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  1. JemPD

    "Soap"

    So does that mean that a strong - say 1:10 solution of washing up liquid may not kill coronavirus? My carer believes it will - because a doctor on tv said that any kind of soap eg washing up liquid would kill it. So for example, when she comes in, she goes straight to the kitchen tap & washes...
  2. JemPD

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    My thanks to the sensible comments on Dr Garner's post re ME, I only managed to read a few. I thought yours particularly good @rvallee
  3. JemPD

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    Dear Dr Garner, imagine that it never went away, imagine all those weird & wonderful 'advent calender' of symptoms that started with the virus & just kept on coming.... imagine they never went away. And decades later they are still there. You're still being 'beaten up with a cricket bat' -...
  4. JemPD

    UK Planned study: Feasibility of investigating VO2, HR, BP, lactic acid and activity of pwME during normal daily activity, 2020/21, Clague-Baker et al

    yes especially small 'unusual' things. Things patients report as being 'unusual' and quirky, things/sensations either not experienced before ME or very differently now. Things that Drs dismiss as superficial, hypochondriacal/body watching etc, but which may actually point to something useful...
  5. JemPD

    My mom is limited by a disability but still shows up in all ways that matter-Washington Post article

    what a lovely lovely article :) yes. Edited to remove sentence that could be viewed as possible 'conspiracy theory' - too ill to discuss/defend it
  6. JemPD

    (May 2020) Help ME Research UK win free money in a voting contest. They are only up against 3 other finalists

    @Tom Kindlon thanks for the link. do you know if this is one of those 'vote daily' kind of things or do you just get the one vote? MERUK winning 52% currently :)
  7. JemPD

    United Kingdom: Optimum Health Clinic (Alex Howard)

    I don't have the energy to check, but he should be a member of the BACP or UKCP, he wont be able to get UKCP membership I don't think because that requires a much higher level of qualification, but the BACP have ethical guidelines which members must follow. Frankly if he isn't a member of one of...
  8. JemPD

    Advice from 'experts' on post-viral fatigue following Covid-19 (NHS Oxford Health, Science Media Centre, ...)

    @PhysiosforME That letter is a thing of beauty! It made my day thanks so much :)
  9. JemPD

    Coronavirus - worldwide spread and control

    many thanks that's very useful. For others... The telegraph has a tracker, but I don't know how good it is because you have to log in & I haven't the energy
  10. JemPD

    Coronavirus - worldwide spread and control

    is there a place online that one can see data of positive test numbers by localised area that is regularly updated (eg by city/county), for example wherever you found out that east of England is increasing...? Well I'm sure there is, but i'm hoping someone might be able to give me a link...
  11. JemPD

    (UK) How much are disabled people who can't work expected to live on?

    I'm sure *you know this Kitty, but just for the sake of the thread... The disability premiums are paid only to those with savings of less than £16,000. These premiums are what they call 'income related' benefits - ie means tested. ESA itself can be either Income Related Or Contribution Based...
  12. JemPD

    Coronavirus - worldwide spread and control

    Wow. And yet we are all opening our front doors and clapping & cheering at 8pm every Thursday... I watched a clip on tv of people in a row of houses (terraced) all standing at their doors... it's lovely & all, wonderful, but every set of 2 houses the doors are 1ft away from each other so the...
  13. JemPD

    Crowdfunding: Trial By Error: [David Tuller] Reporting on ME, CFS, "medically unexplained symptoms," and related stuff, 2020

    yes I can confirm it's working ok now, no mention of perks. From the link in the OP I clicked on the 'give now' button on the right hand side, then it came up with a box saying $100 (I so wish I could afford to give that much!) but then underneath options for different amounts, & when you click...
  14. JemPD

    UK - Resources for help getting food during quarantine and other supermarket related problems

    Am now slightly concerned that if I wrong about the 12 wk thing I don't want anyone to be following what I said & putting themselves at risk. If @Wonko is sure he saw them saying anyone with any pre existing condition (ie those eligible for a flu jab) needs to not leave their house for 12 wks...
  15. JemPD

    UK - Resources for help getting food during quarantine and other supermarket related problems

    LOL all this talk of potatoes is making me hungry. My soulfood delivery arrived yesterday I am off to put one in microwave :) @Trish I think it does depend on the variety of potato (re freezing) Hope you manage to find a way of managing the potatoes @Wonko gosh all this extra effort...
  16. JemPD

    UK - Resources for help getting food during quarantine and other supermarket related problems

    Oh, well of course I could be wrong, but thats not my recollection at all. The 12 wks of being not able to leave your home for any reason was only introduced for the shielded/extremely vulnerable group. Otherwise they are absolutely no different to the rest of us in the increased risk group, if...
  17. JemPD

    UK - Resources for help getting food during quarantine and other supermarket related problems

    I dont think that's quite accurate... The people who have been told to stay indoors for 12 wks are only those in the shielding group, the group that has had the letters from the NHS & that people have been signing up to. Those who have pre existing conditions (like neurological...
  18. JemPD

    UK - Resources for help getting food during quarantine and other supermarket related problems

    Well done HHNF :) Do you have a history of ordering from them recently (ie this year?) I have been registered with them for about 10yrs but not had a delivery for about 5 - they made me so cross with all the ridiculous subs (eg sending kiwi brand shoe polish as a substitution for pack of 4 kiwi...
  19. JemPD

    Resources for help getting food during quarantine and safe handling of food

    Yes you make a very good point there. But i'm not sure what can be done about that? I don't want to contribute to anyone's despair. This is what i'm doing & i'm sacrificing other things like (on the day it arrives) not eating a hot meal - ie i'm eating fruit/nuts/crackers etc the day the food...
  20. JemPD

    Resources for help getting food during quarantine and safe handling of food

    Sorry Erin but that's a bit like the person who says "I drove for 40yrs without a seat belt & nothing bad ever happened to me". I'm glad that the person with a cough didn't infect you, but that doesn't mean that being in the room with them wasn't risky. In terms of your link to the telegraph...
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