Search results

  1. NelliePledge

    UK: All Party Parliamentary Group (APPG) on ME news, 2020 onward

    Plus even if they don’t reconstitute the APPG which I think would be a mistake AFME has created the role of Parliamentary Champion which presumably could be adopted for more MPs my candidate who has expressed an interest in getting involved was elected so I will be in touch with her to try to...
  2. NelliePledge

    UK: All Party Parliamentary Group (APPG) on ME news, 2020 onward

    Sharon Hodgson Debbie Abrahams possibly candidates for ministerial posts of some kind. Which depending on the role could in itself be good but obviously new backbenchers are needed for the APPG Alex Chalk who was involved in the House of Commons debates but then promoted into government has...
  3. NelliePledge

    Preprint Management of Nutritional Failure in People with Severe ME/CFS: Review of the Case for Supplementing NICE Guideline NG206, 2024, Edwards (Qeios)

    Knitting existing pieces together to make what to do obvious is still a form of new guidance when existing information isn’t being followed.
  4. NelliePledge

    Deep phenotyping of post-infectious myalgic encephalomyelitis/chronic fatigue syndrome, 2024, Walitt et al

    :wtf: Caffeine and sugar helped me push through lack of energy at work for a few years when I had mild/undiagnosed ME. Which certainly didn’t help with my sleep which was pretty good before my gradual onset started. And didn’t stop me ending up moderate and having to retire. I avoid both...
  5. NelliePledge

    Acceptability and feasibility of a theatre-based wellness programme to support people living with long COVID, 2024, Burton et al.

    No it should not @Kitty sounds like a beano to me presumably the research people had to trial it before putting together their project, nice day or so away from doing proper work.
  6. NelliePledge

    Review Functional neurological disorder, physical activity and exercise: What we know and what we can learn from comorbid disorders 2024 Boylan et al

    Wow. “Favours pacing over GET/CBT”. Nope that’s a misrepresentation. Unlike you lot it actually accepts that GET can cause harm. You prefer to rely on low/very low quality research.
  7. NelliePledge

    Well-known, famous people with Covid-19 and Long Covid

    Yes @Mij she has been on a reality tv programme
  8. NelliePledge

    A therapist told me she could fix my life. Then she destroyed it

    On similar lines I recently watched the documentary a very British cult https://amp.theguardian.com/tv-and-radio/2023/apr/05/a-very-british-cult-review-lighthouse-bbc-documentary which was all about a guy who set up a personal coaching company to fleece people of their money. He basically...
  9. NelliePledge

    Family healthcare patterns as a proxy for transgenerational transmission of functional somatic symptoms in early childhood... 2024 Hogendoorn et al

    Yeah unfathomable that members of a family living in insecure accommodation on low income would all suffer worse health than average family
  10. NelliePledge

    The effects of a structured communication tool in patients with medically unexplained physical symptoms: a cluster randomized trial 2023 Abrahamsen

    That red flag quote is brilliant @rvallee very Blackadder Which is appropriate as these so called researchers are behaving like they are in a sitcom about psychological research.
  11. NelliePledge

    First test for long Covid gets EU approval, August 2022 - IncellDx incellKINE Long COVID test

    What does “capable of determining” Long Covid Lyme Disease or ME/CFS actually mean here. The stuff in the link only mentions Long Covid It isn’t actually saying in black & white that it can distinguish
  12. NelliePledge

    Brian Walitt and his role leading ME/CFS research at the USA NIH

    Nath has been before hasn’t he. If I were him I would be insisting Wallit came along to deal with the flak W has generated rather than covering for him myself. I hope they have been having words in Naths ear as well. “your choice of sidekick - big mistake mate. Making you look like a numpty”
  13. NelliePledge

    Brian Walitt and his role leading ME/CFS research at the USA NIH

    Good I hope she made him squirm
  14. NelliePledge

    Brian Walitt and his role leading ME/CFS research at the USA NIH

    Well I hope some of those present challenged him??
Back
Top Bottom