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Sorry, although the thread here was recent, the article itself is from 2020. See https://www.jclinepi.com/article/S0895-4356(20)30124-4/abstract . I haven’t yet found access to the full text that is not behind a paywall.

There is a recent research paper that looks at this question that has a thread here. I will try to find it, but I have specific problems in coping with how larger amounts of information are structured. [added - I found the link more easily than expected -...

Well this is an excellent article for the authors to self cite when justifying other related work, eg the MEA funded project currently happening. Why not undertake some objective measures to calibrate the questionnaires against rather than attempting to use other questionnaires.

They seemed to have forgotten the big house in beautiful countryside and taking the waters. Alternatively willl bathing huts also be provided?

An excellent piece. Particularly well done to Jo Bruce. (I wonder if she is related to Robert the Bruce, I went to the same school as him but he was a few years above me.) I had watched the whole news bulletin so was struggling by the time they got to this feature, particularly the sciencey...

They had it in the headlines at the onset of the program, so presumably it will be in second half of the program.

I have come across people with an FND diagnosis that definitely feel their condition has been denied by some people with ME. It is possible that this was due to people with ME objecting to the diagnostic label rather than denying the reality of the condition, but it is important if that is the...

For me the problem with FND is not as a practical label to describe a clinical grouping whose aetiology we do not adequately understand, but that it is also used as a synonym for Conversion Disorder with associated beliefs that it is psychogenic and can be treated by psychological and...

Thank you to the Committee for putting hard work into these letters that I feel express our concerns very clearly.

When there is a threat hypervigilance and an evaluation strategy that results in increased false positives are rational responses. This does not mean that hypervigilance or higher rates of false positives are the cause of the threat.

The complication is that I suspect these processes interact with triggering PEM, early fatiguability is a warning to stop the activity as there is a risk of subsequent PEM. Sometimes if I react in time I can experience some immediate fatigue effects but avoid subsequent PEM. Also I suspect if...

I wrote my comment above before reading the article itself. In my experience Matthew Paris is a genuinely kind and caring person in his personal life, but my concern is that his argument will ultimately blur the line between voluntary assisted dying and forced euthanasia. At least in the...

My big concern is that we end up with the situation that now can happen in Canada where the failure to officially recognise a disabling medical condition (eg ME) results in lack of access to appropriate benefits which in turn is regarded as a valid reason for assisted dying, rather than...

Perhaps a tangent, but I have intended for several years to produce a symptom record list that would enable individuals to record their symptoms on an ongoing basis indicating their onset, variation and severity for use in discussion with doctors to inform decisions about how frequently medical...

This description, if it accurately represents what happened, makes a total mockery of any comparison between the patients and the healthy volunteers. They effectively were undertaking very different activities.

@EndME sorry we cross posted, I failed to go and rest.

It was the first of the two Washington Post articles: The quote was: “Researchers told her that, on any given task, she might stress her body in a way that could undo all her progress. “They would remind me each day that this could be the last exercise you’re able to do,” she said. They’d...

It was an American newspaper article quoting one of the participants. I am just back from shopping, so will delay trying to find it until I have had a rest.

An excellent article. I was struck by the irony of this article being rejected in the context of the following statement in the Abstract to the Oslo Consortium article: “Finally, we call for a much more open and constructive dialogue about these conditions. This dialogue should include a wider...

This illustrates how misleading the term bio psychosocial is, given those who identify with it seem to use it to almost exclusively mean psychological or more specifically psychosomatic, or if they can [not] completely get away with that to assume the psychological has primacy. [edited to...