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  1. JemPD

    Boom & Bust, where's the evidence?

    The 'do the same every day' thing has little to do with an appropriate response to deconditioning. As @unicorn7 & @Keela Too said, thats not how genuine fitness training is done. It strikes me that it's all part of their operant conditioning based approach - so it's designed to train us out of...
  2. JemPD

    David Tuller's new crowdfunding campaign (April 1, 2018)

    It's a privilege to contribute, I really hope the target is not only reached but smashed. At the moment i think it's the most productive thing we can spend our money on in terms of donations
  3. JemPD

    SBS Australia documentary on ME

    Best video i've ever seen about ME. First time i've seen my own experience represented so accurately (the lady with the glasses could have been me, so much so that i cried). And oh my goodness @dave30th i just started crying again when i saw you tearing up. Sendin love across the miles to one...
  4. JemPD

    Problematic training courses - please add

    This thread is so depressing. Valuable, but depressing
  5. JemPD

    meditation

    Kristin Neff has this whole 'self compassion' thing going on... a book etc, which i've found helpful. And i like the lack of music in her tracks. I really like the 'soften soothe allow' one when i'm upset about something. That dog Eddie was priceless & such a key character. I havent seen the...
  6. JemPD

    meditation

    LOL oh that did make me laugh i had such a mental picture of it. It reminds me of my old cat, she used to come & just stare at me when i was lying on the floor, her face really close to mine & sometimes she'd drool which was so gross so close to my face :rolleyes: It also made me think of...
  7. JemPD

    Rethinking the treatment of CFS — a reanalysis and evaluation of findings from a recent major trial of GET and CBT (2018) Wilshire et al.

    Interesting but not surprising stuff in the last few posts re the Guardian & the Estabilshment. @Luther Blissett when i said i was worried not to have had anything from the Guradian yet, i meant that i'd be relieved if all they did was stay silent. Based on previous behaviour, I was nervous...
  8. JemPD

    Mind, Madness and Power - Simon Wessely and others

    Ugh. He is just so charming, affable, funny (if you don't know him), he comes over as very approachable & likeable. I'm sure if i didn't know what i do about him & his work because i have ME, I would absolutely think he was credible, kind, reasonable. I can see totally how journos & others take...
  9. JemPD

    Rethinking the treatment of CFS — a reanalysis and evaluation of findings from a recent major trial of GET and CBT (2018) Wilshire et al.

    "The reanalysis is misleading and designed to yield the desired result." :laugh::rofl::rofl::laugh::rofl::rofl::laugh: oh what a wit! what a card! how clever you are Mr Sharpe to make such a joke! What sir? i beg your pardon? you weren't joking? nay sir, you must have been joking.... to...
  10. JemPD

    Beyond total treatment effects in randomised controlled trials: Baseline measurement of intermediate outcomes needed to reduce.., 2018, Dunn et al

    Perhaps the BPS brigade are getting fed up with patients, advocates & other non-supportive scientists like yourself understanding their work seemingly better than they do themselves & critiquing it in a 'vexatious' manner. So they decided to make it incomprehensible to anyone but those in the...
  11. JemPD

    The Mighty: How My Life Has Changed Since I Developed ME/CFS

    Yes i see what you mean @Revel , I think some of the piece can certainly be read in that way. I read it more like evolve = change and or adapt. I think 'evolve' is a bit of a buzzword these days to mean change/grow/become better (like you say). And that kind of thing often makes me want to puke...
  12. JemPD

    BBC: Chronic fatigue trial results 'not robust', new study says

    Thanks @Trish :) I trust the group's wisdom on this completely
  13. JemPD

    The Mighty: How My Life Has Changed Since I Developed ME/CFS

    @Revel I cant imagine how hard it must be to have never known a time in your life of being well. But in the context of the sentences before & after that one, I interpreted her to mean that herself with ME was so staggeringly different than the herself that she'd thus far known, that it was...
  14. JemPD

    BBC: Chronic fatigue trial results 'not robust', new study says

    Yes this was one of my concerns. @Trish .....I'd like to draw this post & idea to the attention of the committee for consideration (hence my including the quotes from the start of the specific discussion) but i dont like to tag them all here as i'm aware everyone is both very busy & has their...
  15. JemPD

    BBC: Chronic fatigue trial results 'not robust', new study says

    so..... to those who liked my post @Hutan @ladycatlover @Luther Blissett @Invisible Woman @Jan @Trish @dangermouse @adambeyoncelowe ..... does that mean you think i should start a thread? I dont like to start one entitled "S4ME thanks..." as i dont really feel it's my place to speak for the...
  16. JemPD

    BBC: Chronic fatigue trial results 'not robust', new study says

    I like her too @large donner very much, but in my mind this would be satire, & i think she'd do a great job of satirising EC :D
  17. JemPD

    BBC: Chronic fatigue trial results 'not robust', new study says

    haha that would be fabulous :D You could have Crawley played by Jennifer Saunders, & have Tom Selleck sweeping in from America as Dave Tuller whom she'd call "that pain in the arse American". ooo and Nigel Hawthorne could be in it as well :) ETA no no it wouldnt be 'pain in the arse american'...
  18. JemPD

    Telegraph front page: Wessely photo wth Duchess of Cambridge & BPS back pain treatment

    sorry all the link in the OP were broken & the back pain one was wrong anyway, i was so goofy that morning but i just had to try to post about it it was just such a horrible way to start my day seeing that! the OP links are both working accurately to the stories now. The photo of them both is...
  19. JemPD

    BBC: Chronic fatigue trial results 'not robust', new study says

    lets not get excitied about nothing in the guardian..... there are the weekend supplements to come out yet. If we get away without some egregious BS from someone (guardian, telegraph,indepenent) it really will be a win.
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