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Yeah funnily enough I didn’t need any blood tests to work that one out.

If I’m doing a social activity like the funeral I went to yesterday it gets to a point where my energy level is much lower than my normal day to day. Everything is harder to do and pain is higher I find myself basically pretty grumpy about everything and keeping up a veneer of pleasant is...

Variable condition is variable

Catherine Hale, Astriid listed as involved in POST board Also lists Fran Springfield from Chronic Illness Inclusion as a reviewer/contributor to the report

https://www.nhs.uk/conditions/multiple-sclerosis/diagnosis/ Multiple Sclerosis as an example where even when there are tests there’s no single test that’s guaranteed to show it.

I wonder if therapies in the plural means the CBT sausage machine is falling out of favour and more patient centred approaches will be available.

In my view although this is long if you do the whole thing it is better notably it actually asks about how many days in the last 30 days did your illness prevent/affect you doing basic activities.

Burden of patient hood - stigmatisation perhaps?

In circumstances when you have little choice about undergoing CBT there’s definitely one positive about the concept of short CBT. On IAPT I was given the opportunity of finishing after 6 sessions rather than 8 - which wasn’t something I hesitated over :whistle:

History of chronic widespread pain prior to diagnosis in people who then get diagnosed with fibromyalgia well knock me down with a feather :whistle:

Yes something of a Trojan horse for FND……..

Just did my kit last week. Posted Tuesday afternoon and I got the receipt email Saturday.

More machine-ifying of the sausage machine In my experience of low intensity CBT with IAPT the young woman was already pretty much robotically sticking to a script for our 30 min sessions. It would be more honest to have it delivered by AI.

Maybe it’s better his involvement is out in the open, as being a behind the scenes influence is completely unaccountable

Am I wrong in thinking this is a positive from ME perspective?

hi @SunnyK im not familiar with these acronyms

I assumed it was about the circles and the recycling of old psychosomatic ideas to the consequences of the latest virus

It will be interesting to see whether she actually tackles this when she realises how entrenched in their views they are or if she does a 180 a la Garner

I would hope for less hyping of early and not significant findings.

The researchers seem to have a very elongated definition of soon