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  1. JemPD

    Rapid fatigability or a lower amount of available energy - the same thing or different?

    This. I understand what you're trying to do @Andy & this isnt a critisism of it, it's just that personally I always steer well clear of the word 'energy' when talking to people about ME. Because people (when trying to understand another's experience) always try to relate whats being said to...
  2. JemPD

    Covid-19 vaccines and vaccinations

    I'm sure you'll get a more knowledgeable reply, but personally I wouldnt imagine antibiotics would have any impact on the vaccine efficacy, given that antibiotics work on bacteria, no impact on viruses. But i might be completely wrong. I hope someone more more medically knowledgeable will...
  3. JemPD

    Covid-19 vaccination experiences

    Just wanted to reassure you @DokaGirl For 8 days i felt dire, i was over the 'fever/obvious side effects after 5 days but then felt extremely queer - very spacey, weaker than usual, & able to stand for half the usual time feeling extremely sick & dizzy, my temperature even went up a bit again. I...
  4. JemPD

    Functional Neurological Disorders (FNDs) in the media

    from the article Since some of the early signs of cancer can easily be dismissed as subjective & the patient gets sent away, because drs with attitudes like his believe them to be 'objectively well' (it's happened to me & countless others i'm sure)..... I dont think he's got any business...
  5. JemPD

    Understanding, is it necessary in every contact or friendship?

    So pleased for you! :) We all make mistakes, I'm so glad it worked out for you both :hug:
  6. JemPD

    Understanding, is it necessary in every contact or friendship?

    Wow... Sorry but that makes me angry..... "entitled" to take a view on your life? So viewing it from the outside, a couple of 'snapshots' a wk, she thinks she's entitled to make a judgement about your entire life experience does she? Who does she think she is?! Obviously you may feel very...
  7. JemPD

    Crowdfunding: Trial by Error [David Tuller] Reporting on ME, CFS, ME/CFS, "medically unexplained symptoms," and related stuff, Spring 2021

    In my fantasy that wiki page says 'Streisand effect (Sharpe effect in science/medicine)'
  8. JemPD

    Crowdfunding: Trial by Error [David Tuller] Reporting on ME, CFS, ME/CFS, "medically unexplained symptoms," and related stuff, Spring 2021

    I fantasise that in the future 'The Sharpe Effect' will be as well known & used as Godwin's Law or Occam's Razor.
  9. JemPD

    George Monbiot on ME/CFS, PACE, BPS and Long Covid

    Garners comment on the article (copied from @Invisible Woman 's post at top of page) Oh well then, best not let anyone know that cancer can kill you, that must surely make them more likely to die. Oh wait, no that was debunked... :emoji_face_palm:
  10. JemPD

    Covid-19 vaccination experiences

    I'm now 48hrs post 1st dose AZ & i feel like crap. But massively better than i did 12hrs after -which was just dreadful. Dreadful. No different than a bad ME crash but unexpected as i'd been resting 4days prior & being driven to the centre 5mins away wouldn't normally cause the severity of...
  11. JemPD

    Covid-19 vaccination experiences

    I am 3hrs post my 1st dose of AZ i feel very odd, cant put it into words, just odd.
  12. JemPD

    What Does CATS Have to Do With Cancer? The Cognitive Activation Theory of Stress (CATS) Forms the SURGE Model.., 2021, Monk et al

    It sees to me that the goal is "stop bothering us you pesky patients. We cut the cancer out of you now stop bothering us with your 'post op issues', you're like mosquitoes you're so annoying, we want to get on with things that we enjoy, like cutting, and being thought of as gods. Your pesky pain...
  13. JemPD

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    me too. me too. Me.Too :hug:
  14. JemPD

    NICE ME/CFS guideline - draft published for consultation - 10th November 2020

    in a word, no. I dont think so anyway. I hope Jonathan's info is right, but after 20yrs of watching the BPSers ruling the roost i wont be confident of anything until it happens.
  15. JemPD

    YouTube: An Existence Project - Paper Stop motion Animation About ME/CFS by Inga Topolnicki

    beautiful, very nicely done i liked it very much. shared it on my fb which i wouldnt normally
  16. JemPD

    Dissecting the nature of post-exertional malaise, Hartle et al, 2021

    You make some excellent points Ravn, all of which i agree with. I am just so frustrated in my personal life atm that i feel like flipping my lid, unfairly. Also agree with what you've said @Trish & @Invisible Woman
  17. JemPD

    Dissecting the nature of post-exertional malaise, Hartle et al, 2021

    All of the above I despair. Sorry but my patience is thin tonight... To have a single option for Q4 response is pathetic, as is thinking that a single option for Q2 is suitable... depends what you mean by PEM. They dont understand it, and they dont even bother to ask, oh i dont know, a few...
  18. JemPD

    Video: "The ME scandal"

    Yeah i agree unfortunately. Subtitles are very hard at the best of times, but attempting to tune out the movement while reading is impossible for me after just a few minutes. Man that is a serious 'battery drain' i'll never get my microwave ready-meal tonight if i carry on trying to watch it...
  19. JemPD

    Covid-19 vaccines and vaccinations

    Which vaccine is that Mij? BNT162b2?
  20. JemPD

    Covid-19 vaccines and vaccinations

    Thanks, what about Moderna though? or should it be assumed that as it works same way (as i understand it) as pfizer, the efficacy should be similar? Just wondering what people are saying about the moderna, as not heard much about it, wondering what Hilda thinks, & thare was that brilliant video...
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