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  1. Nightsong

    Edward Shorter’s view of Chronic Fatigue Syndrome

    An excellent review, @Michiel Tack. You cited Shorter's Feb 23 2015 blog on Psychology Today - you might be interested to know that that particular blog was a revision of a post made on Feb 19 2015 which was far more revealing (and far more abusive). The original was removed from Psychology...
  2. Nightsong

    UK: Petition: Specify ME/CFS on the list of neurological conditions under group 6 for UK Covid19 vaccine

    My first reaction was the same as that of yours, Prof. Edwards, but now I'm not so sure. We know that the development of ME/CFS can be dependent upon the severity of a precipitating infection (Dubbo et al. "the syndrome was predicted largely by the severity of the acute illness rather than by...
  3. Nightsong

    British Medical Association article: Long Covid - we've been here before, 2021, J. Trueland

    Re David Strain, there's a little more about his research interests in this article, from December, in the Biomedical Scientist:
  4. Nightsong

    NICE ME/CFS guideline - draft published for consultation - 10th November 2020

    If this is indicative of the general quality of BPSer submissions, then we have absolutely nothing to worry about. The listed author is Ingrid B. Helland, who according to the employees page of the "national competence service", is a specialist in paediatric neurology. I wonder if she'd...
  5. Nightsong

    NICE ME/CFS guideline - submissions to the draft guideline consultation, December 2020

    From a quick skim: the advice on helping patients to manage their day-to-day lives with ME is generally very helpful indeed. The request for the inclusion of a reference to gradual as well as specific-onset ME is one I hope the committee will take up. The recognition that audits of existing...
  6. Nightsong

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    This is from the Dorset "COVID-19 Rehabilitation" guide. I've been browsing through some other NHS hospitals' post/long-COVID patient advice booklets; others include City & Hackney, Rotherham, Enderley, Blackpool, Leeds, Plymouth, Berkshire, and Sherwood Forest. The advice given is drearily...
  7. Nightsong

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Here's another early one, from Komaroff's contribution to the CIBA Conference in 1993:
  8. Nightsong

    POLL: physical vs cognitive PEM - same or different?

    In my own case, I experience PEM as being a state roughly akin to a severe flu (if one could experience flu denuded of fever and rhinorrhoea) which occurs almost solely in response to physical effort or exertion. Mental effort alone, by contrast, can trigger off a state of exhaustion - often...
  9. Nightsong

    Science for ME submission to the NICE draft ME/CFS guideline consultation, December 2020, and submission on substantive errors, August 2021

    That's a brilliant piece of work. Detailed, thorough, forensic, very impressive. Very pleased to see such a comprehensive dissection of the language in the draft (e.g. fixed vs. flexible increases), the wording of which might have allowed for GET-lite and psychotherapies to continue under the...
  10. Nightsong

    Psychosomatic medicine and the psychologising of physical diseases

    I don't think that was ever considered true in Britain. I've gone back to a very early medical text, the famous System of Medicine (1911), edited by Sir Clifford Allbutt, and the increased female prevalence was known back then: Other relevant quotes from SoM: I don't doubt it! I once saw a...
  11. Nightsong

    Psychosomatic medicine and the psychologising of physical diseases

    I'm not suggesting that patients with MS have never been misdiagnosed as psychiatric (in fact, I specifically made the point that some of the very early signs, depending on the presentation, might well be mistaken for CD). Other symptoms of MS (depression, fatigue, emotional lability) might also...
  12. Nightsong

    Psychosomatic medicine and the psychologising of physical diseases

    Don't wish to take the thread off-topic, but there's a claim in Solve M.E.'s letter: I do not know where this myth started, but I've seen it repeated by a number of pwME for many years. It is simply untrue. What we now easily recognise as the characteristic demyelinating lesions of multiple...
  13. Nightsong

    UK - NICE guideline on Long Covid

    Interesting. They're right to bemoan the lack of patient inclusivity and the "misguided" treatment that some of them have received, but: It's even more unwise to disregard what is already known about a condition that commonly presents post-virally and has an extraordinarily high level of...
  14. Nightsong

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    Unfortunately, Paul Garner accepted a somewhat psychosomatic framing of his illness in an earlier account back in June: The model his physiotherapist was describing sounds more akin to PTSD than ME. And a few of those with self-limiting PVFS also have a tendency to attribute their recovery...
  15. Nightsong

    U.K. trial Rehabilitation exercise and psychological support after Covid 19 infection (REGAIN) Warwick University

    On the 12th of November, NIHR announced a £20m research call, closing on the 9th of December: https://www.nihr.ac.uk/news/new-20m-call-for-research-into-physical-and-mental-effects-of-long-covid/26163 They also announced on the 10th of December that they were funding projects totalling £5.5m...
  16. Nightsong

    NICE ME/CFS guideline - draft published for consultation - 10th November 2020

    Is it common for non-British treatment centres to seek to involve themselves in NICE reviews? Looking at the CG53 table of comments and the stakeholder consultation comments from the 2017 10-year guideline update proposal - I see British charities and support groups, the Royal Colleges...
  17. Nightsong

    Lightning Process - discussion thread

    I don't wish to dwell too much on such a ludicrous aura-seeing, tarot-card reading huckster as Philip Kilvington Parker, but I recently came across his PhD thesis from September 2019, and thought others here might find it interesting. It's based around a close variant of the LP he called "The...
  18. Nightsong

    Fatigue and the mind-body relation: A Lacanian exploration, Diserholt, 2020 (PhD thesis)

    From the same author (emphases mine): Extraordinary that she can be awarded a PhD for her work on a condition of which she evinces no fundamental understanding whatsoever.
  19. Nightsong

    BPS attempts at psychologizing Long Covid

    The GP quoted in this article, Tomlinson, is also quoted here as saying "[t]here is no one for whom the problem of chronic pain is not a symptom of complex trauma." Such views would be laughable if they were not so deeply damaging.
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