Search results

  1. NelliePledge

    A new paradigm is needed to explain long COVID, Saunders et al 2023

    Good to see the involvement of Professor Tyson. Hopefully she can help get the message out to her profession.
  2. NelliePledge

    News from Scotland

    Presume this is the statement on behalf of the Scottish Government in closing the debate rather than an SNP policy statement.
  3. NelliePledge

    USA: Dr Eric Gordon

    $97….. to be bombarded with marketing
  4. NelliePledge

    Cochrane: Physical interventions to interrupt or reduce the spread of respiratory viruses, 2023, Jefferson et al

    I’ve had Covid once and I will still wear a mask if I have to go into crowded space as even though it wasn’t severe I don’t want it again as I felt awful and had the worst sore throat I’ve ever had.
  5. NelliePledge

    Closed UK: DecodeME updates, was recruitment thread.

    It’s still ongoing so the focus of project should be and no doubt is on what could be done to expand publicity, coming up with ideas and the community needs to keep doing whatever is within their capacity. Anything social media needs regular repetition. Also as individuals don’t feel...
  6. NelliePledge

    Rethinking the Standard of Care for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, 2019, Friedberg, Sunnquist and Nacul

    I think it’s correct that pacing is not just breaking activities down. I call that micro pacing. The first level correctly highlighted by Hutan above is macro pacing - decisions about whether activity can be done at all and about managing timeframes across a week, a month, several months...
  7. NelliePledge

    Closed UK: DecodeME updates, was recruitment thread.

    I don’t know the ins and outs of patient recruitment but I think having 17,000 questionnaire results and so far 9000 DNA samples is not to be sneezed at. No other MECFS research group have achieved this. I hope ways to boost the numbers will be worked out.
  8. NelliePledge

    Closed UK: DecodeME updates, was recruitment thread.

    It’s a challenge given the current state of things generally in the health service being a potential excuse to be deployed for inactivity by them nevertheless I would like to see a call to action to BACME to publicise DecodeME to their current and former patients.
  9. NelliePledge

    Preprint: Prediction of Long COVID Based on Severity of Initial COVID-19 Infection: Differences in predictive feature sets... 2023 Socia et al

    Presumably the normal usage of the term functional rather than the euphemism for psychosomatic
  10. NelliePledge

    ME payback timescales from trauma and recovery

    Hi @Sallycatherineharris.I’m sorry you had a fall, nasty one as you broke your hip, you must have been pretty bruised and shaken up. It’s only 4 weeks ago these things take time to get over even for healthy people. You have ME to contend with as well, unfortunately as @Kitty says that’s very...
  11. NelliePledge

    Beyond the case numbers: Social determinants and contextual factors in patient narratives of recovery from COVID-19 2023 Hitch et al

    Despite it all being old news information to us the fact that it’s badged with Covid 19 is no doubt meaning that people who wouldn’t hear these same messages about ME will get to learn what is to them new information so I think that’s a benefit. Hopefully the researchers will be able to follow...
  12. NelliePledge

    Towards evidence-based and inclusive models of peer support for long covid: A hermeneutic systematic review 2023 Mullard, Greenhalgh et al

    Would be interesting to see Greenhalgh interviewed by @dave30th if that could happen
  13. NelliePledge

    Effects of Yijinjing Qigongin Alleviating Fatigue, Sleep Quality and Health Status on Patients with Chronic Fatigue Syndrome: ... 2023 Xie et al

    My limited experience of doing Tai Chi and yoga when I was healthy is that albeit the movement is smooth and not jarring it is like dance a question of holding yourself in positions and moving through them in a controlled way. This is beneficial for healthy people in postural and muscle...
  14. NelliePledge

    Covid-19 vaccines and vaccinations

    Here is the announcement by U.K. committee on vaccines about the proposed new approach for 2023 it’s fairly straightforward to understand without needing interpretation https://www.gov.uk/government/news/jcvi-advises-an-autumn-covid-19-vaccine-booster
  15. NelliePledge

    The $10 test

    I kept attending because I wanted the box ticked.
Back
Top