Search results

'Private Eye' piece on Unum, the American insurance company, and income protection cover, 11 November 2011 | The ME Association Is Labour abolishing illness? (newstatesman.com)

I'm so sorry that after my initial involvement & comments, my personal life blew up & i wasnt able to engage any more, & have only been able to read the general summary comments of the submission, but it looks amazing! I am massively grateful for all the long hard effort that went into this...

Precisely @Invisible Woman For me its just not worth the risk. I have got a chair etc so it not crucial

My fear with an unhelpful bossy OT is that if they did an unhelpful report it could have very bad consequences for PIP benefit applications. I dont know my GP that well & need letters from her as medical evidence. If the OT comes along and writes a report saying that i could do more than i can...

My neuro, who thinks 'CFS' is 'functional' but is sympathetic, once asked me if i would like to see an OT... afeared of the 'rehab' kind that you describe i turned him down saying that after 20 yrs i'd pretty much got all the aids i need. But actually i would like some advice on aids etc, just...

thnks @Andy

I meant that more literally @Andy ie does anyone know what the checklist actually is - ie a link to it, or know what is on it?

what is the 'BDS checklist'?

absolutely. I also frankly find it frustrating when people talk about 'difficulty concentrating' because that is something i experience when anxious - easily distracted, cant keep my mind on what i'm supposed to be doing & so just unable to pay attention... Which is qualitatively 'chalk &...

thanks for that @Barry I didnt write that quite accurately then as there is ambiguity. But IIRC when i was reading about it all (circa 2006) it was being seen (among those writing about it, i'm sorry i dont remember the details of whom etc), it was interpreted that SW had decided EP could not...

fantastic Natalie :) thnks

MArvellous as it is @Natalie :) but just a suggested change (in blue) As i'm sure you're only too well aware, many well meaning Drs/care givers think they understand but dont, and think they can help you by increasing your exposure & 'getting you used to it'. When i was mild - enough to ignore...

I couldnt agree more

Great, thanks, thats good enough for me :)

Also just to say that i got the bose in- ear ones as well and they are not nearly as good, they also made me feel very dizzy & sick & gave me a headache & made my tinnitus worse. I tried several times as i wasnt expecting to have those problems, but i couldnt get on with them at all - must be...

I was initially a bit concerned by this development.... Are you happy with this @Andy ?

Smart Noise Cancelling Headphones 700 | Bose mine are these they are fantastic, but pretty pricey at £350there is a 90 day satisfaction guarantee if you get them from Bose though, so if dont like/not worth it for any reason can return for full refund. you can get them atm from amzon for £269...

I came here to say just exactly this :) I'd hoped to get a bit further but am sliding down the wall. Huge thanks to everyone involved.

Hi Woolie not sure whether the statement you hate is my statement or whats implied in the study. So just to clarify i am not suggesting that any kind of unhealthy behaviours are to blame, for my, or anyone else's ME. I was just making the point that I for one would not choose to live the way i...

My main issue with it, apart from the issues you raised, was her repeated use of the advice to 'be selfish' as if self care were selfishness, reinforcing the meme that PwME are selfish & self absorbed. Its really not how i want to see my devastating illness represented. The BBC's focus on...