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  1. Peter T

    Psychology needs to get tired of winning, 2022, Haeffel

    Although I understand why you feel this, and though it is relevant for chunks of psychology, it is not universally so. There has been for example very successful work in such as how we process and understand written material and what is involved in dyslexia(s), work on the decision making...
  2. Peter T

    News from Doctors with ME

    @cassava7, thank you for trying hard to tactfully let Doctors with ME know the problems with some of their communications, and I am sorry that Dr Hng not only completely failed to understand your substantive points but ultimately became offensive. It is so disappointing that this potentially...
  3. Peter T

    Facts and Myths about Chronic Fatigue Syndrome, 2022, Per Fink et al. (Danish Medical Journal article)

    No study that can not hope to provide meaningful results is cost effective. Rejecting an evaluation tool that could answer a question because it is more expensive than one the is never going to produce unambiguous results is as rational as suggesting the researchers stay in their office and...
  4. Peter T

    Use of Cardiopulmonary Exercise Testing to Evaluate Long COVID-19 Symptoms in Adults - A Systematic Review and Meta-analysis, 2022, Durstenfeld et al

    A useful review, but from an ME perspective I would like to know more about (note. Not fully with it so did struggle reading the full article): Patient heterogeneity? Though mentioning the issue of potential heterogeneity in the patient populations I could not find discussion of the potential...
  5. Peter T

    News from Doctors with ME

    Hopefully they also stop overstating what we can authoritatively say about the biological basis of ME, as this gives antagonistic readers an excuse to dismiss what Doctors with ME say. Though I agree with most of what they say, they can be more emphatic than the evidence warrants, going from...
  6. Peter T

    Long Covid in the media and social media 2022

    [added - sorry this comment has been moved so it no longer is clear what it refers to. I was responding to the posting of a link to a Science article by @Binkie4 now several postings above, ‘Clues to Long Covid’ see...
  7. Peter T

    'Disability as identity' - discussion thread

    For me over 30 years, I would say ME has repeatedly taken away the identities I valued: the successful and innovative Speech & Language Therapist, the regional clinical advisor, the well liked manager, the person invited to talk and write to about horticulture, the gardener, the trainee yoga...
  8. Peter T

    Psychiatric Symptoms in Amyotrophic Lateral Sclerosis: Beyond a Motor Neuron Disorder, Zucchi/Ticozzi/Mandrioli, 2019

    There are different forms of MND (ALS), many years ago I remember working with some one with a stereotypical form with relatively slow progression and no cognitive impairment when a near relative was also diagnosed. The family felt really confident that they knew what to expect and that they...
  9. Peter T

    Survey of Anti-Pathogen Antibody Levels in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, 2022, Levine,Hanson et al

    I am interpreting this to show that exposure to any of specific pathogens investigated is not sufficient or necessary to trigger ME/CFS though we can not rule that exposure to one or more of a number of pathogens is a contributory factor in the genesis of the condition. Though we are left with...
  10. Peter T

    ME/CFS SKeptic: A new blog series on the dark history of psychosomatic medicine

    Another important instalment in this series of blogs. The following particularly struck me: A consensus of contemporary medicine here was achieved not by evaluating the underlying assumptions with scientific investigation but by press of literature presenting those assumptions as established...
  11. Peter T

    Pain and fatigue in adults with Loeys–Dietz syndrome and vascular Ehlers–Danlos syndrome, a questionnaire-based study, 2022, Johansen et al

    The confounding of association and causation is disappointingly widespread. If the symptoms all arise from a common cause, they are going to increase if the underlying condition worsens. If you are unable to treat the underlying condition obviously symptom management is all that is left, however...
  12. Peter T

    Acceptance commitment therapy (ACT) for psychological distress associated with inflammatory bowel disease (IBD): protocol..., 2022, Evans et al

    Researchers listed in the protocol: Subhadra Evans1, Lisa Olive2, Madeleine Dober3, Simon Knowles4, Matthew Fuller-Tyszkiewicz3, Eric O5, Peter Gibson6, Leanne Raven7, Richard Gearry8, Andrew McCombie9, Leesa van Niekerk10, Susan Chesterman2, Daniel Romano2 and Antonina Mikocka-Walus1 At the...
  13. Peter T

    UK House of Lords/ House of Commons - relevant people and questions

    If Javid takes action on this it would make sense to also try to stop a rush of uninterpretable Long Covid research using unblind trials with subjective outcomes.
  14. Peter T

    Hidden disability: a study of the psychosocial impact of living with pituitary conditions, 2022, Norman et al

    Have no idea what the article actually says, but I was drawn to the conclusion that the best support was a nurse, not sending people off for generic CBT. It would be interesting to compare how helpful people who felt they had psychological support needs found a specialist nurse working in the...
  15. Peter T

    News from the Visegrád Countries - Czech Republic, Poland, Slovakia and Hungary

    I think this is an important issue, you also see it with young ME suffers too. For many people in Western Culture exercise is part of their sense of identity and going to the gym significant for their self worth and a significant leisure activity. I suspect some people need the right support to...
  16. Peter T

    UK House of Lords/ House of Commons - relevant people and questions

    An excellent letter/draft question, @FMMM1 I am most impressed how succinctly you got the point across.
  17. Peter T

    News from the Visegrád Countries - Czech Republic, Poland, Slovakia and Hungary

    Interesting, but does this read as though the researchers are coming at the topic with a number of preconceptions that will get in the way of asking the right questions?
  18. Peter T

    United Kingdom: Science Media Centre (including Fiona Fox)

    This raises again how the book got some initial five star ratings, if it is not possible to rate it without leaving a review.
  19. Peter T

    Preprint: Generalizable Long COVID Subtypes: Findings from the NIH N3C and RECOVER Programs, 2022, Reese et al

    We need a decent natural history of Long Covid, as much as we need the same for ME, however it is possible that using electronic medical records alone tells us more about the views/priorities of the medical professionals involved than the condition(s) itself.
  20. Peter T

    Potentially traumatic events, social support and burden of persistent somatic symptoms: A longitudinal study, 2022, Barends et al

    The methodological problems with these studies are so well rehearsed here there is no point in repeating them, however it is interesting that their recent ‘potentially traumatic events’ when self reporting may be more accurate had no impact the ‘persistent somatic symptoms’ did not encourage the...
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