Search results

Of course the irony being it favours excessive treatment by those claiming ME patients shouldn't undergo "excessive" testing to find a potentially treatable cause for their symptoms because the testing harms patients by reinforcing their belief that they are ill.

Jo Daniels? Is that Jo "Shopping Bags" Daniels? I wonder if it's symbolic that the person in the photo is using a shopping trolley?

I must admit I find the concept of needing to have "heroes" or even the concept of "evidence based medicine" a bit daft. I am talking about the concept here - not people who agree with it & not the author. There have been people in my life I have had a great deal of respect for. This shouldn't...

Not only is this drivel, it's derivative drivel.

To be fair - not all of them. I have had 2 really good ones. They explained to me the issues with the "normal" range. A third realizing I had a diagnosis of ME suggested a trial of T3 to see if that made any difference (in my case it made it worse). The snag is many of them are working under...

Who they hell is he to think he knows better than experienced medical specialists? These tin pot dictators need oversight & reining in when their power goes to their head!

Yep I saw that. And despaired. If ever there was a definition of cart before the horse this would be it. Endocrinologists should be completely up in arms about this. It's a massive empire building exercise.

I read an account once of a young rheumatoid arthritis patient. She was a pre teen when her symptoms started. They seemed a bit vague at first and gradually worsened. Naturally she was distressed. She was being left behind & felt left out me her friends and classmates as she couldn't keep...

Bolding mine - I've bolded the symptoms they've listed that are very common among people with thyroid disease. These are just a few of the many, many symptoms you can get. Not a single endocrinologist on the committee that I noticed. Just saying.

That could well be their logic but it could just as easily work the other way (I'm not saying it does mind). People with lower intelligence might not live in their heads so much and therefore be less likely to get wound up about things?

Sorry @strategist you missed out a couple of important questions on the list - Do researchers in the field of psychosomatic medicine tend to have a history of repressed childhood trauma? Do researchers in the field of psychosomatic medicine have negative feelings about carrying their own...

Financially I'm luckier than many as my husband has an income. However, one lesson I have learned very well is to take nothing for granted. Especially a person's health. Not only are benefits not enough to live on - They can be fiendishly complicated & almost impossible for those with...

:hug:

I think different people may experience PEM differently. Over the course of my illness how I have experienced PEM has varied. It may be that some.of the variation is due to increased sever but I think there's a lot more to it. In the earlier (and less severe years), once I started getting a...

From a quote in @Robert 1973 'post above Let's not forget the upheaval when a sudden illness that everyone assumes is temporary turns into a prolonged struggle that completely buggers up your life affecting your career, finances, relationships etc. That's a massive stress right there just...

Bolding mine. Beautifully put!

I find the casual framing of diabetes as a lifestyle choice fairly shocking. While admittedly Type 2 or insulin resistant diabetes may very well be controllable, if not reversible, through lifestyle choices I don't believe it's that cut and dried. It certainly wasn't to my neighbour who was...

Be careful what you wish for. While recognizing that someone 's abnormal or lack of recovery from an infection may be due to an increased genetic risk of developing ME, increased risk doesn't necessarily mean a person will develop it. I respect some might choose to be forewarned but it's worth...

I'm afraid it's a lot worse than that @Samuel. Though I am sure Whitney often wishes himself somewhere wonderful taking beautiful photos the neglect of this disease over decades means he can't so much as get a drink of water, shower, or speak to a friend by himself. I wouldn't use the words...

True. If someone developed a condition like POTS prior to having the chance to develop one's intelligence or prove that level via career achievements. How does one then explain the doctors, engineers, scientists and lawyers who develop these same conditions?