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While Dr Cheney was well known in the U.S. for the compassion and care he provided to his ME/CFS patients over many years, I'm afraid that this presentation is not particularly creditable. He had some early clinical insight - he was able to differentiate between the CFS and the FM presentations...

Dr Tuller's (excellent) blog highlights one of the points Knoop made: Not new. This argument was also made by RCPsych in their responses to the NICE consultation (p1035 of the first comments table), where they say that "the general direction of travel is more in the opposite direction" - i.e...

I may be missing something here, but there seems to be something curious about the demographic data (p27) - e.g. summing the "Occupational status" column, you get 370. There were 470 patients, so what about the other 100? If you sum the "Marital status" column, you get 460, which is probably...

First thoughts after a very brief skim: the authors wrongly state that PEM is a required feature of the NICE 2007 guidelines (in fact, post-exertional fatigue was acceptable): Curious as to how they determine suitability for CBT: The questionnaires used: the Penn State Worry Questionnaire to...

The questions beginning "During the past 4 weeks, how much have you been bothered by any of the following problems" section are from PHQ-15 (PDF). The question series beginning "How much does your illness affect your life?" is from the Brief Illness Perception Questionnaire (BIPQ).

For anyone else curious about Garner's reading material, I've found a copy of this text here: PDF: https://ia600303.us.archive.org/10/items/viciouscirclesof00hurruoft/viciouscirclesof00hurruoft.pdf Other formats: https://archive.org/details/viciouscirclesof00hurruoft

There are also a number of examples of Long COVID clinics being integrated with IAPT, MUS/PPS services and liaison psychiatry in RCPsych's expert testimony to the NICE Long COVID GL...

Perhaps notable that the editor-in-chief of the Occupational Medicine journal also happens to be, as the President of the Faculty of Occupational Medicine, one of the named signatories to the RCP's sour-grapes statement about the new NICE guideline.

A Scottish Government (Health Improvement) hosted webinar for GPs on long COVID has been posted to YouTube; a copy of the slides is available here. One of the slides from this webinar was screenshotted & critiqued by one of the doctors with Long COVID who attended it last month. The intense...

Perhaps I should've said most senior interested physician. However, she has definitely been involved in producing materials for "CRESTA", their chronic fatigue service, as of last year, and is the only consultant physician listed in their management leaflet:

There is a little hint on p478 that a therapist may have written, or co-authored, the Newcastle' clinic's response: Nonetheless, it seems likely that Newton, as the clinic lead, would have signed off on it.

I'm not sure I'd draw that parallel - never seen any evidence of any increased incidence of coagulopathies in ME/CFS, although there are many such reports post COVID (e.g. there was a podcast featuring a doctor who thought he had ME but turned out to have a nonocclusive CVST featured on S4ME a...

One of the complaints in the stakeholder consultation responses is that the data extraction occurred at the longest follow-up period available (e.g. 134 weeks rather than the 52-week primary endpoint in PACE). The committee's response to one such comment says that this was "as specified in the...

As Dr Wall is the director of clinical commissioning for Bolton CCG, perhaps someone on Twitter could flag this to the charities for their liaison efforts? Could be a useful ally. Another aspect to the coding issue is that large coded data sets are increasingly being used for research; e.g...

I don't think the NICE Pathways document has yet been posted: https://pathways.nice.org.uk/pathways/me-chronic-fatigue-syndrome There's also a PDF version.

Perhaps, but the list of invitees was passed to stakeholders beforehand (post here). No rehab specialist organisations on the list.

Also, strangely, in the minutes of the round table, Lynne Turner-Stokes appears to have no organisational affiliation, being listed as "Rehabilitation Medicine Specialist". (I'd assume that she's involved with RCP London's Rehab Medicine JSC, but, if so, why isn't that stated?)

So, (some of) the Royal Colleges have turned their attention to commissioning, which we always knew would be the next battle to fight. Which patient groups are these? Are they referring to the RT? Again, sounds as though they're being influenced more by the rehab-medicine crowd like Wade &...

The minutes of the Round Table are also there, and I have a concern as to NICE's take on CBT (emphasis mine): "In the main, what is being delivered matches what the guideline recommends." (!) "NICE explained that the wording in the guideline reflects the change in emphasis of the...

And the SMC weighs in: https://www.sciencemediacentre.org/expert-reaction-to-updated-nice-guideline-on-diagnosis-and-management-of-me-cfs/ Somewhat more balanced than the selections of quotes that they've published previously on ME.