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Well done @Dania Ala for sticking with us. I think it betokens an intellectual maturity not necessarily found at a masters level and hopefully will inform your thinking as you write up your research and as you move on with your career.

I disagree that there is no place for ‘qualitative research’. I accept that it can not tell us about cause and effect and it is, even with great methodological care, subject to researcher bias. However in areas where we still have enormous gaps in our knowledge I would argue that it is akin to...

In another thread @Trish, I think, did an excellent post distinguishing the various post activity fatigue states that are dangerously being confounded with PEM. Perhaps the most dangerous is more rapid ‘fatiguability’ that occurs in many conditions and definitely serves to dilute any...

Presumablely this also suggests that verification in another lab (other labs) and different populations of people with ME/CFS is desirable/necessary.

My GP is wanting to put me on medication for high blood pressure, but I have put it on hold while I try losing some weight and modifying my diet.

Yes, though I don’t always agree with the MEA’s choices and with Charles Shepard’s positions on some issues, the charity and Charles have done a remarkable amount for people with ME in this country, and I would agree he deserves a knighthood for his services to our community. Also Charles makes...

The MEA has historically taken the approach that avoiding direct conflict with the establishment will achieve more than sacrificing a good working relationship. It can be disputed whether this is always the right course of action, or whether at certain times a line needs to be drawn, but there...

Well washing, makes me think of using well water for actual cleaning. But then my village decidedly doesn’t have a well dressing tradition, though the oldest continuous well dressing is just a mile or so across the fields, and I am currently involved in collating information on my village’s...

I would say this leaflet represents a step forward for the RCGPs, and suggests the ME deniers are losing their influence over the organisation as a whole. Certainly this leaflet also provides ammunition to use against the College in relation to their position on ME and their previous attempts...

Yes, I found the broader political background, particularly in relation to the Science Media Centre particularly interesting. Also it is interesting to hear that following Monbiot’s Guardian article there does not seem to have been any significant kickback from the BPS crew other than the...

Point taken.

Certainly, I have no faith that the current Cochrane set up is capable of producing an objective account of e exercise in relation to ME/CFS. At present any process looking at exercise intervention in relation ME/CFS is a waste of time. The current evidence base in relation to any activity...

As well as including the petition submission date as suggested by @bobbler, is it relevant to record here the promise made by Cochrane to us to overhaul their complaints process, after much prevarication in response to our questions and then formal complaints, and their stated intent to...

We should remember that most of the UK ME/CFS specialist services were set up to rehabilitate on the basis of GET/CBT around the time of the old NICE guidelines, and also that the basis of most NHS rehab services is to establish current functioning and increase performance levels in increments...

My previous GP was helpful when I was well enough to travel in that when I went on longer trips, such as China or Antarctica in that I always had a range of migraine, anti nausea and anti diarrhoea medication. So much that I worried going through customs. Also once I identified my food...

I had a brief episode of IBS (lasting between one and two months) following salmonella poisoning, some years prior to my ME onset. Then it resumed with a vengeance following the glandular fever (EBV) that coincided with (that triggered?) my ME onset. Only once I had discovered and largely...

I wonder, at least in relation to the Project Website, if somethings is happening soon, given Hilda Bastian is holding back at least some comments on her blog awaiting moderation (at least two, @Trish’s for over three week and mine for some two weeks). Normally she is fairly prompt at responding...

I have been pondering Cochrane’s latest response to our communication posted on the 2023 Open Letter to Cochrane thread (https://www.s4me.info/threads/s4me-2023-open-letter-to-cochrane-request-for-action-on-the-me-cfs-exercise-therapy-review.34973/page-2) Yet again it has no one individually...

Also from 2021: Most Cochrane reviews have not been updated for more than 5 years. Hoffmeyer BD, Andersen MZ, Fonnes S, Rosenberg J See https://europepmc.org/article/med/34427395

Just found a potentially relevant article: Use of inactive Cochrane reviews in academia: A citation analysis Open access Published: 12 April 2023 Volume 128, pages 2923–2934, (2023) Bodil Hoffmeyer, Siv Fonnes, Kristoffer Andresen & Jacob Rosenberg see...