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Wow what a word - photo………

Interesting that step count is useable with older adults with arthritis……..

So Wallit isn’t preferring to make the effort to present his own pet theory himself, classy :whistle:

My understanding is that the briefings in the HoC Library are put together by the library staff.

I think AFME or maybe Forward ME had been looking into it

Maybe it was around lucky timing @Kitty. i was under the impression from looking into it for a relative that they have a fixed pot every year as the council in that area closed applications until they got the next year’s pot.

Others will probably have actual experience of this and maybe I’m wrong but the proposal around changing to vouchers to help with adaptations doesn’t appear in any event to be something new because the Disabled Facilities Grant already exists. Albeit that you have to apply to your local council...

I would eat my hat if the percentages didn’t match those 30% of ICBs who have some kind of legacy PACE style CFS clinic ie some existing resource allocated, with the 70% being those ICBs that never had any provision.

Yes I was thinking oh he’s going to say showering or brushing teeth. But no. He needs to see the videos. When I was still on Twitter I followed Andrew G he seems like a decent bloke.

The minister didn’t actually say it wouldn’t be before the election, they could go right to January in theory so later this year would be before that. The inference I drew from between the lines of his comments is that the consultation has thrown up more issues than politicians and civil...

Shocking

Huge congratulations on reaching £50k that’s a fantastic achievement. Would be great to see you on the One show or Lorraine or something to get some credit :hug:

Just thought it would be worth flagging up the petition to members who have joined the forum in recent weeks we are asking Cochrane to withdraw their review of exercise therapy for CFS. the petition is staying open for signatures in the absence of action by Cochrane we’d appreciate your...

We don’t know how fixed being in a particular subset is given there are people who start off relatively mild who become severe or very severe.

Yeah I was involved in commissioning a couple of pieces of qualitative research for the department I worked for to find out real people’s experiences of complaining about dealing with us, and also asking a range of disabled people what their issues were with the service we were or weren’t...

@yannlk I’m assuming if there is an organisation Millions Missing France are likely to know info@millionsmissing.fr :hug:

Dry eyes more common as we age

Major stress episodes such as problems with finances, housing, relationship, relatives illness can last weeks months,years even.

I’ve only skimmed your post Bobbler but I noticed you used the word coercion and that is where I was coming from comparing it to action plans for naughty kids. PWME should have their care and support needs met not be bullied/shamed into activities that can easily exceed their capacity.

I seem to remember my parent had a care plan which listed all those involved such as social worker, lead health professional which was a community mental health person (dealing with dementia) listed gp, consultant etc also those family members directly involved. It was I think amended to reflect...