Search results

Hasn’t Prof White, since his supposed retirement and the refusal of the FOI request on the grounds of no staff left who are able to access the data, been listed as the lead researcher in the current PACE follow up? [added - not found an up to date confirmation that Prof White is still heading...

I had to look up PFAS: taken from https://www.ewg.org/pfaschemicals/what-are-forever-chemicals.html

Presumably the LP folk could sue participants revealing the course contents in a civil breach of contract case, though presumably it would not be good PR.

Thank you @Jonathan Edwards and @Science For ME (the Committee) for compiling this clear submission.

There is a change.org petition calling for more research into the health effects of micro plastics in the human blood system. See https://chng.it/WjNTGQJjm5 Though it is worded specifically in relation to the UK government, as it is change.org it can be signed from anywhere in the world.

My thoughts exactly. I biomarker must do more than distinguish between recovered Covid patients and those with persisting symptoms, it must distinguish between people with other non Covid related conditions too. At present all you can say is that they are distinguishing the well and the unwell...

Thank you @Kalliope for sharing this information. It is so important that we understand worldwide what is happening with the LP. It seems to go in bursts in different countries at different times. I don’t know if this relates to chance in that particularly charismatic practitioners enter a...

Though not mentioned in this abstract, are we seeing with Long Covid the development of higher rates of various food intolerances than in the well population or is it too soon for people to recognise any food intolerances in the course of their Long Covid? It took me several years to recognise...

Sometimes I find delayed PEM, even with rest, can paradoxically get worse over several days following its onset. Often when this happens it is when PEM feels most like a virus or a hangover. It can have a sense that my body thinks there is something it needs to get rid of, rather than a lack of...

@Keith Geraghty, thank you for taking the time to respond to our comments here. I wish you every success in the fund raising, as your work contributes significantly to the countering the misunderstandings of ME and overcoming bad research in the field.

The authors here seem to confuse the purpose of replication, which is not of itself to support a theory but to asses the reliability of the specific experimental evidence being replicated. I suspect here when they refer to ‘conceptual replication’ they are actually talking about ‘convergent...

I could not see any contact for the author on the article itself, and I am not on Twitter so I would welcome the two minor errors being pointed out to the author. The two articles are very important accounts, especially as they hopefully will reach a wider audience than ME stories usually get...

Slight worry about accuracy, the second article says in relation to Prof Crawley but wasn’t this conclusion specifically in relation to the PACE data FOI request, and she was not a PACE author though a devotee of its conclusions and methodology. Though Prof Crawley is a prime exponent of...

My ME onset was linked to glandular fever (mononucleosis) when the presence of EBV was formally confirmed approaching 30 years ago. After a number of years I believed I had recovered, then twenty two years ago a major relapse was associated with a bout of what I believe to be influenza, but my...

I echo your frustration, given the horror of Covid-19 it was a hopefully unique opportunity to undertake prospective studies on the full range of post viral conditions, including ME, but so far we have largely seen a total failure to learn from previous poor ME research.

It is the fallacy of going from the specific to the general. It is the same process as arguing that because bats are mammals and can fly, all mammals can fly. Demanding people with ME exercise to get better is as rational as throwing a bunny rabbit out of an aeroplane and expecting it to fly.

I am not sure I could comment on the UK government’s priority procurement mechanisms for PPE that considered ministerial recommendations before established providers of medical equipment and their subsequent decision to write off billions of pounds worth of faulty or non compliant equipment...

Though welcoming more biomedical research I echo others’ concerns. Even, if ignoring the risks of significant PEM and the likelihood that abnormalities in an exercise test only show in activity undertaken on a second day in such as the two day CPET test, it is also necessary to know the total...

My subjective sense is that sensory hypersensitivities and orthostatic intolerance result in their own specific short term negative responses that is distinct to PEM if exposure is not too long. Recovery from these if exposure is stopped soon enough is quite rapid, and does not seem to have the...

Such an important Blog series, illustrating how widespread and dangerous assumptions of psychogenic causes for so many illnesses have been and still are. @Michiel Tack, thank you to you both for putting all this work together; is their anything we can do to help disseminate this more widely...