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If my memory services me correctly there was a study looking at outcomes for the British ME/CFS clinics at a time when GET/CBT was their standard treatment, and they found that following intervention from these services patients were likely to work fewer hours and claim more benefits. This is a...

There are situations where unblinded trials with subjective outcomes are the only option, either because of what is being investigated or because the complexity of the real life clinical situation makes meaningful controls impossible. However this does not in anyway reduce the potential for...

Even compared to these disappointing time scales the replacement ME/CFS Exercise Review is a disaster, 4 to 5 years in, depending on where you set the start point, yet still no published protocol. We are already well beyond the 39 month upper median total publication time and still no protocol...

As I see it the issue is not that people with ME do or do not have issues with day one exertion, one would expect this is many conditions, rather what seems so far to be unique about ME is that previous exertion dramatically impacts on attempting day two exertion, so it would make sense to know...

Like @Creekside I am currently in favour of preprints but open to be being convinced of the opposite if there seem to be good arguments against. For me what sways me currently in favour of automatic use of preprints is the problems with peer review where reviewers seem to very often miss quite...

I have been pondering this phrase as it suggests @sarahtyson is at least in part in a world where people with ME have ‘such a bad reputation’. That world includes the PACE associated academics whose calumnies of people with ME they were unable to sustain in a court of law or Professor Crawley...

Given the paucity of studies into PEM what can we say about the duration of PEM? Given there are many anecdotes of the impact of PEM lasting weeks, months, years or even indefinitely, I suspect it is premature to consider its effects as relatively short term. Further I suspect we need more...

Thank you @Dx Revision Watch for this info.

Did they control for the colours of the clothes participants wore during the trial period, what they watched on TV, how the rooms they frequent were decorated, etc? Did they do darkness controls? Perhaps they should monitor the auras of everyone the subjects came into contact with, including the...

Great news!

I suspect we will see damage limitation from the BSP cabal: saying they never denied there was a physical illness, pedalling false sympathy for the severe end of ME but repeating the importance of hope and that for the mild and moderate activity management and psychological support is vital to...

Just watched the piece (half way through the programme), it is very good and thanks to Clare Norton and Sean O’Neill who gave very compelling contributions. The focus of the piece was the failure of much of the NHS to take this biomedical condition seriously, the harm arising from inappropriate...

If the psychiatric disorders were initially measured by questionnaires that includes questions about fatigue and general physical activity how likely is the presence of fatigue from non psychological causes going to inflate the figures for psychiatric disorders? Did the psychiatric interviews...

Definitely a more apposite literary reference.

To be fair I am not sure that the original developers of CBT envisaged it as being marketed to cure biological illnesses à la PACE. CBT like mindfulness may have some specific uses and it’s explosion to a miraculous cure all was not a necessary consequence of its development.

How many people will die from undiagnosed treatable conditions if following this credo.

Ever more Kafkaesque.

Yes!

Yes, although CBT was initially seen as neutral about the origins or causes of psychological distress, rather a belief free way to modify thought patterns and behaviour, it does not seem to have thought objectively about what the targets of that change should be. Though it was established as an...

I have never had enough support to find a base line, unless someone could provide me with a cook house keeper, a valet, a chauffeur, a gardener and then a property manager to deal with all the staff. In general at what ever level of impairment life will interfere with any attempt to establish...