Search results

Experimental psychology well understood fifty years ago that open label trials with subjective outcome measures were inherently unreliable, and as I have pointed before the main proponents of the BPS approach to ME from Wessely to White to Chalder to Crawley are not research psychologists but...

I don’t think we have enough evidence to assert this. I accept ME is a fuzzy set with blurring at the fringes and there is high levels of variability between different patients. However there is also high levels of variation within individuals; over the thirty years of my ME my condition has...

I am somewhat embarrassed to admit that I just use microwave rice that requires no preparation or washing up, other than the plate it is eaten off. I have not tried serving it to anyone else, but I find the brand I get (Tilda) surprisingly palatable.

It is important to remember the emotion attached to diagnostic labels, especially when those labels are used very differently by different people. We only need to think about the heated discussions on social media that we saw and occasionally still see in the ME versus CFS debate. Often such...

I read ‘rice cookers’ as ‘rice crackers’ which makes this thread very surreal.

I second this. Such an important issue given the repeated medical abuse of people with very severe ME involving eating/feeding issues. Coroners are in a position to issue clear statements of what has happened and give advise on what needs to be done, including referral of the matter to the...

An important article, but will [it] gain enough traction to influence services and support for people with Long Covid, particularly those that meet the diagnostic criteria for ME/CFS? [edited to correct typo]

However if some part of the NHS in the Midlands is commissioning the Chrysalis Effect Team to provide clinical intervention with patients with ME/CFS this noncompliance with the current NICE guidelines needs to be addressed at both a local level and nationally.

I guess they may be thinking that, though ‘chronic fatigue’ does not necessitate ME/CFS, ME/CFS does imply the presence of ongoing ‘chronic fatigue’. That they make this distinction is a step forward, but by the same logic, as @Andy says, they should then also include in their ‘chronic fatigue...

I agree that we need to clarify what is meant by unrefreshing sleep. I always understood it to be different to disrupted sleep patterns, rather I understood it to be even when I have a good seven or eight hours sleep I wake up feeling worse than when I went to bed. On such mornings I may need...

You missed out that the illness is also probably an excuse to do nothing. So it is due both to people wanting to do too much and also wanting not to do anything.

Thank you.

Another excellent article.

@Lou B Lou thank you for finding this. However I think you have a typo in this quote which should read ‘I work from home 1 day a week to help with stress levels … ‘. Which presumably means she works five days a week, four of those days in the ‘office’.

I have seen over fifteen doctors in the 30 year course of my ME and only one admitted I was unlikely to recover or be able to work again, a neurologist with a declared special interest in ME I saw privately when in pursuit of ill health retirement. Most UK doctors I have seen presented...

The latest article “The British Association of Clinicians in ME/CFS (BACME) doesn't understand post-exertional malaise. - They think it's a type of fatigue.” See https://mecfs.substack.com/p/the-british-association-of-clinicians is worth having a look at.

Can it be signed by non Dutch residents?

I remember when I started work over 40 years ago how doctors hated telling people they had MND (ALS) because there was no treatment, which resulted in false hope and people failing to plan for their inevitable deterioration. This dramatically reduced their quality of life as things were never in...

The only UK figures I have seen recently are related to hospital admissions, but then only for relatively small geographical areas, not for the country as a whole. I suspect there is a government desire not to present accurate Covid figures here, because the politicians want the country to...

@Mij, I think you had problems with the cut and paste. Here are the full five reasons: During Due Diligence (the process by which the investors corroborate the facts shared with them in the Den) facts presented by pitchers don’t hold up (e.g. the pitcher said he had a patent, but really all he...