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That’s a pretty big omission.

What, you don’t like the idea of giant syringes filled with poo?:eek::p

Thanks @Inara that’ helpful:) doubt they’ll give me much in the way of options when it comes to the kind of vaccine they offer, but it won’t hurt to ask! No way around getting multiple ones I’m afraid, but by the time I need a top-up let’s hope we’re all cured!:emoji_fingers_crossed:

Possibly. Or she just wasn’t sure if I had a partner atm. Or she said something else, to be honest I wasn’t really listening, all my focus was on getting the last shoe on:unsure: sounds like we could both benefit from getting the vaccine, regardless!

Or just ask people if it’s ok, while they are conscious.

I’m in a stable monogamous relationship, so in that case I should be safe from new strains (unless they can be dormant for years). I’m 10 years too old to have been in the school program, and they only started vaccinating boys last year so neither of us have it. My mom just told me she suggested...

That is HORRIFYING. My phobia for gynecological issues just reached another level.

I agree, I’m not worried about the safety of the vaccine (I was initially bummed out that I was too old to get it). Regardless, PwME report sometimes having very strong reactions to ANY kind of vaccine, potentially making their ME worse by taking up precious energy much in the same way a viral...

I’m more worried about having a reaction to the vaccine that will result in a relapse.

Thank you, @Amw66 that is very useful to know. I’ve written to the Norwegian ME Association to ask for their input as well, if they have any to give. If I take it I suppose I will have to reserve a couple of months for staying in bed, making sure we have plenty of meals in the freezer, etc...

This quickly became relevant again today, apparently I'm not too old as long as they think I'm a high risk case. I've had a second biopsy today to check for HPV mediated cell changes because although there are very few cell changes they are very resistant and just won't go away (at least so far...

After the first day he raised the goal to 500k NOK ($61k or €52.4k) as the 300k were already in. So far 405k has been donated. As usual, many who give are PwME, but probably some others as well - a lot of people have wanted to talk to me about the documentary, I think it really hit home for...

English translation by Yandex

I think they have learned from the rituximab studies to be very careful with what they say before they publish. Cyclo is associated with some pretty heavy side effects and I’m sure they are worried that patients or doctors will go rogue again. With cyclo that is a much bigger risk. (I have...

Just sorry you had to be told that from a friend even after all your efforts! People really, really want to believe it’s in our heads it seemso_O

:banghead:

@Amw66 that must be why half my family have married scots!:laugh:

I really hope they will tweet or summarize in some way, there’s so much interesting stuff going on.

In iTunes, go to Podcasts -> Library -> Shows -> ME Show On the page for the full show, rather than separate episodes, you should find reviews and/or options to post a review :) (this is based on the podcast app, might be slightly different in iTunes)

I’ve been told many times that that the greatest Norwegian talent is the ability to be found absolutely everywhere, despite being one of the worlds smallest nations (by number of inhabitants).:woot: