I’ve had Covid once and I will still wear a mask if I have to go into crowded space as even though it wasn’t severe I don’t want it again as I felt awful and had the worst sore throat I’ve ever had.
It’s still ongoing so the focus of project should be and no doubt is on what could be done to expand publicity, coming up with ideas and the community needs to keep doing whatever is within their capacity.
Anything social media needs regular repetition. Also as individuals don’t feel...
I think it’s correct that pacing is not just breaking activities down. I call that micro pacing. The first level correctly highlighted by Hutan above is macro pacing - decisions about whether activity can be done at all and about managing timeframes across a week, a month, several months...
I don’t know the ins and outs of patient recruitment but I think having 17,000 questionnaire results and so far 9000 DNA samples is not to be sneezed at. No other MECFS research group have achieved this. I hope ways to boost the numbers will be worked out.
It’s a challenge given the current state of things generally in the health service being a potential excuse to be deployed for inactivity by them nevertheless I would like to see a call to action to BACME to publicise DecodeME to their current and former patients.
Hi @Sallycatherineharris.I’m sorry you had a fall, nasty one as you broke your hip, you must have been pretty bruised and shaken up. It’s only 4 weeks ago these things take time to get over even for healthy people. You have ME to contend with as well, unfortunately as @Kitty says that’s very...
Despite it all being old news information to us the fact that it’s badged with Covid 19 is no doubt meaning that people who wouldn’t hear these same messages about ME will get to learn what is to them new information so I think that’s a benefit. Hopefully the researchers will be able to follow...
My limited experience of doing Tai Chi and yoga when I was healthy is that albeit the movement is smooth and not jarring it is like dance a question of holding yourself in positions and moving through them in a controlled way. This is beneficial for healthy people in postural and muscle...
Here is the announcement by U.K. committee on vaccines about the proposed new approach for 2023 it’s fairly straightforward to understand without needing interpretation
https://www.gov.uk/government/news/jcvi-advises-an-autumn-covid-19-vaccine-booster
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