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  1. JemPD

    What author Merve Emre uncovered about the origins of the Myers-Briggs personality test

    well i got protagonist.... which reading the description, is completely wrong. I've done this, & slightly different but based on the same idea, tests about 10 times over the last 20yrs, 15yrs ago it was all the rage in the corporate world, & i suppose it still is. I've done the MB test 5 times &...
  2. JemPD

    The ME Association's continued support of the Sussex ME Society

    I can clearly see your post @Andy & we're not fb friends. BUT i had to change the fb settings from 'most relevant' - where fb chooses which comments to display, to 'new comments' - where all comments are displayed in chronological order. I'm in favour of them posting everything. But I find it...
  3. JemPD

    Name and shame list of institutions and psychiatrists/psychologists/pediatricians coercing exercise therapy on unwilling ME/CFS patients

    I'm afraid i've not the strength to read the whole thread so apologies if i repeat or go off track. But I couldn't agree more. I think a 'name & shame' website, although possibly useful for some things, would be a massive own goal. The very last thing we need imo is somewhere else for the...
  4. JemPD

    Tiredness, Fatigue, and Exhaustion as Perceived by Recreational Marathon Runners, 2018, Olsen et al

    oooo you wouldnt want to do that <sharp intake of breath> ... that'll be boom & bust n you want to avoid that! for anyone unclear that was sarcasm. Interesting article.
  5. JemPD

    David Tuller: Trial By Error: Professor Sharpe’s Pre-Hearing Briefing for Monaghan

    Exactly. I couldnt walk 500mtrs in 6 days. It took me a while to understand the chart because of that. My SF36 is 10-15 on a good day, & my maximum distance, at al,l (never mind in 6mins) is 46mtrs without collapsing. This is up & down the garden. And despite making the trip as often as...
  6. JemPD

    Member comments wanted: Third section (What the guideline will cover) of the NICE ME/CFS guidelines draft scope

    This. And the rest of whats been said by JE in this thread re non blinding & subjective/objective measures. I could rave on about all the pernickety bits that irritate me in this scope doc. But if our response made this point CRYSTAL clear i think it would be very good. I know there is loads...
  7. JemPD

    (Not a recommendation) (UK) "Chronic Fatigue Syndrome Conference: Costs, challenges and practice"

    Eww eeww eww eww EEEWWWW! What on EARTH are the NHS doing getting 'into bed' with these people. I don't know much about the OHC but the Chrysalis thing... ugh. Just revolting.
  8. JemPD

    Kelly McLellan seeks feedback on his draft Edinburgh ME Scale

    @kmclellan Hi, I probably shouldn't have posted last night as my comment doesn't make a lot of sense, i was struggling & i probably could have worded things better. Non of what i said was intended as an insult to you personally, it wasnt meant as a 'low blow' - as i said i applaud you for...
  9. JemPD

    Michael Sharpe skewered by @JohntheJack on Twitter

    Indeed. What we want is something that is actually 'evidence based'. And when we say 'evidence' we mean high quality, scientifically sound EVIDENCE. That's why we are so "negative" about PACE.... we are simply pointing out that the evidence for what we're being given is rubbish. That is. The...
  10. JemPD

    Kelly McLellan seeks feedback on his draft Edinburgh ME Scale

    Ok so i a bit foggy so will just give first impressions... sorry they are 'whats wrong' rather than what's right, because thats just what is jumping out at ame as i spot errors easier when i not at my best. 12.5% - The thing about falling asleep, i dont sleep in the day, i wish i did. Severe...
  11. JemPD

    Joseph Stashko: How to (almost) disappear completely

    Very, very good. such a good precis of the issues
  12. JemPD

    Michael Sharpe skewered by @JohntheJack on Twitter

    Precisely. I do think it's poor for a doctor of his status, standing, influence & power over whether his patients receive such benefits, to not be aware that PIP has nothing whatsoever to do with whether someone is fit for work or not. Its about the extra financial burden of being ill/disabled &...
  13. JemPD

    Updates on status of ICD-11 and changes to other classification and terminology systems

    Wow @Dx Revision Watch this whole situation is deeply disturbing & scary & it just stinks that a few patients/advocates - mainly yourself & Mary Dimmock as i understand it, are having to do all this massively complex, confusing & seemingly never ending work. I cant keep up with it at all, you...
  14. JemPD

    “It Has Come to My Attention…” How Institutional Complaints Procedures are Being Weaponized (article in Quillette)

    yes, https://www.s4me.info/threads/telegraph-front-page-wessely-photo-wth-duchess-of-cambridge-bps-back-pain-treatment.3124/ posts i dont think this was the first time though... i seem to remember something to do with his work with the MOD & Combat Stress charity, maybe when he got his...
  15. JemPD

    small advocacy project: replacement for CFS/ME clinic patient manual

    It might be worth doing anyway for the benefit of new patients, regardless of what happens with NICE - i dont know about that, as long as we're sure there isnt something good already in use... has the MEA pacing leaflet been looked at i seem to remember it being quite helpful? and there was also...
  16. JemPD

    Re-framing GET as pacing, or vice-versa

    @NelliePledge thanks for that link it's useful.... In the managing stress section Unless of course we're saying no to CBT or that we need to stop rather than pushing on with your shitty advice Unless its the schedule of GET you've set for us Except of course for the fact that we at the...
  17. JemPD

    Med Students Still Do Pelvic Exams on Women Under Anesthesia

    Sexual Assault. Plain and simple. They should all be in prison, every last one of them. ETA There is no difference between this & a bunch of blokes deciding to do it to some woman passed out drunk. In fact it's worse because these woman have put their trust in these doctors.
  18. JemPD

    Michael Sharpe skewered by @JohntheJack on Twitter

    Ahhhh, well, that explains it then. He reacted in a cognitively unhealthy way to a 'minor' health event - not saying tinnitus is nothing - i have it quite badly & it can be miserable at times, but it's not exactly rocket science to avoid focusing on it. But he did focus on it, he obsessed over...
  19. JemPD

    Re-framing GET as pacing, or vice-versa

    exactly patronising b*stards, they really do think we are stupid. Very funny clip @large donner
  20. JemPD

    NICE ME/CFS Guideline stakeholder scoping workshop, Fri 25th May 2018

    haha lol they are 'chandlers' indeed....... what a marvellous freudian slip :D It should be called that from now on imo. Sorry @Suffolkres i didnt realise you'd written it :confused: I wasnt suggesting in anyway that you were ill informed! Was clearly too fuzzy to be posting :rolleyes:
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