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When initially diagnosed with hypothyroidism, or if a test shows that you need to increase your dose you have to allow time for the dose to come up. It can take weeks or more for the optimum dose to take effect. This is why they tend to retest up to 12 (no less than 8) weeks later Trying to...

Well, the 6 month mark is where the claims for PHI should start going in. Earlier for benefits claims. Very important to get the illness denial in first. If you can label a person as having health anxiety, a shirker, malingerer, having abnormal illness beliefs, being a member of a support...

...and of course some symptoms of hyper can be similar to anxiety so she may well be assuming that some of your reluctance is down to feeling of anxiety magnifying concerns over treatment. :( I can understand some of her concerns if you are over - thyroidtoxicosis can lead to loss of bone...

Absolutely. In the lead up to my diagnosis my thyroid function was cycling through producing too much hormone & too little. When I finally had tests done the doc was convinced I was hyper rather than hypo because I was a bit underweight and had some hypo symptoms. The results showed my TSH...

Now that, my friend, is a whole new can of worms. According to the powers that be in the UK, unless symptomatic a yearly thyroid function test should be sufficient. However, according to my endo (sadly now retired, demand for thyroid hormone and thyroid output do fluctuate. Not as...

Something else dawned on me about those lucky enough to have apparently recovered. Whose to say that catching this virus isn't setting the scene for problems 10 or 15 years down the line? We just don't know enough about it to confidently say anything. I hope I'm completely wrong, and I don't...

I agree some feel that just because an experience is true for them it is true for all. I spent a fair amount of time hanging out with cancer patients years back. I was well enough for a regularish yoga practise and my local instructor had a lot of links into local cancer groups. I was often...

No. At least that's not my understanding. The philosophical approach that's developed about illness since the 80s possibly. Even that's been driven more by the attitudes & needs & greed of insurance companies, governments in trying to limit benefits and those eager to find a niche and make a...

From my own experience of brief bouts of childhood illness where I would be left too weak to stand and from playing seasonal sports where you have to train up at the start of the season I completely agree with the points you made. The deconditioning argument never stacked up. This situation...

I expect you're right and more letters like these will pop up. The BPS brigade will want GET centres to remain open. There may well be patients who do not have ME who respond to treatment so let them but with strongly enforced provisos - Safety first - according to patients GET harms more...

In addition to actively encouraging and giving governments and insurance companies excuses to use to deny much needed financial and practical assistance.

I didn't read it that way at all! :hug: I probably could have been much clearer in what I was trying to get at.

Yep I understand what you mean @Kitty, but if we compared hundreds of answers of mild, moderate, severe, newly ill, 5 years in, 25 years in and diced and sliced the data with say the results of Lenny Jason's previous work on PEM would it further our overall understanding. Is it something that...

Sure, we know the answers in general terms. They've been known, and sadly ignored, for decades. What I'm getting at is if we could somehow develop a template of PEM, its symptoms, it's triggers etc. ,- the negatives if you like and overlay that with the mitigating factors - as the questions...

They certainly lack humility and may well lack curiosity but I don't for one second believe these guys are stupid. In the early days, sure, they would be more likely to see a certain type of patient. Since then they have flatly refused to.listen to other doctors with different patient groups...

I suspect this was deliberate. Anything they've said in the subject has always been to either deflect hard questions & criticism or simply to muddy the waters. Wessely, Sharpe, Chalder the whole cabal have been in the game long enough and have had the platform to clarify what exactly they are...

There is some truth here. Years ago my ME consultant, who had contact with Wessely, actually said to me that when he heard Wessely speak about his ME patients they sounded very different to the ME patients he sees. Of course part of that difference may well be down to the rubbish...

Looking at the references throughout I think this is a marvellous example of GIGO. The opinions of his mentors are largely unverifiable in a field that, even today, doesn't come close to conforming to standard best practice in other fields of medicine. From the first paragraph quoted by...

Maybe if we knock some ideas around ourselves & see if someone like Lenny Jason might take it further - his team have done the best work so far. I wonder if it would be worth listing - 1 what specifically helps reduce the risk or severity of PEM - beyond general pacing 2 what, if anything...

Anything that might eventually give even a tiny improvement is worth considering. However, something they don't seem to acknowledge is that it can take a very long time for a very tiny, if worthwhile, improvement. That tiny improvement can be completely wiped out by all sorts of things...