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  1. Nightsong

    Why is ME/CFS getting so little research funding?

    One often overlooked reason is medical education: rare is the medical student who has never been taught "not to reinforce psychosomatic presentations", or something similar. If you have been taught to believe that sympathy with or even genuine acknowledgement of a patient's suffering may result...
  2. Nightsong

    NICE ME/CFS guideline - draft published for consultation - 10th November 2020

    I wasn't arguing for an entirely separate ME service, @Jonathan Edwards, but against the uniform approach of the PPS/MUS clinics in particular. I'd be entirely happy for ME patients to be seen in general clinics - I was originally diagnosed in a general clinic by an endocrinologist. Also, with...
  3. Nightsong

    United Kingdom: Sheffield ME & Fibromyalgia Group News

    She's mistaken; the development and peak popularity of psychosomatic medicine obviously predates this. I have in front of me a British medical text ca. 1950 that attributes some level of psychosomatic causation to peptic ulcer, "spastic and mucous colitis", chronic constipation and diarrhoea...
  4. Nightsong

    NICE ME/CFS guideline - draft published for consultation - 10th November 2020

    At the risk of taking this thread off-topic, I've been thinking about what may occur after the new guidelines are released, assuming of course that the committee doesn't buckle under the inevitable fusillade from the psychosomaticians. Most CCGs will surely expect their currently commissioned...
  5. Nightsong

    NICE ME/CFS guideline - draft published for consultation - 10th November 2020

    The section on the level of care needed to support those with severe and very severe impairment, and in particular the nature and extent of sensory sensitivites, is very welcome, having been ignored by CG53. The guidelines make frequent reference to health care professionals "who have training...
  6. Nightsong

    BACME: Position Paper on the management of Myalgic Encephalomyelitis/ Chronic Fatigue Syndrome (ME/CFS), Oct 2020

    I'm a little late to noticing this new BACME position paper, but a few brief comments: BACME should be challenged to explain what they understand to be "the biological aspects of ME/CFS" - I'd expect a vague statement about abnormal stress responses or similar such handwaving. They do not...
  7. Nightsong

    Daily persistent headache after viral illness during a worldwide pandemic ...: Lessons from 1890 Russian/Asiatic flu, 2020, Rosen

    I've had a diagnosis of NDPH from a number of years ago, as I developed a new-onset headache with the infection that led to my developing ME, and the headaches were serious enough for me to request a neurology referral. After an MRI to exclude secondary headache and after trying a number of...
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