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my bold yeah I think i'm getting it, so people going on to NICE and to anywhere else about other options for treatment is actually likely counterproductive? We can point out the other evidence suggestive of possible organic pathology but we need to steer clear of talking about any evidence for...

yes ah ok i see, in broader terms what can be done about this do you think? I mean by us (pwme/advocates etc), - is there any way for us to affect change is that area? It feels like that' might be a possibly more effective strategy than merely trying to go after PACE itself for retraction, since...

This thread is so interesting. But sad to read of all your difficulties @Wonko, that stinks. I cant go out alone ever because it's so unsafe for me, even with good pacing i still regularly crash unexpectedly & suddenly, & then I cant hold myself upright in a chair, & get very confused &...

I'm finding your posts on this thread encouraging @Jonathan Edwards :) I also wonder.. Like PACE? Or was that of a high enough standard in the protocol? before they dropped the objective outcome measures & lowered the thresholds? I feel personally certain that this is part of the problem. I...

Gosh @Graham, the Gibson report! i forgot all about that. I thought that would really make a difference. Ugh countless times i thought, 'oh we're really going to get somewhere now' the tide is turning, in fact all that's happened is a ruddy tsunami coming into shore instead. I'm encouraged by...

Well that was an excellent interview. Very well done to SC, professional, real, succinct, direct & i particularly liked the emphatic tone. very good thank you. Thank you also to John Darvall, very well conducted interview

haha brilliant :D heres mine... My work explores the relationship between Jungian archetypes and skateboard ethics. With influences as diverse as Kafka and Frida Kahlo, new variations are generated from both mundane and transcendant textures. Ever since I was a postgraduate I have been...

I only read the abstract so cant comment on the full paper, but the abstract reminds me of some contemporary artists' 'Artist Statements'. http://www.thecollectorsartist.com/pretentious-artists-statements-why-we-write-them/ https://artybollocks.com/#abg_full When people use unnecessary...

@Sly Saint @NelliePledge :D:laugh: those really made me laugh, i needed that thank you.

we appear to be having a similar discussion on 2 diff threads which confuses me, so i'll try & make this my last comment here as it not really on topic anyway.... Yes, i see what you're saying. But I don't think it's necessarily the case that all psychological ideas can be traced back to Freud...

Ah, yes i see what you mean, thank you for explaining. I detest Freudian theory, he did make it up as he went along and was basically a perv obsessed with sex iyam. But that doesn't mean that all ideas, philosophies, methods that have developed since him are automatically poor or harmful just...

Personally i think the main problem with psychiatry, and some of psychology/psychologists too, is afaiaa, unlike a degree in say Humanistic Psychotherapy, there is no requirement that you have had any kind of psychotherapy yourself, (and by psychotherapy here i mean relationship based, self...

I couldn't agree more

Apologies if i'm being dense @Jonathan Edwards? But I'm not sure what you mean by this, could you pls clarify/expand/give examples?

thats interesting, because for me thats exactly the same 'voice' agreed. Which is why, imo the CBT for ME al la Chalder, is so utterly crazy-making & abusive, convincing people that their reality is self destructive when it is in fact self protective..

I agree that well meaning but manipulatory psychotherapy by therapists with an agenda, poor self awareness & poor ethics can be very dangerous, but i think thats the case in any field of therapy. 'inner voice' in some ways is an unfortunate term because it sounds a bit 'woowoo', but I think...

well none of that comes as a surprise to us does it. In a perverse way it's somewhat of a relief to me (in this moment) that its going on all over, rather than just in the BPS CFS world.

They seem to not know the difference between FND & ME, they list them all as the same thing & yet repeatedly use the word 'and' when describing them - ie "FND and ME". so, do they believe they are the same thing, or different. I agree with @adambeyoncelowe it looks like astroturfing. Or...

Regarding the article in the OP... unless the control group is made up of people who have another disease, i dont care which, but any chronic disease (pref neuro/autoimmune), then the results of studies into adverse life events & their correlation/association with any disease/condition are...

sorry that post was off topic... just to say i look forward to what David has to say about it all & what comes out of his Aussie trip too :thumbup: