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I think this happens the same way a lot of healthy people, regardless of sex, seem to find comfort in psychological explanations for ME - if it’s in our heads that means they probably won’t get it themselves, or at least they can tell themselves they would be able to ‘snap out of it’ with some...

This is exactly what happened when the Norwegian guidelines were reviewed in 2015. We ended up with a ‘specialist center’ run by the psych crowd. It did nothing at all for five years (and is up for review now) which is probably the best possible outcome. Yesterday some health official actually...

@Kalliope you’re doing a great job with posting everything going on btw, thanks! There was a really nice article in Aftenposten today too, but paywalled. I’m crashing from my birthday celebration so I can’t manage to find a link or quote, but even conservative, LP-enthusiastic Aftenposten did...

The coverage has been great too, not so much as a reference to any “controversy” or quotes from our friends Wyller, Landsmark or Vogt included:thumbup: Just a singular focus on the seriousness of the disease and the lack of treatment, support and understanding. The last couple of weeks have...

Yep!

Healthy scepticism is what this forum is all about, isn't it?:) Anyway, I agree. Still a step in the right direction, but probably more hurdles left to cross than we can imagine.

Dr. Davis has previously stated that they intend to test with blood from other, comparable, diseases as well, like MS, Lyme, diabetes, etc., so I assume they are aware of the possibility.

Absolutely, I agree this is a big part of it - the loss of or change in identity. The interviews also highlights how you can find other ways to use your talents, or finding other ways to express yourself. Like all the amazing people in here who post and read new studies and help others...

I read the first three chapters so far. It’s not exactly solid science (mostly anecdotal stuff), but I find it promising. The best part so far is that the author manages to describe accurately the frustration of being simultaneously over and under stimulated. I’m bored out of my mind, but I...

My favorite graph. Perfectly describes my ME experience.

Worth the long read!:)

Sorry, meant 1, 3, and 4! Not a US citizen:)

1, 2, and 4 done:)

No, but it seems to be connected to Nancy Klimas. And they apparently focus on GW and ME/CFS, so that makes sense:) ETA: Klimas is the Director.

Very interesting. Even in the middle of an infection/visible inflammation my CRP is <1. Not helpful when seeing doctors, who just cannot fathom the possibility of these two coexisting.

I don’t know what exactly they are referring to and hoping someone knows more about this, but I do know there have been at least two court rulings in Norway stating that ME is a serious and debilitating disease (no reference to physiology as far as I know). They are both from cases where...

:confused:

:D

In that case maybe the best thing we can do is to agree on an organization we believe will have the best chance of making this happen and push to raise funds for it? Like Tuller, but with epic marketing skills. Or is Tuller the best marketing we can get right now and we should rather push to...

Great episode!