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  1. JemPD

    Covid-19 vaccination experiences

    :( So sorry for your loss Sally. Rest peacefully Patsy
  2. JemPD

    Blog: "The patient voice: a biased or valuable source of information?"

    I think i've missed a thread... ? Who are clarity?
  3. JemPD

    Covid-19 vaccination experiences

    Hope it goes well @hinterland
  4. JemPD

    Covid-19 vaccination experiences

    Thats a lot to handle @Invisible Woman !! I hop Invisible Dog is ok now? so heart wrenching when our animals are ill. Sending hugs
  5. JemPD

    Understanding suicidal ideation in people with chronic invisible illness, 2020, Pederson

    With you @Wonko & @Woolie I dont even think it should be called 'suicidal ideation', it's not. It's euthanasia ideation. I have experienced it plenty of times, & it wasnt at all that i didnt want to live, i simply sometimes dont want to live... like this. They dont describe people who are...
  6. JemPD

    Trudie Chalder, BPS and MUS proponent - presentations, interviews and news

    It appears that they simply cannott hear any concept that would reveal their ideas to not be backed up by fact. It is inconceivable to them that they are wrong, that they even can be wrong, it's not even possible in their world, so any information that would suggest that they are, simply will...
  7. JemPD

    Cambridgeshire Live article: Cambridge Dad living with ME becomes so exhausted he can't walk downstairs

    10yrs or so ago he used to call it 'exercise-induced muscle fatigue' which drove me completely bonkers when i kept reading it in articles & on the MEA website. No you're not. Am i the only one who's sick of saying that i dont feel fatigued, i feel ill. It's a mess, because plenty of people with...
  8. JemPD

    Well-known, famous people with fibromyalgia

    That is absolutely disgusting. In any setting to ask a person that, especially in the context of OH, or indeed in any context other than that where it would be explicitly relevant (eg examining evidence of a vaginal injury in the gynaecologist's office), is absolutely outrageous, and the only...
  9. JemPD

    Covid-19 vaccines and vaccinations

    yes @MeSci in uk it was, due to clot risk. I think to under 30s, but may have been under 40s i cant remember
  10. JemPD

    UK: Observer/Guardian article: "GPs stricken by long Covid ‘shocked and betrayed’ at being forced from jobs"

    In the 16 yrs i worked before i developed ME & then during the 18mnths i was "mild" & 'pushing through/in denial about it, i never worked anywhere where they paid sick pay, which was definitely the reason i forced myself to continue. I imagine had i had that privilege i may have rested & not...
  11. JemPD

    Covid-19 vaccines and vaccinations

    @Binkie4 how awful :( i hope it all improves very soon My bolding. Yes this is also going to be my approach. I cant carry on in total isolation & once i am double dosed, i will be mixing (sensibly) with those who are also doubled dosed and tested. For those who are living/working in front line...
  12. JemPD

    Advice on mask-wearing to protect against Covid-19

    I think one of the issues is that people dont seem to wear them properly, even the N95 masks are worn loosely with big gaps on either side of the nose, so they slip down to the very tip of the nose because the wire isnt pressed tightly, & massive gaping gaps at the sides of the face on most...
  13. JemPD

    Good nutrition when energy is very low

    I'm looking into Huel. Will let you know how i get on if i try it
  14. JemPD

    Covid-19 vaccination experiences

    Thats good Trish, I only know other non-ME people, but all 4 of them that i know who had AZ & a significant reaction - fever/major flu like - one 40yr old guy said it made him 'feel like shite', at any rate they all had minimum of a couple days in bed with it...they all said their 2nd dose was...
  15. JemPD

    Rapid fatigability or a lower amount of available energy - the same thing or different?

    Yes, this, i always find the cross over remarkable too. Sitting reading for too long & my legs stop working properly - coordination goes very wonky.
  16. JemPD

    Rapid fatigability or a lower amount of available energy - the same thing or different?

    Is this testable/has it been looked at? One thing i find so remarkable is how when i get a bug - flu/infection etc i feel identical to an ME crash. The crash has more symptoms overlaid on top - eg marked cognitive difficulties, but otherwise in terms of experience they are exactly the same. Pls...
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