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Bolding mine. Well, I was always told I didn't seem the type to suffer fools gladly nor blindly believe what I was told without checking it out for myself & I'm happy to find myself among others with similar pre morbid personality traits. Welcome...we like rigorous scientific research, we...

Just got my appointment on Friday for the first vaccine. I'll let you know how I get on.

I think it's a great idea @Kitty.

Yet with a fluctuating condition there can be a prominent mismatch. Sometimes a person can be bedbound, sometimes able to go out for most of a morning or take a long walk. Even attend a social event. The problem is, when filming, you can't always see an invisible illness. I think an honest...

N=1 perspective but I rarely volunteer. Partly due to the effort involved because I am very cautious about anyone who might want to write to my GP and thus add something to my medical records - note the GWAS allows you to deny access to medical records. Partly deep suspicion and scepticism...

I suspect that may be true of many who don't have much experience with pwME. I don't for one minute believe that Chalder, Wessley, Sharpe, Crawley et al misunderstand. Maybe they did once at the very beginning but that time has long since passed. The misunderstanding by other, possibly well...

See now, if you'd asked the universe it would have presented you with a plan! :laugh:

I've obviously p****d the universe off at some point then. That or it's got an evil sense of humour. Anytime I've had a small financial windfall it's been promptly followed by an unexpected bill for the same amount if not higher. I've never had a big windfall - maybe I aimed too low...

You're not alone there! When I was diagnosed with ME I was so relieved! For a minute there I was worried, I thought I was really sick! :rolleyes: All I knew about ME was what I'd read in the newspaper and I hadn't really taken much of an interest. I knew I was a fairly logical person, I...

It can zap your energy and lead to a lot of self blame and guilt.

I agree with what you've said but that wasn't quite how I read the post you responded to. In the absence research and answers people are bound to try and make sense if things. Sometimes they'll be right and sometimes they'll be wrong. Most of us do so with a fairly positive mindset. It's not...

"I got completely frightened that I’d be ill the next day. If you expect things to happen then they do." i know Garner was talking about Covid in this tweet but .... really? Most pwME just don't think like this. Even with CFS clinics and GET the first thing they say they usually have to do...

Quite, quite wrong. Of course there's a mind body connection. Whatever the mind is exactly. We just object to fairy tales and assumptions that aren't backed by solid, rigorous research being taken as gospel. As for anything to do with exercise therapy being rejected....... No just therapies...

I can imagine some of them are not well enough to even be able to reach out and seek help. If not well enough without assistance and when the only assistant you have is the person abusing you.....

Great blog @Michiel Tack :thumbup: Once again it often comes down to blind bias & an inflated confidence i their own judgement by people who are well educated enough to know far better. We all judge, sometimes blindly, but when we allow these judgements to take over unfiltered and unquestioned...

I don't quite know what to make of it. On the one hand Ruqsana does us no favours in that others look at her then look at someone like me and want to know why I can't achieve something at as high a level as she can. That's not her fault though. That's society's blinkered view of sickness and...

They didn't find it because they didn't look, I'm afraid. PACE trial participants have said they tries to report harms and were ignored. Activity monitoring, the only objective evidence in the trial apart from return to work or benefit claims which could have demonstrated a reduction in...

I may be wrong but as Peter White claims to have retired is it still appropriate to say "Prof Peter White Queen Mary University of London"? Shouldn't the word Emeritus at least appear?

Not strictly true. A close relative works for a newspaper group (not a journalist). It depends on the paper & they have changed over the years but advertising is still very important to at least some.

My GP gave me diazepam to try but it did nothing. I couldn't handle amitriptyline side effects. Or any SSRIs or NSRIs at low dose unfortunately.