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  1. NelliePledge

    2024: NIH National Institutes of Health - ME/CFS Symposium on Intramural study - 2 May

    Yeah keep digging. If you’re the people doing the communication and people you’re allegedly communicating with don’t get what you’re attempting to say it’s your fault do a better job Don’t use double speak words and act surprised when people suspect you’re not being straight with them
  2. NelliePledge

    Open UK: Investigating family planning, pregnancy, and parenting for people with ME/CFS - the faMELy study

    Hi welcome @EmmaS302 I noticed your post mentions there are questions where you’re looking for input from those who haven’t experienced pregnancy or parenting as well as those who have. Also Is there anything about access to gynaecology treatment generally thats not related to family...
  3. NelliePledge

    USA: NIH National Institutes of Health news - latest ME/CFS webinar 14 Jan 2025

    I wonder if Nath will actually talk about ME/CFS rather than Long Covid this time
  4. NelliePledge

    A general thread on the PACE trial!

    Bumping @Adam pwme s request
  5. NelliePledge

    USA: The RECOVER Initiative - Long Covid research

    Physical activity being tracked by Fitbit……..
  6. NelliePledge

    News from the Baltic States - Estonia, Latvia, and Lithuania

    @Mike Harley probably did a marathon and have contacts??
  7. NelliePledge

    New Zealand: Dr Matthew Phillips, neurologist

    Ah ok I’ve heard of him - Allen Frances :thumbup:
  8. NelliePledge

    New Zealand: Dr Matthew Phillips, neurologist

    Not sure who Francis Allen is?
  9. NelliePledge

    Review The effect of massage on patients with chronic fatigue syndrome: A systematic review and meta-analysis 2024 Li et al

    I used to be all for deep tissue massage, balinese type was one of the best ever Last 8 years I can only tolerate light massage and limited to 30 minutes, face massage is good
  10. NelliePledge

    Petition: S4ME 2023 - Cochrane: Withdraw the harmful 2019 Exercise therapy for CFS review

    For any members or readers who are doing blogs or social media posts for ME awareness this month please consider a link to the petition https://chng.it/zTZ7vX9Czd even if you’ve posted before it is always worth reposting as people miss posts, forget to sign, your post doesn’t get through due to...
  11. NelliePledge

    UK Parliament: Westminster Hall debate on ME/CFS, Wednesday 1st May 2024, 16.30 - 17.30

    @Fleur there have been 4 different prime ministers in place over the period since the last parliamentary debates on ME so unfortunately changes of cabinet and junior ministers flow from that. Which certainly makes things more challenging for departments as ministers like to make their mark and...
  12. NelliePledge

    Trial Report Functional Limitations and Exercise Intolerance in Patients With Post-COVID Condition A Randomized Crossover Clinical Trial, 2024, Tryfonos et al

    -during my cfs clinic “management” course I was working part time 3 days and in order to do the clinic sessions after trying to do the extra day on non working day I had to drop a work day in order to manage to keep attending.
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