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Bolding mine. Am I being particularly obtuse here? If they don't listen in the first place how will they be able to help with the physical symptoms? Especially if they just make knee jerk attributions to the causes of those symptoms. If I want a therapist I'll book an appointment to.go.see...

Yes, but take heart. It's not going to do their careers much good if they go around making claims like that against The Research Council of Norway. Just like those now attempting to say NICE have been pressured by the patient group, all they will succeed in doing is smearing themselves. They...

From paragraph 1 in @Midnattsol 's post #1280 No. They are still medically unexplained. There are BPS theories which are unproven and unfalsifiable. There are 30+ years of history that demonstrates that therapies based on these theories do not work. PACE & FINE proved they do not work...

That's because the "evidence base" is deeply flawed. It's so bad that despite decades of the best efforts by the finest minds in Team BPS it proves that GET & CBT do not work for ME and probably not for much else. If you're using the wrong treatment, a treatment that fails to help.the...

From the article This again. Many of us were relieved to be diagnosed with ME or CFS. Many of us got sick before the arrival of Dr Google or any other search engine for that matter & knew nothing about it apart from it was something that happened to yuppies or what the BPS reported to the...

Yep. I stood on a fire ants nest, wearing a pair of flip flops one day. I was stood there for a good 5 minutes as a neighbour wanted to talk to me about something really important. I was in pain anyway and feeling lots of stinging on my feet & lower legs. My neighbour didn't notice a thing...

Yeah. It's depressing just how successful those who purport to lead can be though! It's like running a trial to see if something works or is safe and doing neither. :whistle:

Bolding mine. I completely agree with you that's how it's supposed to be. Doesn't mean that's how it will be though.

Finally, a "living" guideline. Hopefully, this heralds an end to guidelines set in tablets of stone and only overturned when the weakest and sickest affected by them.manage to get together to chisel a new tablet from the rockface and bodily drag it to the powers that be.

I think the problem isn't necessarily those reviews in themselves but what withdrawing those reviews might mean for the ever burgeoning rehabilitation industry and ever expanding mental -health -lite services. With the reviews standing people can carry on blithely making the statement "proven...

I think there's a danger in assuming that because we don't hear about it, it isn't happening. Only a small proportion of the cases in the UK come to light. I have been involved in a case with the child of a close relative, a child who was being put at considerable risk of imminent harm & whose...

I filled this in as I do not want to donate organs and risk some poor unfortunate who needs a transplant being condemned to a life of unnecessary disability because I've given them ME as well. Got a letter this morning from NHS Blood and Tissue confirming that I have opted not to donate...

Exactly that. This is what has happens with young people in the UK and has been the justification for forcibly removing them from their home. Parents are put in the d***ed if you do, d***ed if you don't position. They either go along with treatment that will make their child worse or face...

For anyone who stops and thinks for a moment that is completely the wrong way around. Sure men typically played sports that were more violent & where injury was more likely. On the other hand women generally weren't supposed to go around discussing or whinging about *ahem "women's trouble" *...

We already knew that something like 46% of patients referred to specialist CFS clinics were misdiagnosed. That doesn't include people with ME who were referred to other specialities because they were misdiagnosed with something else. To psychiatry for depression or neurology for suspected MS...

As far as the BPS crew are concerned consequences are for other people.

Exactly. When it comes to BPS codswallop then someone showing no objective signs of improved function are believed when they say they are recovered but not when they they say they feel worse. Similarly, if someone says their pain levels improved that's great but we tend to be less supportive &...

Well done @Mij I think I managed to chop the end of the link!

A number of posts have been moved into this thread. That you know of. Remember most of these cases don't come to light until after the event and parents of children may be gagged by family courts. There's the US (Boston) case of Justine Pelletier who has a mitochondrial disorder I believe...

I have had to do this. I wrote a polite letter to the consultant involved explaining what was wrong and why, keeping it as brief and to the point as possible. I also made sure to thank them for their time and care. Then I waited to see what response I got. I got a reply but the GP wasn't...