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I had been suffering adverse effects of orthostatic intolerance for several years before I even knew orthostatic intolerance existed. Once I was aware it was a possibility and offered an explanation for some of the variation in my ME symptoms, I was better able to manage my activity and this...

I believe that this is a matter of deliberate policy here in the UK where we have a government that has invested significant political capital in having ‘got the big decisions right’, in having ‘got Covid done’. Unfortunately Covid is not done.

Isn’t this yet another case of a study finding the more ill people are the more ill they are? Avoiding activity may be a perfectly rational and constructive response to you’re underlying condition, fatigue being a useful indicator of when you need to avoid activity.

Here in the UK we seem to be only seeing limited reporting of these latest Omicron variants. There is a dramatic upturn in the number of cases happening, including many people who are vaccinated and/or who have been previously infected (see https://coronavirus.data.gov.uk/ ), with even the...

Doesn’t this imply they had already prejudged the issue? Unblinded with subjective outcomes, is this another ocean liner launched towards a predetermined destination. I have no idea about the relevance of these interventions in this situation, but sad that this is research that will not advance...

I think the problem is that different people use the same word to mean radically different things: Some use ‘somatic’ in its original sense that you describe, that is physical symptoms, others use it to describe physical symptoms that have no identified biomedical cause and then others use it...

Or even if they are recognised or recorded.

I have not read the article, so I may be unfair in suspecting that “Chronic stress is a significant risk factor for negative health outcomes” is going beyond what can be inferred by the evidence. There are problems in developing non circular definitions of stress and divining causality as...

I am sure I have seen the term CBT-f before and that it is CBT for fatigue, but at present I can’t remember whether it was in the context of research by one of the usual UK BPS suspects or in the context of a British specialist service. Hopefully I will be able to remember more over the next few...

Surely, though medical research should ultimately relate to quality of life in the long term, there are valid research objectives that in the short term will have little direct impact on patients. For example in relation to ME, research on the underlying mechanisms of ME is likely to be...

I am sure that CBT to treat the frustrations of city drivers stopped at red traffic lights would subjectively reduce the length of time they seemed to have to wait at red lights. Indeed when living in London, I practiced ‘traffic light mindfulness’ where I sought to develop complete equanimity...

Harking back to the recent ‘Psychology needs to get tired of winning’ thread (see https://www.s4me.info/threads/psychology-needs-to-get-tired-of-winning-2022-haeffel.28228/ ), it would be pertinent to ask are there any studies of CBT in which the authors do not claim to have demonstrated it...

Wasn’t the point of raising Ramsey here, that if we take his definition as classical ME, other people advocating biomedical approaches have subsequently diverged from this too. So that not only could the psychogenic advocates be said to have hijacked ME, but also today’s biomedical advocates...

What @Trish says

I had assumed that Doctors with ME recent comments/tweets about ‘regulatory capture’ related to the attempts by members of various medical Royal Colleges to hijack the NICE guideline process at the final stages. However NICE came through. In which case talking about that failed attempt now...

Novelty of a task for me can be a bigger limiting factor than complexity. For example I initially needed help setting up and undertaking grocery orders online for delivery, but after a few goes now manage to do that regularly myself (more or less) as long as I avoid ordering on a bad day...

I have an acquaintance who has been given an FND diagnosis and who understands it to be a synonym for ME/CFS. I did not feel I knew the person well enough at the time it first arose to question what they understood about either or both conditions and so far a situation has not arisen since...

A problem linking viruses to the triggering of ME is getting sufficient numbers of relevant people to test and knowing what viruses to test for. An epidemic and/or a pandemic gives a focused opportunity; we know which virus to look at and have lots of people to test. With EBV in general it is...

I feel this GP with Special Interest post advert is potentially more promising, and, though someone with more knowledge about this specific service may comment differently, they seem to be saying the right things, which hopefully means they will end up doing the right things. Do others think...

The job advert includes: It is always worrying to see the phrase ‘evidence-based care’ in relation to both ME and Long Covid, as there is currently little or no evidence relating to any care strategies. Indeed here the offending paragraph is stressed by repeating it word for word. This means...