Search results

A very useful break down, but on top of that I have very variable symptoms which may (or may not) relate to different types of alcohol, for example the only time I had a rash over much of my torso followed a glass of red wine, but then I had a migraine a couple of hours after a bottle of wheat...

I would argue we have clear evidence for the presence of ‘delusional disorder’ under the authors’ definition. On the part of the authors, that is. What is worrying is that we are also seeing clear examples of social transmission through research literature and academia.

Interesting that alcohol sensitivity has been picked up by researchers/medics recently for ME and now Long Covid, rather than any systematic attempt to address the wider issues of food sensitivities in general. I agree the alcohol sensitivity is of interest, but given the variability we see in...

I agree that Hilda is in an invidious position, but the current update, though drafted and to her credit very much pushed through by Hilda, is now an official statement by Cochrane, unlike Hilda’s personal blog, and so should be responded to as representing Cochrane’s current position. Also it...

Was it October when we were told our questions about timescales would be answered in a couple of weeks? However despite two official updates (Nov and Dec) on the Cochrane site and much discussion on Hilda’s personal blog, we are no wiser than we were in mid 2021 when previous updates stopped.

Interesting that there is no mention of the year or so delay due to objections by undisclosed parties to any replacement of the current 2019 version of the CFS Exercise Review, despite it being already recognised at publication by Cochrane to be flawed failing to address the recognised concerns...

Sadly mine has already been use lighting the stove.

For me a big concern with such as the Canadian system is that someone chronically ill who is experiencing suffering, not solely because of their condition but also because of the social and benefits culture they inhabit, is eligible for assisted dying. In this situation it is not clear that...

Though on the issue of disappearance it may be that the disappearance of Cochrane itself is more of a possibility than the disappearance of any review that retains the belief of any of its authors.

It is important to remember that DecodeME subjects are self selected, and though I don’t have any functional logical circuits at this time of night, so am unable to come up with a plausible hypothesis, it could be that the reasons people with long standing ME participated are different from the...

Definitely deserves to be widely shared.

Presumably, to state the obvious, the BPS dislike self help groups because they make it harder to gaslight patients into believing that it is faulty cognitions that perpetuate ME, that ME is purely fatigue and not a wider condition involving varied aspects such as PEM, orthostatic intolerance...

I can’t remember any of the sources but I think both White and Wessely have said in newspaper articles that membership of patient groups/forums may make CFS [worse] and hinder any recovery. [edited to add missing word]

Understanding variability in ME is so important. This may just be because symptoms and PEM involve complex interactions of cumulative physical, cognitive and emotional exertion over an unknown time span, hypersensitivities, orthostatic intolerance, food intolerances or because variability is...

Have not looked at the paper yet, but for me it is vital that any measure of PEM distinguishes it from more ‘rapid fatiguability’. In many conditions patients get fatigued by activity more rapidly and more readily than they would have been pre-morbidly. This is also true in ME and I assume in...

In the UK there is a rhetoric that the increase in numbers economically inactive reflects personal choice, that it is a behavioural issue, however that we continue to see an excess mortality would seem to counter this and suggest attempts to change behaviour by whatever means is unlikely to be...

Having red hair is associated with sun burn so it is obvious we need to manage ‘red hairness’ in order to prevent sun burn. Perhaps if people with red hair dyed their hair black all would be resolved. Although association is necessary in demonstrating causation, when will these people recognise...

If I remember correctly there were similar issues around the claim that red wine prevented coronary heart disease as in the UK heart failure was the go to cause of death when there was no reason to undertake an autopsy whereas in France it was not. So the difference in deaths due to coronary...

I always find myself worrying at various stages that the target won’t be met for David’s crowd fundings then there is a last minute surge. Great that David is continuing for another lap. Thank you @dave30th for your stubbornness, we benefit greatly from it.

I had an air fryer for about a year but did not get on with it. It was one my goddaughter had been given by the manufacturer in the hope she would promote it in her food videos. My goddaughter used it succesfully everyday while she was living here, but I did not get my head fully around how it...