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Between the general cultural risk aversion, regulation & compliance issues and under-funding, adoption of new technologies in the NHS is always sluggish but it's curious that there seems to be such resistance to wearables from some quarters. About 12 or 13 years ago I did a number of...

This isn't just false, it's a lie. Among "medical communities" the dominant view is manifestly the psychosomatic one, and it has been for decades. The fact that that is changing is probably what inspires "research" such as this. Anyone who thinks that you can determine "how people got better"...

After a very quick skim: There's a lot of this, & the usual "systemic neuroimmune..." style guff which would be better excised. I think this framing is a mistake. There's not much evidence that anyone can treat idiopathic CF either. Not to mention that "charlatans" by definition cannot treat...

Not sure why you guys want historic most-viewed data out of MEPedia, but it occurs to me that as there's an access count at the footer of each Mediawiki rendered page, you could dump the pages out of Common Crawl (and Internet Archive using CDX) at different capture-time periods and use...

Gases always used to be inexpensive & and I doubt that's changed - differences in price between nitrogen and carbon dioxide will probably be trivial. It's true that if you expose mice immediately to high concentration CO2 they will exhibit signs of distress but if you increase the flow rate more...

If you have time, @Jonathan Edwards, I'd suggest reading the entire document. There's also stuff in there about benefit from IV saline, patients only tolerating specific brands of drugs due to variations in excipients (possible but surely very rare), an "exaggerated sympathetic nervous system...

Didn't say "they don't have other medical conditions", but "no other conditions that could adequately explain their entire cluster of symptoms" - i.e. a completely undetected misdiagnosis at at least the 6 month mark. The question predicate includes "recent diagnosis via CCC". If they're adults...

That would only be true under CCC if they were all adults (for children it's 3 months IIRC). How about: - They have no other conditions that could adequately explain their entire cluster of symptoms. - They all have at least one cognitive or sensory-perceptual symptom. I was initially going to...

Enteral feeding is reasonably safe but still not without risks. If I remember correctly... change of bowel habit from the feeds is common- NGs/NJs: hoarseness & discomfort are fairly common; there's an aspiration risk: if the tube does become displaced and feed spills into the respiratory tract...

May be the "clinical management of COVID-19 - living guideline", p115 of the PDF: "Interventions for rehabilitation based on fixed incremental increases in the time spent being physically active or graded exercise, should not be offered to people experiencing PESE (150)": Link...

There's some good stuff in this, and I'm always gratified to see sensory issues being addressed with the seriousness they deserve. Am I the only one to think it jumps around a little too much between the general needs of the majority of pwME and the needs of a relatively small handful of very...

Thanks. I've not yet listened to all of it but have listened to the first 5 minutes. I was struck by her comment that "needless to say that if you have POTS and hypermobile EDS you've probably got 3 or 4 of these" [list of syndromes slide @ 3:40]. Even in patients with generalised hypermobility...

I don't suppose she's published any case reports? I'd certainly like to see examples of the imaging findings and how she considers that those findings account for the cluster of symptoms that this group of patients commonly report. As students of medical history may recall, "gastroptosis" was a...

Having listened to it fully now I think the BBC journalist did a decent enough job. I'm sure it can be difficult for journalists to discern truth from honest dispute from lies in a case like this, and that difficulty is multiplied when there are people with excellent credentials - at least on...

Also "ethical challenged", "The trail", "anecdotat accounts" and "who got much wore".

It's not just LP, either. Just today another form of LP-esque charlatanry ("somatic experiencing") poked its head up with a puff piece in the Telegraph (archived link so as not to give them more traffic)...

Some other quotes from this that are simply completely wrong: There was an opportunity here to change people's minds and shift opinion from a psychogenic model to well, no model but that of compassionate care and pragmatic management. Unfortunately, a lot of people in the NHS who might be...

I haven't yet listened to the whole thing - I used my day's quota of energy reading the MEA post - but my concern is that for such a mendacious huckster as Parker, any publicity is good publicity. I had hoped someone would dig into his background as a tarot-card-reading faith healer: there's...

You're right, I should've been more careful in how I worded that (especially as someone who has personally experienced the gastroparesis-like symptoms and the associated weight loss and feeding difficulties). What I meant to imply was that it's not a disease process that usually poses a high...

Just skimmed through this. There's a lot of good content in this, although I do have a few concerns. I'm not sure why they've described it as "potentially serious". It does not routinely* lead to death or progressive deterioration, but in terms of the impact upon one's life it is very serious...