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Don’t they have something like this in schools that kids and parents have to sign up to when there behavioural problems.

:hug: :hug: @ahimsa

Thanks @Jonathan Edwards my brain isn’t up to much currently

they have no control on how it would be interpreted by others ticking things off on checklists for state benefits private insurance or ill health pensions So can’t say truthfully there is no penalty

Sorry can I ask which document these quotes are from I think I missed something

I don’t have side effects from 2 lots of tablets I’ve been taking for 20 years

Discretionary exercise for the sake of it is way off topic for people who have to pace activity of daily living.

Wrong emphasis should have been focus on BACME and saying in view of all this the charities should be more sceptical of BACME. as others have said I have had criticisms of the charities in the past and some ongoing issues where I disagree but on some aspects both have shown progress- AFME...

Ugh

Well washing - my brain blocks on well dressing. ( @Peter Trewhitt @Kitty ) :confused: https://www.historic-uk.com/CultureUK/Well-Dressing/

Hi all does anyone have suggestions about transcripts of the dialogues videos @Samuel asked for help here https://www.s4me.info/threads/impact-of-chronic-fatigue-syndrome-cfs-me-on-identity-construction-among-young-adults.38156/page-3#post-527581

I couldn’t see anything on the website @Samuel maybe others have ideas

Recovery washing is probably what I’ve been searching for in my brain but couldn’t get it to surface It can include someone deeming a PWME or any chronically ill person to be recovered even when the person categorically rejects that. It can also include a process of gaslighting PWME into...

Comes from dementia research https://www.exeter.ac.uk/research/dementia-research/research/protect/

The draft plan that set a timetable including updating the NHS website by March 2024 :whistle: not quite at Cochrane standard of procrastination but on the same spectrum

I recommend watching the dialogues videos https://www.dialogues-mecfs.co.uk/films/severeme/

Hi I assume you had to put forward a protocol for the project to get ethical approval that’s the sort of information I meant

Is there a protocol document

Yes excellent stuff @dave30th That SMC angle could be useful. I wonder if private eye would pick up on it. Obviously their medical person is an ex colleague of Crawley so they haven’t done anything but their non medical people might go with SMC side.

I wonder if those attending will be able to ask questions?