the arithmetic but I suspect as many advisors as all the national groups added together. One wonders how many of the BPS researchers in the past that have cited...
  12. Peter T

    Earseeds, Acuseeds

    Dr Miller is desperately trying to still push exercise and CBT, whilst not contradicting the new NICE guidelines. It is unfortunate that the guidelines were dilute enough to allow the GET/CBT believers to continue in place with only minimal mental gymnastics.
  13. Peter T

    Earseeds, Acuseeds

    Had a look on the Independent site but found nothing relevant under ‘Zoe Beauty’ for today. However I don’t have a subscription so I don’t know if that restricted my search.
  14. Peter T

    A general thread on the PACE trial!

    Not to mention the problems with subject selection and the introduction of bias by informing participants in advance that that the preferred treatments worked, even to the extent of Prime ministerial endorsement of the treatments shared in a newsletter to some participants mid study.
  15. Peter T

    If you had to guess ME/CFS cause, what'd you say?

    Yes, this. We still don’t have a good ‘natural history’ of ME.
  16. Peter T

    Petition: S4ME 2023 - Cochrane: Withdraw the harmful 2019 Exercise therapy for CFS review

    Thank you for all the hard work people are putting into this issue.
  17. Peter T

    Impact of sex and gender on post-COVID-19 syndrome, Switzerland, 2020, 2024, Gebhard et al.

    It is hardly surprising that the impact of biological sex here mirrors all the other previous studies, and also what is seen in related conditions such as ME/CFS, but I must admit, from the abstract at least, the gender related discussion left me confused. Were they expecting perceived gender...
  18. Peter T

    What can we learn from the Post Office scandal publicity (including TV)?

    Prior to the this current scandal, I had been drawn to the model seen in examples from historic accounts. The pattern seemed to be the publication of a relatively serious academic book followed by a more populist account followed by either TV or film drama and/or a novel. You saw this in ‘The...
  19. Peter T

    Opinion Chronic fatigue syndromes: real illnesses that people can recover from, 2023, The Oslo Chronic Fatigue Consortium

    Do we know why Norway is choosing to create guidelines for fatigue in general rather than for specific conditions? It rather feels that this is already well down the BPS psychogenic rabbit hole, where instead of developing condition specific solutions there is ever greater lumping together of...
  20. Peter T

    Why the Psychosomatic View on [ME/CFS] Is Inconsistent with Current Evidence and Harmful to Patients, 2023, Thoma et al

    To be fair the problems of psychosomatic medicine do not originate with trained research psychologists, but with other professionals, most of whom like Freud started from a medical training. The problems with such as the current BPS research were well understood within experimental psychology...
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